Sometimes wonder if I'm in a different NHS.

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Sometimes wonder if I'm in a different NHS.

Postby Iceskatemum » Sun Nov 11, 2012 7:15 pm

I have been on this forum a few month now and have found some great help and advice but sometimes when looking at others responses or threads I feel I am in a different NHS.

There is talk of walk in centres ...when I google these I find nothing of similar standing in my region. :nono:
We have after hours centres but they are only for emergencies after 6pm until 8am when GP surgeries are closed and are by appointment only after first ringing and speaking to the Doctor on call . We don't even have NHS direct!!

When people talk of the help they have re pain clinics and pain management courses /fibro nurses/fibro courses /physio, there is nothing similar . :nono:
I went to my local pain clinic and was offered one session of injections for my degenerative spinal problems which I believe led to the FM then told it was easier to discharge me as he couldn't offer any repeat appointments for 24 months but if discharged the GP could re refer and I would be seen much sooner. :crazy: There has been no further offer of referral for my FM.

Went to NHS Rheumy for DX and was just told I had FM and then immediatly discharge , there was no additional tests to see if GP had missed anything , no talk about treatment plans , medication regimes , Chronic fatigue management , review appointments - nothing. It was only when I went privatley that I was advised to take lyrica. :roll:

I appreciate that sometimes the NHS is a lottery and each region has its primary care needs but sometimes it take a UK wide forum such as this to highlight the lack of facilities in certain areas.

Has anybody else noticed this when comparing what they have access too against what others talk about?

Saying that, I am going to a pain management course tomorrow for a few hours but it is run by a local Arthritis charity and I'm not sure how it might help FM rather than Arthritis. Will let you know .

ISM
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Re: Sometimes wonder if I'm in a different NHS.

Postby shazq » Sun Nov 11, 2012 7:39 pm

Hi ISM

I do think it depends on what area you live in.

It is common for a Rheumy to dx you then discharge you back into the care of your gp, my rheumy did put me forward for a "Living with pain course" but that was it, my gp has given me my meds. Some rheumy`s will send their patients for physio & other things, i think it down to where you live.

I dont have a walk in center either but do have NHS direct, you have to speak to someone first then they will get a doctor to call you back and if the feel you need to be seen then you have to go too them. :roll:

Sadly at the end of the day it all come down to money. :nono:
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Re: Sometimes wonder if I'm in a different NHS.

Postby denys » Sun Nov 11, 2012 8:47 pm

definitely does, the difference in areas seems to be vast, definitely postcode lottery :yikes: :yikes: :yikes: :yikes:
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Re: Sometimes wonder if I'm in a different NHS.

Postby FluppyPuffy » Sun Nov 11, 2012 9:20 pm

Very definitely a post code lottery as to what you can access eds, treatments and services wise :waiting: :waiting: When reading about some of the nightmares on here that others have gone thru, it makes me think how fortunate I have been. Over the years pre and apres FM dx, I've had access to several lots of physio, not had any problems when asking for different meds, been able to take a more proactive approach to my care, and been treated by some really decent people. The only duff one I've seen was the rheumy who dx'd me, and he's got a generally cruddy reputation with everyone I know of who has/still sees him :face-slap: :face-slap: :face-slap:
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Re: Sometimes wonder if I'm in a different NHS.

Postby Flash » Mon Nov 12, 2012 1:58 am

Walk in centres, pain managment clinics... No, sorry, all foriegn to me. If the G.P refers you to a specialist, it could be anything between 20 and 50 miles away. I have never been offered any physio, there is no such thing as a fibro nurse, it really was a case of you have this, now live with it. There isn't even an arthritis support for 25 miles.
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Re: Sometimes wonder if I'm in a different NHS.

Postby Iceskatemum » Mon Nov 12, 2012 3:43 pm

Thanks as always for your replies ...stops me feeling sorry for myself when I realise I'm not the only one left to thier own devices, although would add that being left alone or with a limited support mechanism is not good for anybody!

Just to update you on the first part of the Pain management Course being run by Arthritis Cares. I was the only Fm sufferer on the course but a chronic headache and a bad back had crept in as well so didn't feel a total outsider.
It was long and too early for me 10.00- 13.00 and ironically my pain levels increased as the course went on , even thought I was the sole participant that got up to stretch etc. :lol:

We covered impact of pain/exercise/ stress/relaxation amongst the discussions and I found most of it quite helpful. Probably had gained a lot from the forum but nice to have it all rounded together in one block. Relaxation quite difficult as it was held in a local community centre and kids from the nearby primary school where killing each other :face-slap: Sorry playing in the gym. We were also on the plastic bucket seats so that didn't help. Did do a nice :cup1: and :cake: at half time.

That said it was a good start and the ladies who ran the course although not medics were very knowledgable and supportive, will probably go back for part 2 next week , althought might take a cushion or 2 and a few more painkillers!
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Re: Sometimes wonder if I'm in a different NHS.

Postby Flash » Mon Nov 12, 2012 11:39 pm

ISM, glad to know you are finding the course helpful. Hope it continues to be. It's good to have that face to face time with others too and it's something to focus on possitively. Gets you out for a while aswell eh!
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Re: Sometimes wonder if I'm in a different NHS.

Postby FluppyPuffy » Tue Nov 13, 2012 12:23 am

I think it might be useful to go for part 2 next week ISM. Even if it covers things you're already familiar with, hearing if from a different angle/perspective can make a difference.

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Re: Sometimes wonder if I'm in a different NHS.

Postby Iceskatemum » Tue Nov 13, 2012 1:17 am

Now that I have recovered a little from this morning have decided I will def go next week. It did take it out of me but there is no point moaning that I don't get support and then NOT take up any thats offered!
One of the ladies has a really soothing voice when she read the relaxation script am hoping she will do it again next week and I can record on my phone or something...that is if my daughter shows me how :-D

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