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The UKFibromyalgia Forums • View topic - Confused right now...



Confused right now...

Anything to do with the NHS or Private Healthcare.

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Confused right now...

Postby E-Bunny » Tue Jun 25, 2013 8:36 am

Hi guys,

I saw my GP last Friday re my stomach issues ( posted in another thread ). I have suffered 2 episodes now of which I have been in so much pain even my clothes touching my skin caused me agony.. Once at the beginning of feb, and the next was the beginning of this month !

After the 1st episode by the time i got an appointment to see her the pain had subsided back to my general aches and pains and she just gave me a list of *shock* excersises to do thinking it was just achey muscles.. ( rapid start jumps, squats etc.. ) theory being if i can shock my muscles into being in even more pain, fatiged they would desenstise to the pain i was feeling :shock: but unsuprisingly this did not work and just left me in tears as the pain just got worse and lasted alot longer !

The second time my pain flared up to the point of clothes hurting just touching my skin, was at the beginning of this month.. It was a sunday evening, I was trying my best to get some sleep, but was in agony every time i tried to lie down as it felt like knives stabbing me in my arms and back, no matter what position i tried to lie down in !!

Eventually I gave up and went to A&E, I had not been diagnosed at this point, and was desperate to get some relief from the pain !! After 12 hours in A&E they diagnosed me with shingles !? I had no rash, and had no rash in february either, and I thought it was impossible to get shingles more than once ( I also had chickenpox when I was a kid too ). So decided to return to my GP the same day i was discharged from hospital so they could see just how much pain i was in.

As mentioned in a previous post, it was a locum and not my normal GP who diganosed me with Fibro, and prescibed me the pregabalin to help with the pain.

I had to see my GP recently as again in a previous post was very ill with a severely distended stomach ( again made sure I had full symptoms when i saw her ). I spoke to her re the fibro diganosis, and she completly dismissed it saying it was more than likely my Epilepsy medications or an actual siezure causing the pain ! My sz do not manifest as pain, they are absence siezures, and if it was my medication ( which i have been taking since July last year ) surely I would be suffering this severe flare up pain every day, not just every few months !?..

She has left me feeling confused about all of this, as i am typing this my legs feel like they have ran a marathon the day before and my arms and neck are really stiff and stretching them only gives temporary relief.

I cannot ask for a second opinion as she is the only GP at the surgery, and again she has reccomended the "shock" excersizes to desenstise my muscles from the pain :shock:

I am struggling so much to do simple things, walking up my stairs at home is like climbing a mountain, and even hoovering etc is becoming a task n half.. ( my house is becoming what looks liek a bomb site :-? )..

I have no idea what to do next... And i am left feeling that this is all in my head and have no one to turn too, who will take me seriously about what i am going through.

I am seing my E neuro next month.. I have read that some have been diagnosed with fibro by a neurologist ? Would it be worth talking to her about the pain i am suffering ? As my GP keeps blaming everything on my E, and the E meds ( even an ingrowing toe nail would more than likely be put down to my E or the meds i am taking for it )..

I really need to know what is really causing this pain, being diagnosed with fibro one minute, then being told it is not Fibro another..

Sorry for the long post !

A very confused... and upset Tina x
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Re: Confused right now...

Postby FluppyPuffy » Tue Jun 25, 2013 9:52 am

It's no wonder you're wondering what to do next, one minute you've been given a dx, the next you're told you don't have it :facepalm: :facepalm: :facepalm:

i think you really know what you need to do about this as you said it in your other thread..............New GP. See which surgeries are within your area, get in touch with them and see if they have any patients registered with FM, CFS/ME or other similar conditions, and if there are, ask if there is a particular GP who specialises/has an interest in such conditions and find out what you need to do to register.

WRT your appt with your E neuro~bod, mentioning these other problems you have been dealing with wouldn't be a bad thing to do. Even if your neuro doesn't have the expertise to give you a dx, they may be able to refer you onto someone who can help. Explain about the farce you are having with your GP as well so they have a decent overall picture of what is happening to you.

There are decent GPs out there, and they are increasing in numbers. Unfortunately, the tales of the bad ones tend to overshadow what is said about them :facepalm: :facepalm: :facepalm:


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Re: Confused right now...

Postby denys » Tue Jun 25, 2013 11:41 pm

I agree another GP has got to be the answer cos you arent getting anywhere with your current one, as Flup has said its no wonder you are feeling so confused and fed up, it wont hurt to speak to your neurologist about the FM diagnosis :hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs:
Denys

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