Who treats your Fibromyalgia?

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Who treats your Fibromyalgia?

Postby Faith12 » Sun Nov 11, 2012 7:12 pm

I am fed up with Rheumatologists and GPs knowing nothing about Fibromyalgia and being rude and dismissive when I am in loads of pain.Recently GP said that some Rheumatologists will say you have Fibromyalgia and some will say you do not. He was using this as an excuse to not give me my medication. Please help me by telling me who helps you and do you attend a pain clinic? Have any of you complained about bad treatment and did it do any good?
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Re: Who treats your Fibromyalgia?

Postby masonsbarms » Sun Nov 11, 2012 7:25 pm

hi faith, im afraid its like a lottery with who knows and beleives and who dosent,

the gp i had for years and he retired just before the rhumy said it was fm, i saw 3 other gps in my practice, and all of them where rubbish as they either didnt know or understand,

i then saw a younger one by chance and he is wonderful knows his stuff listens to me and dose all he can to help,

he even offered me memory and co-ordination tests to reasure me i wasnt loseing my mind it was down to fm.

i do feel the older gps seen less helpful and you may have to keep looking until you find one you are happy with.

you need someone who will listen and help you and that is what you are entitled to so keep looking.

hopeing you find the right help.

take care xx
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Re: Who treats your Fibromyalgia?

Postby shazq » Sun Nov 11, 2012 7:50 pm

Hi Faith :welcome: to the forum.

Some gp`s will dx fibro themselves but most will send you to see a Rheumy to get the dx. Once you have the Dx the Rheumy will discharge you back into the care of your gp who will give you the meds you need.

Who dx your fibro? Your gp should be prescribing you some medication to help control the pain.
Have you another gp in your surgery who you could see as having an understanding gp makes a big difference with fibro.

Here is a link on some of the meds used to treat fibro, print it off and go through it with your gp, its an NHS site so he cant say he does not believe in it.

http://www.nhs.uk/Conditions/Fibromyalg ... tment.aspx

:goodluck1: hope you get the help you need :hugs:
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Re: Who treats your Fibromyalgia?

Postby denys » Sun Nov 11, 2012 8:44 pm

Hi Faith and :welcome: to the forum :wave: my doc is good but recently it has become a 'team' as he is retiring soon and that is more difficult as I have to explain things over and over instead of just dealing with one person :shock: :shock: :shock:
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Re: Who treats your Fibromyalgia?

Postby FluppyPuffy » Sun Nov 11, 2012 8:51 pm

:welcome: to the forum Faith :wave: :wave:

Sorry to hear you're having problems with the various people involved with your care and treatment :( :( Sadly it's something we hear about quite often :-x :-x :-x

It can be hit and miss as to the type of person we get when we see a GP or consultant as it's not always possible to tell what they are like. It's only when your appt starts that things start to come out.

As MB has said, quite often it is the younger/more recently qualified Drs that are more knowledgeable about FM. There are exceptions tho, like there are with most things :facepalm: :facepalm:

I've been fortunate with the people I have seen/been treated by, the only one who was awful was the rheumy who gave me my dx. He was rather rude and abrupt,told me I needed to lose weight, shoved a leaflet at me while saying that would answer all my questions and showed me to the door as quick as he could. Thankfully my GP has since been responsible for my care and (touch wood :fingerscrossed: :fingerscrossed: ) things have been fine. I've been dx'd with a further 2 conditions in the past couple of years and am currently having some sessions thru my regional CFS Service, and the people I have seen have been lovely, friendly, helpful and understanding.

Is there another GP at your surgery that you could see?? If so give them a go. Do as Shaz has suggested with the info from the linky and see what they have to say. There are decent people out there who are prepared to give us the treatment we need and want, it's just a pain in the :girl_moon: :girl_moon: :girl_moon: trying to find them :waiting: :waiting: :waiting:
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Re: Who treats your Fibromyalgia?

Postby lolabolla » Sun Nov 11, 2012 9:15 pm

Hi Faith,

Same here too as 3 of the 'older' G P's at our practice have retired this year and I have am having the same problems as Denys.

I seem to be seeing a different G P as well as the numerous locums that are running the practice every time I have an appointment.

Now I'm not backwards at coming forward but I am finding it increasingly difficult to form any kind of relationship with any of these new doctors and find myself telling them 'my story' over and over again.

The locums prefer not to get involved with my pain relief or therapies and that includes changing or increasing meds.

So much so that when I visited the G P's in September complaining of severe pain and 'clicking' in my neck the locum said 'well it's probably fibro related, ask at pain clinic next time you go'.

They much prefer to brush me aside and tell me to wait untill my next appointment at the pain clinic 'because they don't want to interfere with my treatment'!!!!

As pain clinic appointments are few and far between and I only get to see them for accupuncture, the nurses are reluctant to make any decisions either and just keep fobbing me off with 'well lets wait and see how this lot of accupuncture helps and then we may refer you back to the specialist next time we see you'

Catch 22!!!!!!!!!!

I am on list for the next pain management course which starts in the new year but I had to more or less beg for the referal.

Hope you get the help and care that you need

Lola xx
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Re: Who treats your Fibromyalgia?

Postby Pinkprincess205 » Mon Nov 12, 2012 1:16 pm

My rheumatologist diagnosed fibro and discharged me back to my doc with suggestions of meds and refered me to physio. My doc is quite good, understands fibro and gives me meds, but older docs are the worse, they just dont seem to believe it. Which always makesme feel like im faking it and not really ill.
Vic x
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