After GP...next step.

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After GP...next step.

Postby littlereddevil » Fri Feb 24, 2012 6:52 pm

Diagnosed in 2008 by specialist and seen ever since by GP.
After trial and error with different painkillers (some I couldn't tolerate, others even got me in hospital) we settled on Amitriptyline, Codydramol and Eccodolac.
Refered to CBT at first and then a couple of local groups with other people suffering different problems/disabilities, apart from struggling to attend (which suprisingly I was criticized for).
I was then refered to the local Community Mental Health Team - which upset me a great deal. After challenging them as to why, got refered back to GP who sent me to a therapist who helps me deal with why I can't do things I used to and the depression I suffer This is only 6 sessions then repeated on my demand.

GP decided to try get me some help advice and support as I am always upset, scared and utterly at the end of feeling so dreadful. As he believes I have elements of Fibro and ME/CFS, being in so much pain and being so fatigued mixed with symptoms present in both but some far worse and equally bad. ME group knocked me back as I have Fibromyalgia.

GP has now suggested alternative therapy, im still taking the meds but have no idea what to do now...is it just a waiting game? As I can't work money is very tight and I can't afford swimming in the spa pool id like to attend (clean..warm facilities with proper sauna/jacuzzi the council pool is awful), I cant afford massage, aromatherapy, healing, reki...

Please does anyone have any advice? Im in Lancashire and feel im being left to fend for myself.
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Re: After GP...next step.

Postby 2steps » Fri Feb 24, 2012 8:00 pm

Hi,

Ask your GP about funding alternative therapies, if they don't know tell them to find out.

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Re: After GP...next step.

Postby FluppyPuffy » Fri Feb 24, 2012 8:20 pm

:wave: :wave: Tina, there may be things you can access via referrals from your GP.

Some people have found that physio can help, hydrotherapy has helped others. You may also be able to have acupuncture. Some health trusts run schemes in conjunction with gyms/spa type places. You could also see if there is something like a pain management course or a pain clinic if you haven't already been referred/already been to them.

Availability does vary from area to area, you may need to do a bit of looking into what could be available in your area, but there are things that could help you :bear-dancing: :bear-dancing: :bear-dancing:
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Re: After GP...next step.

Postby Ldyalb » Fri Feb 24, 2012 9:46 pm

I've had Hydrotherapy on the NHS in the past. I'd advise you to see if there is a pool in your area. Mine also allowed former patients to swim there one night a week. It was £5 a session, so pricier than the local pool (private club but you could swim as a non member for £4.50) but warmer and guaranteed not to be full of health bods swimming at lightning speed :shock:

It's worth seeing what your local NHS trust may fund, if you don't ask you don't get.

Wrt money have you looked into claiming ESA (replaces the old Incapacity Benefit) and DLA? You may be eligible for one, or both of them so it's worth looking into them both. If you go to the DWP, Working and Benefits section on here there's some links to info about both. DLA basically exists to fund the extra costs associated with disability, both in terms of care and/or mobility. People who get it often use it to fund private or non NHS funded treatment. If I'd had it when I lived in London I would definitely have used it to fund the access to the Hydrotherapy pool once my NHS sessions had finished.
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Re: After GP...next step.

Postby denys » Fri Feb 24, 2012 11:35 pm

Tina hope you get some answers from your Doc, I agree with Flup you have to push for referrals :fingerscrossed:
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Re: After GP...next step.

Postby littlereddevil » Sat Feb 25, 2012 8:52 am

Ldyalb I have Incapacity Benefit and lower rate DLA which I was granted 2 years ago. I dont understand the processes at all...except I go for a medical for Incap every two years. Basically the forms were filled in based on a really bad day - which is often :(

What is ESA and do you have to change to it?
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Re: After GP...next step.

Postby Ldyalb » Sat Feb 25, 2012 10:51 am

ESA stands for Employment and Support Allowance, it replaced Incapacity Benefit in 2008 for all new claimants. People on IB are still being transferred over - they will write to you when this happens, as you have it until next year :fingerscrossed: it won't happen until then.

ESA is split into two types, with two groups and 3 payment rates.

- Income Based is for people like me who haven't paid enough NI stamps to get benefits. If your income is low enough you will get it. They will take into account the income of your partner if you live with one, but not your parents (I live with Mum and Dad).

- Contributions Based is for people who have paid enough NI. You can claim that if you live with your partner but the Welfare Reform Bill instends to cap it at 12 months for those in the WRAG (I'll explain in a mo) whose partner earns more than £7,500 a year. Because that's such an extravagant sum of money...

So the groups and the rates:

- When you first go onto ESA they pay you an assessment rate, £53.45 a week for under 25s and £67.50 for over 25s for the first 13 weeks. As I was at Uni when Incapacity Benefit was scrapped I've never claimed it. I don't know if those transferring from IB are initially given the assessment rate or not - hopefully someone who has been transferred can advise further on that one.

- Once you have your medical at 13 weeks in 3 things can happen:

1) You fail the medical. You are told to claim Job Seekers instead, or you can appeal the decision and you will be paid the assessment rate until it is heard.

2) You are placed in the Work Related Activity Group (WRAG). This means you're deemed to have limited capacity for work, but that with the right support you may be able to find something which you can do. Your money increases to £94 a week. If you're placed in this group you can appeal if you think you should be in the Support Group.

3) You are placed in the Support Group. You are not expected to take steps towards returning to work although you are free to do so if you wish. I believe your money will be around £100 a week so slightly more than the WRAG.

http://www.direct.gov.uk/en/MoneyTaxAnd ... /DG_171894

Hopefully there will be some info on the direct.gov site for people being transferred to ESA from IB.
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

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Re: After GP...next step.

Postby FluppyPuffy » Sat Feb 25, 2012 4:25 pm

For those who used to be on IB and are going thru the migration process to ESA, they should still be paid what they were last getting. I appealed my decision as I had been placed in WRAG despite being on a full medical retirement. While I was waiting to hear about my fate, I continued to receive monies at the same IB rate.
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Re: After GP...next step.

Postby littlereddevil » Sat Mar 03, 2012 10:14 am

Thank you very much for explaining it to me.

Ive not been ablr to get online this week so apologies for late reply :-D
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Re: After GP...next step.

Postby animalhouse » Sun Mar 04, 2012 10:02 am

just out of interest,

i failed medical only got 12 points so appealed, went to tribunal a year later then got another 6 points so passed.

hten got a lettter telling me as not enough ni contributions would be on income based so did not get anything due to partners earnings. so waited a year for nothing :lol: :lol: :lol:

anyway, i never received an assessment rate or any money at all when i first applied until medical - does anyone know if i should have got the assessment rate whilst waiting or don;t you get that if you don;t have enough ni contributions.

just wondered if i should have got something but didn;t - so may be able to claim that off teh @?@&& at least. ;-)

in other words didn't get a penny, went to tribunal took a year to then be told not entitleed to anything anyay :roll: :roll: :roll:

ah such is life.... :lol: :lol: thanks guys
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