Anything to do with the NHS or Private Healthcare.

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Postby Di davo » Fri May 10, 2013 3:14 pm

hi, I am confused :0( reading all your post it seems like you have all been diagnosed by a ruemologist, my doctor is 110% I have fibro but has referred me to a neurologist, has anyone been diagnosed my one? He has pushed my appointment forward from the end of July to the start of June as I have had a really bad spell, my worry is that the neurologist will just refer me to a ruemologist and I'll have to wait months again, everything is getting so hard, I work in a shop and today I couldn't even count the change out for the customers :0( I just need someone to confirm what all this is about, nothing is touching my pains anymore :0(
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Re: Neurologist???

Postby PhoebeCat » Fri May 10, 2013 3:40 pm

My own doctor diagnosed me and I have never been sent to see a rheumatologist, neurologist or anyone else for that matter. This concerns me because I have nothing to show when I come to go to my ATOS appeal!
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Re: Neurologist???

Postby SchroedingersCat » Fri May 10, 2013 3:49 pm

Hi Phoebecat

My GP diagnosed probable FM, then referred me to a physio, a neuro AND a rheumy, as well as taking lots of blood, testing for the trigger points etc. I saw the neuro once, tested out superfine on her scale, discharged with an agreement with GP's diagnosis. Saw the physio once, same result as the neuro. The rheumy I saw 3 times, various tests, X-rays etc over the course of about 3 months, final result - agreed with GP. Back to GP for a chat, agreed I would manage it myself as I had been doing previously, but all 3 specialists said I should just ask the GP to refer again if things got worse and I needed any more help. That was all end 2011/start 21012. Not seen any of them since.

I think it depends on your GP as to how thoroughly they investigate your condition - mine was a star, as were the specialists. I don't really need support, but it's nice to know it is there if I do need it in future.

So I shouldn't worry, you may well get an FM diagnosis from the neuro as I did and be pushed through the system faster - my rhuemy gave me an option on pain clinic at the first appoint (but I turned it down).
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Re: Neurologist???

Postby FluppyPuffy » Fri May 10, 2013 3:53 pm

Generally it tends to be a Rheumy who dx's FM. However there are an increasing number of GPs that are dxing their patients with the condition. Sometimes it can be a different type of specialist that dx's the condition, such as a neurologist, it all comes down to which specialist in each NHS area deals with such conditions.
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Re: Neurologist???

Postby whoami » Fri May 10, 2013 4:13 pm

My GP thought it might be fibro but didn't say right away. I saw a pain specialist who has fibro himself, he diagnosed me.

I also have seen both a rheumatologist and a neurologist who also agreed. I saw these Dr's because the fibro was triggered by an accident at work and the whole injury was being investigated.

A lot of people are diagnosed and treated by their GP. I only see my GP about every six months in regards to the fibro. He is the only one who treats me now. It has been 23 years.

I have other issues that send me to other Drs.

I have been off work for 23 years and have not spoken to anyone regarding my disability pensions for at least 10 years. They just keep sending me my monthly cheques and pay for my medications. I feel for those of you going through hell dealing with disability income.

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Re: Neurologist???

Postby Di davo » Fri May 10, 2013 5:39 pm

Thanks xx you have all stopped me worring, xxx
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