Neurologist thinks fybro is all in my head :(

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Neurologist thinks fybro is all in my head :(

Postby angelwings45 » Sat Aug 18, 2012 8:52 pm

Hi everyone
Just feeling a bit low today after seeing a neurologist yesterday because of dizziness and shaking of left arm, as soon as I said I suffered from fybro he started talking about depression and asked about my childhood, my children and my divorce and other aspects of my life!I was having a good day after been in bed for 2 weeks with back pain. I managed to do the stretches etc while I was there and typically no involuntary shaking while I was there but got home and had one hell of a flare up after doing the exercises! I just felt so misunderstood by the doctor and got the feeling he thinks the pain I feel is all in my head and caused by depression even though I was trying to explain I,m quite a positive person but as you may be all aware its the pain of fybro that causes depression and low mood!!
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Re: Neurologist thinks fybro is all in my head :(

Postby denys » Sat Aug 18, 2012 11:14 pm

Talk to your doctor and explain how the neurologist made you feel, he wouldn't be the first to imply its in your head. we all know its not so dont take it to heart. Wish they would all learn the facts :yikes: :yikes: :yikes: :yikes:
Denys

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Re: Neurologist thinks fybro is all in my head :(

Postby isitme » Sun Aug 19, 2012 11:21 am

its strange how we go to drs and they make us feel worse rather than better and we have to find our own answers all the time.

no wonder we avoid them like the plague but then the dwp seem to think we need all sorts of stuff for them.
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Re: Neurologist thinks fybro is all in my head :(

Postby shazq » Sun Aug 19, 2012 6:35 pm

Stupid neuro :twisted: :hit1: :hit1: :hit1: :nono: :nono: its not all in your head :hugs:
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Re: Neurologist thinks fybro is all in my head :(

Postby angelwings45 » Mon Aug 20, 2012 8:27 pm

Thank you for your support :-) I just felt belittled by him, wish these ppl would get our symptoms even for 1 day, they would soon change there tune!!
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Re: Neurologist thinks fybro is all in my head :(

Postby zappa20 » Tue Aug 28, 2012 9:33 am

It;s strange that some doctors and consultants can be so dismissive sometimes of Fibro nerve burning pain. And yet it's no different really to diabetic nerve burning pain. I've had both. The only difference is diabetic nerve pain has been medically proven through pathology as nerve sheath damage from excessive blood sugars , causing the nerves to misfire etc. But the fact remains the pain felt is the same, and the medication prescribed is the same. So why some consultants react this way beats me.

There's a link to a stress trigger factor be it physical or emotional and lack of restorative sleep in Fibro , so that's probably why he misgudedly went down that route.

I'm one of the few people diagnosed with Fibro who has been free of all Fibro symptoms for 3 years. Things only improved over time as I improved my resorative sleep pattern, and my way of dealing with the stress,frustration and pain of the Fibro, so in my case there probably was a link. And I think fortunately in my case I couldn't take all the usual 'suspects' they prescribe for Fibro pain , due to long term diabetic damage .

Fibro pain and symptoms are real , for everyone who has it. Of that I will never be in any doubt. I do wish the medical profession would recognise it as such and start fixing it. So many people's lives could be improved. Instead they dish out numerous drugs some of which the side effects can cause people who are already stressed, frustrated and and worn out,more problems than the Fibro itself.

Don't let the consultant's manner get you down, and hope things improve for you.
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Re: Neurologist thinks fybro is all in my head :(

Postby Tifa2 » Thu Aug 30, 2012 11:33 am

Hi

I went to see the specialist in July after she examined me and gave me all the paperwork on fibro and joint hypermobility and she discussed these two thing with me and in the report she said that fibro was in my head due to depression after having 12 out of 18 trigger or tender points I had never heard of this Fibro before and was glad I had found out that this was real now I am back to square one. I hope you get things sorted as I have been like this for years and they were just putting it down to joint pain they even gave me an op on one of my knees and filed the back of my knee cap as you will guess this had no effect on the pain I have also had carpel tunnel surgery on both hands which has made no difference. Doctor some times I wonder if they can help or just keep making things worse.

Keep fighting

Caroline x
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