had physio app not what i expected

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had physio app not what i expected

Postby masonsbarms » Sat May 26, 2012 9:45 am

hi just an update, had my appointment yesterday,and she was lovely and kind.

we had a chat about how fm affects me and what i do work wise excetera.

i thought she would tell me i needed to do some exercises but no.

apparanty i am pushing myself way to much i havent to do any exercise as i am doing to much for my body to copr with,

i have to do a diary of my day to day life and rate my pain and tierness from 1 to 10

she said she needs to rien me in and get me to slow down.

she gave me a script for a walking stick and the number for a blue badge.
she is going on maternaty leave but she said the lady i see next will be able to help me more as she also is a cfs specialist and this has some problems as fm.

i was quite upset when i came out as although in my head i new this to be told i should be doing even less than i used to
brought back feelings of loss guilt and shame and weakness.
i have given up so much already and i know i should count myself lucky as i am better than some, i feel like iv did when first told,

anyway sorry its such a long post thanks for letting me get things of my chest
and i will try and think posative
take care xx
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Re: had physio app not what i expected

Postby fibro-lu » Sat May 26, 2012 12:47 pm

I know ow you feel about coping with limitations etc and it sucks

still I think it is great that she was helpful and willing to help organising stuff etc
far too often this is not the case
have said this, the physios I came across so far were always understanding and helpful

which reminds me that I saw a nice lady this week and she is refereing me to lots of things like
pain specialist, group exercise etc
I am actually looking forward to it
(but am on high dose quetinapine which makes me feel like a 3 year old gazing at a Christmas tree :chicken-dance: :happy-easter2: )
all the best :cow-wave: Lu
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Re: had physio app not what i expected

Postby FluppyPuffy » Sat May 26, 2012 12:50 pm

Not what I thought it was going to say when I saw the title as well :yikes: :yikes: :yikes: As far as I can remember, there aren't any other physio topics that say someone is doing too much :shock: :shock: :shock:

Try not to let those feelings of guilt and uselessness and weakness take root if you can, you've managed to teach them to behave from when you were dx'd, so with what you learnt from then, hopefully it will be a little easier to get these latest ones to behave :fingerscrossed: :fingerscrossed:

You know what your abilities and limits are, as well as what your job needs from you. Rather than focussing on the entirety of what the physio has said, breaking it down into smaller bits and looking at where you can make some tweaks might help, rather than the massive, sweeping changes she is implying you need. We're all affected in our own ways, regardless of severity, and over time FM changes and evolves, so to keep up with this we also need to change how we live our lives with FM.

If you can find little things to change, hopefully it will mean that you won't have to give up too much of what you have left :grouphug: :grouphug: :grouphug: :grouphug: :grouphug:
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Re: had physio app not what i expected

Postby masonsbarms » Sat May 26, 2012 1:05 pm

hi thanks fibro-lu and fluppy,

i do know that i have been pushing and pushing myself,

i will keep giving myself a good talking to.

i thank you again for your replys they do help.

and i hope you gain plenty from your meetings fibro-lu

take care xx
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FMS

Postby sjc » Sat May 26, 2012 3:57 pm

hi, there. Glad you find someone that is useful. It's very unusual that is very helpful from the healthcare professional. Take care.
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Re: had physio app not what i expected

Postby masonsbarms » Sat May 26, 2012 5:14 pm

thanks sjc she was very good
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