rheumatologist

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rheumatologist

Postby doodles1f » Sat Mar 09, 2013 1:32 am

I went to.see a rheumatologist today for the first time, following my.gp completing a fibromyalgia screening tool and trelling me this was what she thinks I have. I agree with my gp that this is what it is and the neurologist I saw earlier in the year agreed. The rheumatologist however said that she would not diagnose me as I have no.small joint involvement. I didn't think that small joint involvement was a necessary diagnostic feature of fibro, it certainly didn't.feature highly on the.diagnostic tool my go used, which the consultant did not repeat.Can anyone tell me if I am correct in.thinking this? It felt a if she had made up.her.mind that u right.have fibro bertie she met.me and so.she interpreted anything I said to.fit what she wanted to hear. I feel so frustrated and alone.
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Re: rheumatologist

Postby Flash » Sat Mar 09, 2013 1:44 am

Well, it's a new one to me... Iv'e had F/M for 18 years and was diagnosed by a rheumatologist. Probably using the same diagnostic 'tool' you speak of...

I know what you mean about not being listened to, or having your words twisted to make them fit... Frustrating I know. But atleast you have the help and support of others on here. I hope it helps in some way.

Take care and gentle hugs. :hugs: :hugs:
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Re: rheumatologist

Postby Iceskatemum » Sat Mar 09, 2013 4:20 am

Never heard of small joints being involved in FM maybe its something else new they have found which we have to think about.

I would wait and see what she says in her letter to your GP . You don't have to have a dx from a Rheumy to get treatment from you GP . If they think it is FM they can go ahead and treat you just as if you have never been to a Rheumy, in some area Rheumys aren't taking referrals from FM patients as they believe DX & treatment can be done at GP level

Good luck hope you get something positive from GP , if not wait a while & see if you can see another consultant.
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Re: rheumatologist

Postby LouLou » Wed Mar 13, 2013 2:13 pm

Hi doodles

News to me too, but as ISM says you don't have to have a diagnosis from a rheumy for your GP to treat you for FM. My GP like yours agreed I had FM he just wanted a second opinion and to make sure he hadn't missed anything out that it could be. Once I saw my rheumy (who cinfirmed FM) I was referred back to the care of my GP who has been working with me ever since regarding treatment and painkillers etc and I have a review with him every so often.

Iceskatemum wrote:I would wait and see what she says in her letter to your GP . You don't have to have a dx from a Rheumy to get treatment from you GP . If they think it is FM they can go ahead and treat you just as if you have never been to a Rheumy, in some area Rheumys aren't taking referrals from FM patients as they believe DX & treatment can be done at GP level


I'd do what ISM suggests and explain to your GP how you felt your words were being almost manipulated to fit something. If your Gp is sure you have FM and is happy to stick with this diagnosis they will go through your options form there.

Good Luck! Try not to get dis heartened, we have all had to face the same fight on here.

Take Care
xx
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Re: rheumatologist

Postby *Lisa* » Wed Mar 13, 2013 5:41 pm

never ever came across this in a diagnoses of fibro. The specialists go on the tender points/alimination of varies blood tests and any other tests and history of symptoms and past history of life.

I think they were relating to stiffness around the joints but fibro stiffness can be anywhere not just around the joints.

I have a fibro friend whos stiffness is in the back and not around the joints where as my stiffness is also around the joints making it hard for me to be mobile :crazy: :crazy:

second opinion i think you may need to ask for
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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