Chronic fatigue syndrome (CFS)

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Chronic fatigue syndrome (CFS)

Postby fletch » Fri Jun 28, 2013 4:44 pm

As anyone been to a Chronic fatigue syndrome (CFS) clinic

I've just had a appointment to go to the city hospital Nottingham to see the team there.

Any idea on what they do etc.
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Re: Chronic fatigue syndrome (CFS)

Postby denys » Fri Jun 28, 2013 5:44 pm

They teach about exercise plans and medication etc. can help with referrals and will send a report back to your doc
Denys

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Re: Chronic fatigue syndrome (CFS)

Postby fletch » Sat Jun 29, 2013 9:51 am

Thanks Denys
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Re: Chronic fatigue syndrome (CFS)

Postby FluppyPuffy » Sat Jun 29, 2013 10:35 am

I've actually done the sessions at City Hospital and found them really helpful.

Is your appt for your initial assessment with them???

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Re: Chronic fatigue syndrome (CFS)

Postby Tracie » Sat Jun 29, 2013 12:29 pm

good luck with appointment.
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Re: Chronic fatigue syndrome (CFS)

Postby fletch » Sat Jun 29, 2013 1:27 pm

FluppyPuffy wrote:I've actually done the sessions at City Hospital and found them really helpful.

Is your appt for your initial assessment with them???

When all else fails, hug your Teddy xx


Yes its the initial assessment on a week Monday FluppyPuffy

Thanks Tracie

I just want to get rid of the endless pain
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Re: Chronic fatigue syndrome (CFS)

Postby FluppyPuffy » Sat Jun 29, 2013 1:33 pm

Have you been referred because your GP thinks you have CFS or is it to do with your FM??
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Re: Chronic fatigue syndrome (CFS)

Postby fletch » Sat Jun 29, 2013 2:18 pm

The docs sending me there for my FM
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Re: Chronic fatigue syndrome (CFS)

Postby FluppyPuffy » Sat Jun 29, 2013 2:37 pm

When I went for my initial assessment, one of the first things to be addressed was why I was there. I was told that if I thought my problems were more related to FM, then I would need to be referred to the Back Care Team rather than CFS Services as there are differences in the approaches used for both conditions. This incl advice about meds, pain relief etc as, altho the CFS sessions did cover the area, they didn't actually deal with providing/dispensing meds. The focus is on fatigue, what it is, how it can arise, and ways to live with it, and hopefully improve what you are able/capable of doing.

I had my final session at the start of the year, and there wasn't any mentions of the focus of the sessions being changed then, so it might be worth a call to them to clarify exactly what it is you are going to be assessed for when you go, just to be sure you're going to the right place.

Have you got to go to the Mobility Centre for your appt???
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Re: Chronic fatigue syndrome (CFS)

Postby fletch » Sat Jun 29, 2013 3:55 pm

Thanks for the info and yes I've got to go to the mobility centre

Reading about the courses it all seems basic and just about managing through the day

I already know how to pace myself and do a little at a time I've been like this for 5-6 years

I can see me not liking this at all I don't like people treating me like a idiot and I hate being patronised
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Re: Chronic fatigue syndrome (CFS)

Postby FluppyPuffy » Sat Jun 29, 2013 4:13 pm

Go and see what happens. The person I saw was lovely, not at all patronising. And a lot of what I did has helped with both conditions.

When all else fails, hug your Teddy xx
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Re: Chronic fatigue syndrome (CFS)

Postby fletch » Sat Jun 29, 2013 4:19 pm

I'm going to give them a try but taking my teddy with me just in case

Thanks for the info etc. FluppyPuffy its well appreciated
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Re: Chronic fatigue syndrome (CFS)

Postby fletch » Mon Jul 08, 2013 6:52 pm

Been to the CFS clinic today and had a good chat to a understanding woman so now just waiting to see if they can do anything or send me to the pain clinic

Had bloods done also this morning this time its for diabetes :-? so waiting for the results from that as well

Its never ending is it.
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