new doctor...now its maybe CFS/ME instead!

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new doctor...now its maybe CFS/ME instead!

Postby kolakube » Mon Jan 30, 2012 11:42 pm

But at least its a referral to the rheumatologist!

I've finally had an appointment with a GP after the ordeal of needing to change gp over xmas due to moving house. My dr's appointment went better than expected in some ways. she didn't give me the bloomin' depression questionare! and believed me.

couldn't really answer my creepy crawly electrical feelings & clumsier coordinated hands, or my dissappearing words. (and couldn't allieveate my slightly irrasional fear that its MS. )

but she didn't think it was fibro. She thinks its more CFS/ME and a separate muscle/bone problem, (I've web/googled diagnosed 'snapping scapula syndrome although that doesn't explain my clicking hips/knees/ankles/wrists/knuckles/neck and even toes that also crick & snap.)

I don't know how to feel. I'd just begun to get my head round this fibro lark. Now i have more questions, less answers. Still don't know what to do about work or riding my motorbike. aarrrrrrrrggggggggggggggghhhhhhhhhhhhhhhh!!!!!!!!!!!!!!!!!!!!!!!!
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Re: new doctor...now its maybe CFS/ME instead!

Postby Ldyalb » Tue Jan 31, 2012 2:25 pm

At least you can see a Rheumy soon - hopefully they'll be able to give you a more definitive answer as to what's the cause. CFS, ME and Fibro all have very similar symptoms so it can be confusing sometimes to work out which one it is, or if it is indeed CFS and Fibro together.

wrt the creepy crawling feeling - is that all over, or is it specifically in one body area such as your legs? If it's in your legs by itself then it could be Willis-Ekbom Disease, aka Restless Legs Syndrome.

If you're generally having strange sensations over the body then it could be Fibro, a med side effect or something else such as neuropathy. Tingling sensations can be caused by an imbalance of electrolytes in the blood as well.

The Rheumy will hopefully order some blood tests, do the Fibro tender point test and maybe some scans and x rays to rule out arthritis disorders, and to check if there's any damage to the bones of joints. And then you will hopefully have your answer :-)
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Re: new doctor...now its maybe CFS/ME instead!

Postby denys » Tue Jan 31, 2012 2:37 pm

:fingerscrossed: you get some answers soon :hugs:
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Re: new doctor...now its maybe CFS/ME instead!

Postby FluppyPuffy » Tue Jan 31, 2012 2:50 pm

I know it's frustrating when you've been told it's one problem by one person, only to be told that it could be something completely different by someone else :facepalm: :facepalm: On the other hand tho, at least your new GP appears to be taking your symptoms and problems seriously, so hopefully you'll have some answers soon. It is possible to have both conditions, so that may be another possibility to consider :dunno: :dunno: :dunno:
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Re: new doctor...now its maybe CFS/ME instead!

Postby shazq » Tue Jan 31, 2012 7:34 pm

:crazy: Hope the Rheumy can give you some answers. :goodluck1:
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