Just a label?!?!

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Just a label?!?!

Postby bessieboops » Mon Nov 12, 2012 2:22 pm

I went to see my GP last week about all my pills (co-codamol, Tramadol, Naproxyen, Amytripline etc etc) I said to her that I think I have Fibro and gave her a few of the symptoms. She just said Fibromyalgia is just a 'label' and that I am taking the pills you would take if diagnosed. This really peeed me off to say the least as I have been in constant pain for the last 2year plus and just want an answer or a diagnosis as I'm sure people think I'm a hypochondriac.

Do you think I should change doctors?? I really thought she was more sympathetic than this and not just dismiss things :( :-?

Any suggestions would be grateful :-)
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Re: Just a label?!?!

Postby FluppyPuffy » Mon Nov 12, 2012 3:01 pm

It would be worth seeing a different GP, to see what they think/suggest. Maybe keep a diary of your symptoms, how they affect you etc, then take it with you along with info about FM, the NHS Choices pages are a good one to use http://www.nhs.uk/Conditions/Fibromyalg ... ction.aspx This linky will take you to the site. Explain why you feel it could be FM and see what they have to say. Hopefully you'll find someone helpful who will start things off to help find out the reason for your symptoms.

Unfortunately, some GPs and consultants are still dismissive of conditions such as FM :( :( :( As a very, very general guide, the younger, more recently qualified docs tend to have more knowledge and a much better approach to dxing and treating FM.

When you find a more receptive GP, they may either go thru the process and give you a dx themselves, after running any scans, tests etc they may feel necessary, or they may refer you to an appropriate specialist.

Hope you can get some answers soon, living in LimboLand like you are at the moment is so frustrating as you don't know what to look into to be sure you're getting the most suitable care and treatment :fingerscrossed: :fingerscrossed:
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Re: Just a label?!?!

Postby Iceskatemum » Mon Nov 12, 2012 4:18 pm

It may just be a label to her but to you it is a dx and something that you can at last acknowledge to others who might question your aches & pains. I honestly think folk treat you differently if what you have has a name, it doesn't matter to employers/friends & family if it can be treated they only want to be able to say you have such & such an illness.
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Re: Just a label?!?!

Postby shazq » Mon Nov 12, 2012 4:58 pm

Hi bessie

If you have another gp in your surgery i would go and see them, you could say to your gp that you need a diagnoses because you have forms to fill in and if they are not going to give you the dx then get them to refer you to a Rheumy. :goodluck1:
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Re: Just a label?!?!

Postby bessieboops » Mon Nov 12, 2012 5:45 pm

Thanks for your replies, much appreciated :-D :-D

My docs surgery only have 2 doctors and both of them are middle aged and quite hard to talk to :roll: so think that I should change to another surgery where there are younger ones. Just want an answer to all this pain/fatigue etc etc then I can deal with what it is I have and fight it or learn to live with it instead of being in limbo land, nobody can touch me as fear of being hurt :( :( .

I think I will keep a diary, (never thought of that before doh lol).

Again, thank you for your replies :-) :-)
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Re: Just a label?!?!

Postby FluppyPuffy » Mon Nov 12, 2012 7:59 pm

The diary can help show how things are for you bessie, which can help in finding out the cause for your problems.

If you're thinking about changing surgeries, getting in touch with those in your area and asking about how they would treat a potential dx of FM might help you find a more understanding GP :goodluck2: :goodluck2: :goodluck2:
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Re: Just a label?!?!

Postby *Lisa* » Wed Nov 14, 2012 2:43 pm

I find the registrars better.

The old GP's tend to be stuck in there times and there ways!! yet the registras are fresh and want to learn.

I am having a problem with my daughter, the GP is refusing to *label her* YET was happy to sort out CBT/talk about pacing etc and impliment some sort of action plan but not to diagnose!

So she would be undergoing fm/cfs care yet not a diagnoses!? so i said NO! unless she has a diagnoses i dont want anything put in place and to be refered to a rheumi BUT she wont do this either! so i am awaiting a call back as she lost control and needed to speak with her colleagues.
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