Dumped by Rhuemy Consultant - where next?....

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Dumped by Rhuemy Consultant - where next?....

Postby Sa_1967 » Sun Apr 01, 2012 11:44 am

Hi all,

I was finally diagnosed with FMS along with Vitamin D deficiency on top of other illnesses in Dec 2011. I then got a follow up appt with the Rheumy Consultant in March 2012 - to be told, sorry there's nothing more I can do for you so I won't be seeing you again?.

It was great to finally get a diagnosis after years fo feeling like a fraud going to thte GP every weekw ith something new or something else that was wrong with me.

I also have high blood pressure, depression, caprol tunnel in both hands, spinal issues (previous disc removal lower lumbar and ongoing issues still with horrendous pain and other prolapsed discs), irritable bowel and bladder .................

But with the FMS - I still dont' think I've even come to terms with it, let alone got any answers of how to cope or carry on living with it. I am trying to go back to work as have been off since end of Nov 2011, to which she told me her patients have a 20% chance of returning to their working life.

I feel like I'm now grieving for my old life and don't know where to turn next, or what to do - I just feel like I've been picked up and then dumped in the wilderness.

Can anyone help to tell me where to go next as this is all still very new to me. My GP is OK, but the only one in the practise that will even listten to me - others have even told me to stick with the same GP next visit in other words I'm tooo complicated for them to see as they don't get FMS and they don't want to - I'm too complicated. I realise quite open eyed that GP's are exactly that "General practioners" and not specialists 0 but if the so called specialist that they send you to then dumps you - where the heck do you go next?.

Apologies - but really don't know what to do and where to go next. My pain control isn't under control adn the GP is perplexed as can't think of anything else to give me?. I have spinal injections booked for July that I'm hoping will assist with the pain in my spine, but other than that the morphine, co-codamol, amitrytaline etc don't touch the pain.

Many thanks in advance - I know some of you on here have suffered with this condtion for years so I'm ever hoepful that you can share some of yr wisdom with me.

Gentl huggles and extra sppoons sen to tall.

Sarah :-) xxx
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Re: Dumped by Rhuemy Consultant - where next?....

Postby FluppyPuffy » Sun Apr 01, 2012 1:15 pm

Thank you for the huggles Sarah, they go very nicely with the cuggles I have with my doglet :hugs: :hugs: :hugs:

As your rheumy has effectively discharged you back into the care of your GP, then that is where you need to go next :-? :-? :-?

The one that you have seen at your surgery who has been the most helpful and understanding will probably be the best one to see and keep seeing when you need to go back.To find out more about treatments, meds and things that could be helpful to you, you may well need a different approach to appts than you have previously used. Instead of going in and letting your GP take the lead, you could try taking the lead yourself, by explaining you have been looking at credible sites and you have seen that a med/treatment/approach that has helped some FMers, and you're wondering if it might be something suitable for you. If you're concerned about speaking with this approach, you can write things down, print stuff up from places and give that to your GP and see what they say from there. Going in armed with lots of info and notes is my preferred way as it means I'm less likely to words wrapped around each other and sound like I'm communicating with :alien: :alien: :alien: :alien: :alien: :alien: :alien: It's a bot nerve wracking at first, but each time you do it, it gets a little easier. The NHS Choices pages are always a good place to start. I'll add the linky in a moment as my netty is being a bit daft at the moment :oops: :oops: :oops:

What you're feeling, thinking and experiencing at the moment is something a lot of us have gone thru, so you're not alone :hugs: :hugs: It takes a while to get to grips with things, find the right mix and balance of things that makes a difference to you, and learn to live with FM.

Rather than thinking about a number of things at the same time, concentrating on one at a time may be more helpful. Of the things you're pondering on, if you can pick the important one that could possibly help you with the others, and focus on that initially, then you may find the others are easier to deal with when you come to them. In your situation, I would look at the meds/treatments side first, as to me, if I can get some relief in that area, then I would find it easier to start considering the others.

There's no need to apologise for what you're asking about, you've done the right thing in asking for advice. As to whether it is wisdom tho, maybe :crazy: :crazy: :crazy: :crazy: :crazy: is a better description :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: Dumped by Rhuemy Consultant - where next?....

Postby FluppyPuffy » Sun Apr 01, 2012 1:20 pm

http://www.nhs.uk/conditions/fibromyalg ... ction.aspx NHS Choices FM linky
http://www.ukfibromyalgia.com/ Linky to the main UKFM site as well, lots of info on there too :bear-dancing: :bear-dancing: :bear-dancing:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

If your dog doesn't like someone, then you probably shouldn't either
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Re: Dumped by Rhuemy Consultant - where next?....

Postby 2steps » Sun Apr 01, 2012 3:51 pm

I have managed to get PCT funding for a visit to Dr Garrood at Guys, you will have to demand this service.
It's a ninety minute appointment, multi disciplinary, it's the only way GP's can prescribe some off label and unconventional stuff.

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