Does everyone here see a specialist etc

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Does everyone here see a specialist etc

Postby linedancer99 » Wed Aug 29, 2012 1:00 pm

Hi

I am wondering if everyone here is seeing a consultant, rheumatologist etc and are you under a pain clinic?

I was diagnosed about 3/4 years ago by a rheumatologist and haven't seen one since. I was under the chronic pain clinic too, who after sending me to rheumatologist and getting me diagnosed sent me to a free tai chi class. i attended the class for about a year but found we were doing the same thing week after week and working on each other. It is diificult when not trained to work/be worked on so decided not to go anymore.

Thanks xxx
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Re: Does everyone here see a specialist etc

Postby diane1 » Wed Aug 29, 2012 2:35 pm

Hi

I see a rheumatologist who is a fibro sprecialist and on my last appointment with him he said that if things are the same in that i'm having normal fibro flare ups etc and im ok on my meds he will refer me back to the GP. He told me that theres nothing else he can do for me so ive just got to get on with it with the help of my husband.

I've had CBT which didnt help and been on the pain management course which was good in that I met other fibromites but apart from that it was nt much help. They suggested hydrotherapy but its not available to fibro in my area.They then sugested I join a private gym but how do I pay when im not working.

Any way I think most of us have learned that we just have to look after each other and have blow outs :scream-1: :too-upset: :pull-hair: on this site.

Good Luck.
Does an elephant with fibro fog ever forget ?
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Re: Does everyone here see a specialist etc

Postby Iceskatemum » Mon Sep 03, 2012 3:28 pm

Hi there , In my opinion the short answer is no! I am amazed :-o :-o when I hear other talk of repeat discussions with specialists.

I saw a rheumy ( the main FM man in our area ) who first asked why the GP had sent me :facepalm: and then confirmed my GP diagnoses in a 5 minute appointment . He also suggested taking Lyrica but with the caveate that it might not work and it was up to me. He went on to add there was no cure and alternative therapies might ease the symptoms but you really just had to suck it and see.

There was no mention of attending a pain clinic, no mention of classes I could attend such as Tia chi or pilates or any other support. :nono: :nono:

My GP has been great but there is little she can do in a 5 min appointment. I have been off work since just after Easter and am really worried about all the medication I'm on as while there has been some initial relief of pain symptoms it seems to be coming back, my fatigue never went away and it is causing so much strain in the family. While work have been understanding to date and thier doctor did suggest I would be off for quite a while, in this current climate I am really worried about my job, financially I need to get back but am not sure I can .

Sorry about the diversion :oops: :oops: but I really feel that you are left to your own devises once you are diagnosed , thank goodness for this forum as I have learnt so much but without medical support I still feel very isolated.
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Re: Does everyone here see a specialist etc

Postby retep » Mon Sep 03, 2012 10:59 pm

I was diagnosed with rheumatoid arthritis about ten years ago and saw the rheumatologist on and off over the years, i've been told the RA has burnt itself out (thankfully, though I still get the same pain as I did before) now i've been diagnosed with fybro and been told I have to live with it and they don't need to see me any more, so like a lot of you i've been left to get on with it, just keep taking the tablets seems to be their motto :(
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Re: Does everyone here see a specialist etc

Postby Flash » Tue Sep 04, 2012 12:01 am

Well, I have seen so many posts from people telling us of G.P visits, frequent visits to rhuematologists, nuerologists, O.Ts, and other specialists. I have seen mention of pain clinics, Xrays and scans and various forms of medication and other therapies. I thought, "Am I doing something wrong? Am I the only one who feels as if I have been left to get on with it?" :banghead:

Now, I see that isn't so. So many of us are having to turn to sites like this one for support and understanding as well as knowledge of what is happening to us. I often wonder if our different scales of treatment is actually down to a post code lottery. How many of you out there live in the South west? :?:
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Re: Does everyone here see a specialist etc

Postby Jaycee » Tue Sep 04, 2012 2:24 am

Hi Flash, I saw a rheumatologist initially but when I was diagnosed with fibro rather than something more interesting he just left it that I could seem him again if I wanted to.

My meds are on repeat prescription, haven't had any tests etc for about 18 months, or seen my GP for almost a year. I get the impression my GP feels useless because he can't cure me, when I did see him last it was mid a massive flare and I badly wanted something stronger to help with the pain, but all he offered was sympathy. I figure I might as well save both of us the time and effort, so haven't been since.

Like you no offer of any alternative therapies or help with pain managment, I pay to see a physio and do Pilates which I find very relaxing as well as good physically I think it probably does me as much good as anything the GP could offer.

Fortunately I do not suffer as severely as many on here but I definitely feel left to get on with it. This forum is definitely my main source of info.

J
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Re: Does everyone here see a specialist etc

Postby Flash » Tue Sep 04, 2012 10:02 am

Hi jaycee, It makes you wonder sometimes. It's good your Dr is supportive, moraly if nothing else. I'm afraid mine is sceptical. FMUK is sending my local surgery info on F.M so I hope they read it.

I have shiatsu which I pay for when I can, that helps for a while. In 15 years I have had 2 scans, one because I had a car accident. The other was 5 or 6 years ago for neck problems. An Xray 10 years ago found O.A in the spine and neck. I found out about F.M 10 years ago after about 8 years suffering, it took 4 years to get it diagnosed by a rhuematologist. I don't go to the surgery much, I don't see much point, It's the same over and over. :roll:

When I did see the rhumi' he was very helpful, explained everything, wrote a decent letter to the G.P then, that was it. Live with it.
No ongoing help.

I hope you continue to benefit from the therapies, it's good to hear something possitive. Take care. X
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Does everyone here see a specialist etc

Postby kathmoore1 » Tue Sep 04, 2012 12:28 pm

Hi. My consultant rheumatologist has been great. He got me to the top of the list for hydrotherapy and has also recommended me for a residential place at bath pain clinic. He's a really nice guy. I am lucky!
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