wishful thinking

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wishful thinking

Postby teepee » Wed Mar 27, 2013 5:49 pm

hi i have my first visit coming up at my pain clinic, and i am somehow hopeing they can give me some good advice :-) , i have a senkey feeling i am expecting tooo much on my first visit. I know one of my gp`s told me it might go away on it`s own, funny enough i have not been to see him since :nono: , i could have cried there and then when he said that, it made me feel like i was losing my mind or i was imagining the pain that was everywhere in my body. i`m going to be honest i`m scared of what the pain clinic might tell me :oops: , because just lately it has got a lot worse, and i have really struggled at work, and i just have to rest when i get home, and going to bed at 6.30pm is my normal time now, as i cant sit downstairs comfy enough, and i am sooo tired :sleep:
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Re: wishful thinking

Postby sweetie pie » Wed Mar 27, 2013 8:08 pm

I am also on the waiting list for the pain clinic,it takes a long time just to be seen by them,dont know what expect aswell when i go there,its a shame that you are still working with all that daily pain also going to bed so early,i cant work as cant even do daily tasks as it takes your strength away from you its totally weird this illness as so many things to it,how long have you had it,i was diagnosed in nov 2011 so still know to it all,you sound young so that is a shame having to cope with work and pain,im 51, we get told to be positive but very hard, but we will wait and see how we get on at the pain clinic as they do say it helps to manage the pain,hope you are feeling abit beter today, :hugs:you will get lots of support on this forum :grouphug: :grouphug: :grouphug: also your doctor is talking rubbish as you are not imagining it,Fibromyalgia is Real,so dont listen to people like that as they havent a clue as they dont suffer from it.xox
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Re: wishful thinking

Postby LouLou » Thu Mar 28, 2013 12:19 pm

Hi teepee

I have my fingers crossed that the pain clinic can help you and give you some good advice. I've never been to onse so I can't say whether it will help or not.

I also still work (30 hrs a week) so I know how it feels to get home and go straight to bed. I too often struggle to get comfy downstairs if the pain is really bad so if OH is watching the footie I tend to go to bed early anyway with my electric blanket and chick flicks lol.

A lot of us have felt at one time or another that we are losing our minds with the pain so you are not alone. This weather at the moment has really been playing havoc with my pain levels and it has gone up a notch or 2 in the last few weeks with the cold.

Stay warm and rest as much as you can when you can.

Take Care

xx
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Re: wishful thinking

Postby teepee » Tue Apr 02, 2013 6:39 pm

went to the pain clinic today :-? , I don`t quite know what he was getting at! I know excersisce can help oh hell miss-spell!! BUT as I am still working I would think that was enough any way. :( I work as a care assistant and it is not as if I sit down every shift, he said I need to learn how to stretch!!!! wow. I am not a doctor or a specialist but REALLY!! I do try and do this everyday even when it hurts and boy does it hurt. :crazy: He told me to try yoga or any thing else that is not weight bearing, me thinks sometimes laying in bed is not weight bearing. I am only 45 it is not as if I am 95 although if you could see me struggling out of bed in the morning you might change your mind. I will give it a go in for a penny in for a pound so they say :roll: , thankyou for your advice and help you make me smile :-D take care im off to bed with my achy muscles and my lovely hot water bottle! :sleep:
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Re: wishful thinking

Postby LouLou » Tue Apr 02, 2013 9:14 pm

Hi teepee

As I also work I often come home having no energy whatsoever and exercise is the very last thing on my mind lol. I just take it day by day, some days I can cone home walk the dog and do my stretches,other days I can only do one and some days it's none. Just go easy, listen to your body,do the stretched when you can and rest when you can't.

Hope that helps.
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Re: thankyou loulou

Postby teepee » Wed Apr 03, 2013 5:37 pm

Thankyou loulou I did my stretching this morning and by the time I got to work bits of me that were not hurting were by the time I got there :crazy: , so I have learnt a lesson there that maybe if I am sore before work, work very often will free me a bit, and if I am really sore I just take things at work slower, so I try not to over do it. It really is soo nice to have someone who knows where I am coming from when we talk about being stiff or having so much pain that you just want to hide under the duvet till a day comes when you find it easier to cope!! :-D .I tell my coleaques oops sorry mind fog!, that I will never loose my sense of humour, sometimes it is said thru greeted teeth when they watch me struggling to get out of the chair after tea break! So tonight I am not going to do my stretching I am going to bed with two hot water bottles instead and hope I am still awake to watch one born every minuet . Take care :chicken-dance: :chicken-dance:
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Re: wishful thinking

Postby LouLou » Thu Apr 04, 2013 9:40 am

No problem teepee I'm glad I could be of some help.

I too have all sorts of looks and comments when I'm limping or hobbling around the ofice and even some sarky comments about the fact I don't offer to do the tea round as much as other people do! There are 6 people in my part of the office there is no way I can carry a tray of 6 hot cups of tea/coffee without dropping a few lol.

I did try and do my stretches before work too, but I found that by the time it got to lunchtime at work I just wanted to crawl under the duvet at home and sleep forever lol. I found that after I do any sort of stretches/exercise that as long as I rest afterwards I'm not too sore/stiff, so now I tend to just do them when I get home from work and after the doglet has walked me. I tell you, having a dog really does help motivate you to go out even just for a short walk lol.

Good luck with your routine teepee, try not to beat yourself up about the days you can't do any exercise or do very much just listen to your body (you will get used to it lol mine practically screams at me when I've pushed it too far)

Hope you had a lovely cosy evening in bed with your hot water bottles. I was doing the exact same thing last night lol.
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