Going to Doctors to ask to be sent back to Rheumatolgy

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Going to Doctors to ask to be sent back to Rheumatolgy

Postby kazza65 » Sat Apr 27, 2013 11:01 am

HI Everybody... :wave:

I've got a bit of a problem with pins and needles in my legs. :(

When i saw the rheumatology doctor for the first and last time he told me i had fibro and upped my amitriptyline to 30mg at night and did a blood test, and an x-ray of my back because i've 2 bulging disc so he said to which i didn't know about, and he said that if i needed to see him again just to ring up and make another appointment. So i did the yesterday because my legs were bad and i was wobbling, only to be told that he had dicharged me feel like :pull-hair: out, because i don't know where to go apart from my G.P

Can they do that without telling you :?: :?: :?: :?:

RIGHT :!: I'm going to see a G.P on Thursday who is a new G.P because the one i normally see has cut is hours, rather than wait to see mine in 3 weeks, i'm taking the plunge and seeing a new gp as i can't wait that long with these pin n needles and wobbly legs :!: :!: I'm going to ask him to refer me to see the Rheumatology again the question is do i go to the old hospital and see the doctor who discharged me with out saying anything or do i go to another hospital and a new doctor and start from scratch.

Also after reading up yesterday on M.S i feel that i may have M.S rather than Fibro my head is a buzz because i'm in agony and wobbly and stumbling all over the place, it not and ear infection because i've just had and hearing test which as found i'm 95% deaf in my right ear. And also my hubby has noticed this morning the i've developed a shake in my hands, i've not noticed this but what i've noticed that i'm very very forgetful, like yesterday i went to the cupboard for something and when i got there i totally forgot what i went for i stood there thinking for 10mins before i retraced my steps to try and jog my memory, this is happening more and more, it upsetting me more and more because before i could remember everything and anything.


I'm not sleeping again at night because things i going round in my head over and over again thinking i've got a relaspe coming on with the Stress..

Also i've got the worry of the form coming from dwp about changing from IB to the new one what ever its called, would it be an :idea: for me to write a letter of my problems and take it and ask my G.Pto sign it so i can send it with my form. Has anybody done this :?: :?:

Sorry for the moan but i just need to get it out of my system.

Karen xx
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Re: Going to Doctors to ask to be sent back to Rheumatolgy

Postby FluppyPuffy » Sat Apr 27, 2013 12:05 pm

Sorry to hear how things are for you at the moment Karen :grouphug: :grouphug: :grouphug: :grouphug: Please try not to look at other possible conditions, at least until you've this new GP on Thursday as it will only make you feel even worse than you are now, which will make a flare last even longer.

FM shares a range of symptoms with several other conditions, incl MS, Lupus, RA, so whilst it is possible that there could be something else at work, it is also possible that what you are experiencing is FM related, or it could be a mix of things, only speaking to your GP, undergoing any relevant tests, scans etc and seeing a specialist/consultant if necessary will be able to tell you what is happening.

Pins and needles are associated with FM, and affect quite a number of us in varying degrees. They can also be associated with other problems as well, incl some of the things that share symptoms with FM.

With you being so worried about this, it is quite possible that it is adding to the problems you are having at the moment with the wobbling legs, pins and needles and forgetfulness. Add into the transferring to ESA from IB and, well we know what is likely to happen when FM gets even a sniff of something it might be able to feed off and exploit :facepalm: :facepalm: :facepalm: :facepalm:

Until you've spoken to this new GP, I don't think you can definitely decide what to do about which possible rheumy you should go and see. It could be that this GP thinks seeing a specialist in another field might be helpful. Between now and your appt, make sure you have got all your symptoms, how they affect you, the types of situations that can trigger things off, how it all affects mood~wise etc written down and take it with you to your appt. As well as helping with remembering what it is that you want to discuss, a detailed sheet of info can help with painting that overall picture of how things are for you, which can help with finding out what is happening to you.

WRT the form for transferring from IB to ESA, we always suggest getting help with completing it to give you the best possible chance with it. Places that can help incl Citizens Advice, Welfare Rights. Quite often there are also smaller, local organisations who can help as well. Googlying can throw up who is in your area, or your local council info point type place may well have contact details for such peoples.

Try to keep your self as calm and relaxed as you can so it will hopefully help minimise the impact of things on you. I know it is far, far easier said than done, but it can help :grouphug: :grouphug: :grouphug: :grouphug: :grouphug:

Hope you can get some answers and easing in things soon :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed:
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Re: Going to Doctors to ask to be sent back to Rheumatolgy

Postby shazq » Sat Apr 27, 2013 4:31 pm

Hi Karen

Try not to worry to much about the Rheumy until you have seen this new doc on Thurs, the gp might be able to treat you himself.
Its good that you are going to get checked out as theses are new symptoms to you but like Fluppy said Pins & needles can be a symptom of fibro.

I also get wobbly legs and often bump into doors and walls. I have had a few falls.
Fibro fog makes us very forgetful :facepalm: i often forget what i walked into a room for and forget peoples names, i put things in the wrong places. Hope this helps you to feel less scared about things and you will get some answers when you see the gp. :hugs:

Fibro can mimic symptoms of ms/cfs as they all overlap each other but MS will show up in a scan where as fibro and cfs does not.
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Re: Going to Doctors to ask to be sent back to Rheumatolgy

Postby kazza65 » Thu May 02, 2013 1:40 pm

I've been back to my doctor this morning and he WILL NOT refer me back to the rheumoloy because the doctor i saw didn't write everything in the bloody letter to my doctor what he told myself and my daughter at my appointment. Also he say rheumology don't deal with my problems... WERE TO GO NOW :?: :?: :?: :?: :?: :?: :?: :?:

:yikes: :yikes:

Think i'm going to have to try and get to see my old doctor who will listern to me and probally sent me back to rheumoloy otherwise i'm gunna have to bang my head againest a brick wall and shout and swear at this new doctor till he listerns to me and understands me .
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