GPs diagnosing fibro

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GPs diagnosing fibro

Postby pinky1 » Sun Sep 16, 2012 12:29 am

Hi, I've got lots of questions wizzing round in my head. So I was diagnosed on Thursday and I do have a very good GP. Thing is I know someone who's had fibro for a number of years and she said that it is commonly misdiagnosed and that a GP shouldn't really diagnose it.
My GP hasn't offered to refer me to any specialist. I had to self refer to physio (gps don't refer you to physio up here now)
My GP wants me to ask physio about hydrotherapy. But she didn't seem know what to do tbh.
She asked me if I'd read up on fibro and if I thought I had it. I think I do, but I'm not sure. All the blood tests that were done came back normal. And I can't find any other reason for the constant pain all over my body.
I just feel a bit confused tbh. Could the reason I wasn't referred to a rheumatologist be due to cost?
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Re: GPs diagnosing fibro

Postby Flash » Sun Sep 16, 2012 9:53 am

I was diagnosed by a rhuematologist 8 years ago, it took 4 years to get that. Yes it is mis=diagnosed a lot as are other conditions that are diagnosed as F/M. Since coming on this site, I have been led to other areas of research and I have found that I have all the charactoristics for hypermobility, (never heard of it before)

Thats not to say I don't have F/M as I do have all the symptoms and have had for longer than I originally thought. What are your symptoms, if you don't mind saying... There are so many here who can help you. :grouphug:

I'm afraid the medical profession are not magicians. Hopefully, by talking to people here, you might pick up some hints and arm yourself with info to take back to the surgery and get a proper diagnosis.

All we want is to know what we have so we know what we are dealing with and how to help ourselves. All the best. :flowers:
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GPs diagnosing fibro

Postby pinky1 » Sun Sep 16, 2012 10:03 am

Thanks Flash!
Here's a list of my symptoms

Constant pain all over my body, especially the heels of my feet, back, neck, hands. Feels like I'm bruised all over.

Numbness and tingling at times in my arms, fingers and toes. This is on and off, not constant.

A few months ago I went through a week of involuntary upper body jerks just as I was falling asleep, also lots of numbness and tingling and I felt like parts of my body was swelling. This has mostly stopped

Tiredness

Sometimes I have the runs for days, other times I'm constipated and so on.

I don't feel like I have fibro fog? I often forget things and do things like put the coffee in the fridge and the milk in the cupboard haha.

In the last few weeks the pain does seem to have worsened a bit, I'm not at the point where I can't move etc.

As I say, I have a fantastic GP, which I think is the reason why I've been diagnosed quite quickly. I did ask her if she thought it could be anything else and she doesn't think so.
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Re: GPs diagnosing fibro

Postby denys » Sun Sep 16, 2012 5:39 pm

some GP's are confident with diagnosing FM and maybe your doc is one of them, all some Rhuematologists do is agree with the docs diagnosis and then refer you back to the GP's care anyway so I wouldnt worry too much if you want a referral then ask for one :-D :-D :-D
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GPs diagnosing fibro

Postby pinky1 » Sun Sep 16, 2012 6:44 pm

Thanks Denys, yep she was pretty confident and she's fairly young as well do obviously knows more than older drs.
Think I'm just wishing it was something else, something simple to treat :/
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Re: GPs diagnosing fibro

Postby FluppyPuffy » Sun Sep 16, 2012 8:17 pm

Did your GP do any blood tests or other things she felt were needed before you were given the dx pinky?? If so, and things came back pretty much normal, then that could have all helped with her telling you that it's FM rather than something else.

I think most of us have wondered about, and even queried our dx, as well as hoped that it turns out to be something else that is easier to treat and will get better.

If you have confidence in your GP, then you should be OK, but if you're at all unsure or worried then talk to your GP and/or ask about a referral :wave: :wave:
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GPs diagnosing fibro

Postby pinky1 » Sun Sep 16, 2012 8:43 pm

Yeah fluppy, I've had loads of blood tests including ones for rhuemtoid arthritis and all bloods came back normal. From reading on here and elsewhere I think it is fibro. I'm guessing this is probably a normal part of the process in accepting it. Need to work on how to manage things from now on.
Thanks for the replies
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Re: GPs diagnosing fibro

Postby denys » Sun Sep 16, 2012 11:36 pm

You'll get there in time, it is a difficult thing to come to terms with as it alters the life you were leading to the one you seem to have now. But if you can see it as a change in direction it becomes easier :hugs: :hugs:
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Re: GPs diagnosing fibro

Postby DJW » Wed Oct 10, 2012 11:31 pm

I have recently been diagnosed, by my GP, who is empathetic and has prescribed low dose amytriptiline, as I am reluctant to take any prescribed medication and can only tolerate low dose in any case. This medication seemed to help at first but I am still not certain in my own mind that all my symptoms are related to FM and that this medication is absolutely the correct one for me and my particular symptoms. He has suggested altering my medication and when I asked for a referral to a neurologist he said there was really no need as I absolutely have FM and basically it would be a waste of a referral as he was following current protocol. I know FM is difficult to treat and I'm frustrated by all the uncertainty but surely if it is widely accepted as a neurological disorder, then a neurologist specialising in FM could be beneficial to my recovery. Has anybody in the West Midlands (Shropshire) been referred to a FM specialist/neurologist?
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