Unsympathetic GP!!!

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Unsympathetic GP!!!

Postby mabel » Tue Dec 20, 2011 3:47 pm

ended up in tears at Gp Surgery ths morning - was telling her that am in alot of pain wake up everyday with a terrible headache from neck pain and am finding it generally increasingly more difficult to manage day to day activities.
My hips, back and hands are also constantly giving me alot of discomfort.

She shrugged shoulders and said what can i do about it? i said i would like to be refered to a pain clinic which i have never been to or back to rhumatology where i was signed off from and entrusted back into the care of G.P 18 months ago.

The reply was they will just tell u the same thing -"keep on taking amitripline every night as it is a painkiller? "
As i have now suffered with fibro for approx 5 years i said i need some more support and advice from the experts. also i would like to know the prognosis if i find it difficult to move around now what will i be like in another 10 years time when i'm 60?
I have also just been refused blue badge.
Still nothing achieved
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Re: Unsympathetic GP!!!

Postby stephen mullen » Tue Dec 20, 2011 4:04 pm

Sorry to hear that im in the same i take 40mg of amitriptolyene every night but im lucky if i get 4hrs sleep . my doctor is suggesting tramadol im already taking cocodamol and diclofenac |. i would try another gp
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Re: Unsympathetic GP!!!

Postby Ldyalb » Tue Dec 20, 2011 4:10 pm

I would also try another GP. I'm currently on;

50mg Amitriptyline (Amis are an anti-depressant, however, in low doses they have been found to help people with chronic pain sleep, and get some pain relief, it sounds like your dosage may be too low, or that ami's are not the right med for you)
30mg x 4 Dihydrocodeine
50mg x 3 Diclofenac

For the pain, plus paracetamol. I'm off to my GP on Thurs, want some different, or higher dose meds as most days they're barely helping me any more.

Are there other GPs at your surgery you could try and see? Or even a different surgery in your area? You clearly need more effective pain relief. You can take paracetamol with ami's if you're not already. But the GP needs to look in to giving you some other methods of pain relief.

:hugs:
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TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

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Re: Unsympathetic GP!!!

Postby FluppyPuffy » Tue Dec 20, 2011 4:12 pm

:xmaswave1: :xmaswave1: mabel, I've split this off from the topic you had posted on and made it into a topic of it's own as it's more to do with a different subject. That way it won't get lost in the middle of any posts made after it, and hopefully you'll get some helpful replies :fingerscrossed: :fingerscrossed:

There are other meds than can be tried, often alongside amitriptyline, try and get things under control, this linky tells you about some of them http://www.nhs.uk/Conditions/Fibromyalgia/Pages/Treatment.aspx If you have a look at them, you could go back to your GP, explain about what you've been looking at (it's an NHS site so they can't say it's not credible :nono: :nono: :nono: ) and see which might be suitable for you. Alternatively, you could see a different GP and find out if they are more understanding and helpful for you.

Either or both of these things could be done while you're waiting for a pain clinic referral to be made, which maybe a different doc could/would do for you.

Sadly, what you've just gone thru isn't a one off, there seems to be quite a number of GPs who give up at the first mention of FM :facepalm: :facepalm: :facepalm:

We're always here if you need us :grouphug: :grouphug: :grouphug: :grouphug: :grouphug:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: Unsympathetic GP!!!

Postby mabel » Tue Dec 20, 2011 11:03 pm

Thankou for all yyour replies and advice.
Thankyou also for moving my message onto a new notice entry. i could not wor out how to do that.
I am so pleased to have discovered this forum. :-D
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Re: Unsympathetic GP!!!

Postby FluppyPuffy » Tue Dec 20, 2011 11:34 pm

It's no problem mabel, anything you're unsure of on here, just ask and we'll try to help you with it :grouphug: :grouphug:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: Unsympathetic GP!!!

Postby DJG88 » Wed Dec 21, 2011 1:57 pm

I am really sorry to hear about your experience with the GP. You do have a right to ask for a new doctor, a second opinion or even move to another doctors.

When my doctor left the surgery I was at it was awful because no one gave me the time of day. I moved to another surgery and I can only say how amazing they are. My doctor sits and listens to me, he never rushes me out of his office, he hands me tissues when I sit and cry on my bad days. He has arranged for me to have physio as well as attend the pain clinic.

You need someone to tell you that it is okay to cry, it is okay to feel like giving up on some days, that they will be at the end of the phone when you need them and to tell you that there is hope, that eventually one day you will wake up and have no pain.

Take care
D
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Re: Unsympathetic GP!!!

Postby Walinali » Sat Dec 24, 2011 12:15 pm

Change GP surgery. I did and found a fab female GP who immed sent me to pain clinic after 2 years of pain. I am a practice nurse. U are NOT on the recommended drugs for fibromyalgia. U need stronger painkillers.. I am on tramadol and pregabalin 650mg per day! Don't sleep well sometimes so am now going to try duloxetine as well.

I am not depressed but sad that I will never get any better and wud like ONE day without stiffness or pain.... Ur GP is c**p! Please find one that is sympathetic to fibro.... It is hard to find though. I was off sick for 5 weeks and only one doctor came and asked how I was when I returned. Two others emailed me....they work next door to me!!!

My manager has never said anything to me on my return. He emails his responses!!! I went to occup health.he was useless. He gave me a look of horror when I asked if I wud get some form of DLA? He obviously has no clue how fibro affects people. Just because I walked into his office he couldn't believe I had to get my hubby to help me out of bath and put my underwear on.am so stiff and in pain in the mornings.a also going to physio.

He refuses me acupuncture even though I wud luv to have one day without any pain. Pain clinic again in 6months! They gave me a tens machine.that was it! I found the pain consultant not nice. She kept talking about herself!! We thank god this site is here to talk together as we only know what fibro means :yikes:
Last edited by denys on Sat Dec 24, 2011 12:18 pm, edited 1 time in total.
Reason: altered language and broken down into smaller paragraphs
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Re: Unsympathetic GP!!!

Postby Roseofsharon » Sat Dec 24, 2011 8:38 pm

I agree change your GP!

An unsympathetic Gp is equal not having one in my book, as without a gp that will listen and give you the correct treatment you are not getting the right treatment or help. Maybe I'm wrong and hopefully someone can correct me if I am - but isn't it a breach of the GP's duty of care if they are failing to listen and treat us on what we are going through???!!! At any length only you know how things are affecting you at any given time so the GP should be treating you accordingly not doing just what they think...
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Re: Unsympathetic GP!!!

Postby Ldyalb » Sat Dec 24, 2011 10:03 pm

I agree with Rose, I'm sure some of these people have forgotten their Hippocratic Oath. And a rubbish one is just as bad as none unfortunately, unless they're really bad - then it's worse than none.
'Think of all the beauty still left around you and be happy' - Anne Frank

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Re: Unsympathetic GP!!!

Postby sjc » Sun Dec 25, 2011 4:34 pm

[b]hi there, hope u are ok and having a decent xmas, despite your issues with pain, etc. I can understand your issue with having an unsympathetic gp/nhs worker. Like many people with fibro, they do suffer with lack of support and sympathy. Gp's are sadly not specialist in pain and fatigue related disorders, so it is unfortunate they will not understand about certain disabilities in detail, but this doesn't give them the right to talk to you in a poor manner. Please if you have problems with any nhs worker, then write a complaints letter to their manager or the nhs complaints service. Seek another gp advice, and remember, you have the right to demand proper support. It would help if you can be referred to a specialist support service. Medication's only will be alright for a while, but you need specialist support to learn you to do with your issues. Have you ever tried to refer yourself to your local social services? They can help with equipment, home help, etc? Take care and keep strong. All the best. Xxxxxxx
Sick of being sick, if you know what I mean. Anger keeps me going! I love campaigning for the rights of those with hidden disabilities. Enjoys talking to other like minded people - well, if you are sane, anyway :)
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Re: Unsympathetic GP!!!

Postby fabshaun » Wed Dec 28, 2011 11:35 am

i have seen two (new) gps and an ent specialist, when i mentioned fybro, i might as well have been talking a foriegn language for all the good it did, i am amazed that doctors can still be so ignorant of this horrible condition. one of the gps i saww was only bothered about my smoking, whilst we all know its bad- it really annoyed me that thats all she could talk about like i was about 10 years old! so ive learnt to take care off myself and do my own care!
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