Do Rheumatologists help? Do you see one

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Do Rheumatologists help? Do you see one

Postby Faith12 » Sun Aug 04, 2013 4:56 pm

I have seen a rheumatologist and have been told that he does not treat FM. I saw another one who diagnosed it ,he was recommended by a FM association, and he said there is no treatment he gives. Who treats your FM? Who helps you . In my experience GPs do not understand the condition and do not know what to prescribe. Is this your experience?
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Re: Do Rheumatologists help? Do you see one

Postby PhoebeCat » Sun Aug 04, 2013 5:44 pm

Hi. I have never been seen by a Rheumatologist as I was diagnosed by my GP and when I asked him if I needed to see one and what one does, he said "not a lot", so he never sent me. All my medication and pain relief has been prescribed by my GP. Some GPs seem to have a little knowledge of Fibro, others dont seem to have any but thats only from my own experience.
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Re: Do Rheumatologists help? Do you see one

Postby FluppyPuffy » Sun Aug 04, 2013 6:00 pm

I've only seen the rheumy once, that was for dxing. He told me is was FM, gave me a leaflet on the condition, then sent me on my merry way. My care has been thru my GP, who I have to say has always been marvellous with me. Whether it's because he knows how active I am on here, as well as knowing that I look into things that are relevant to me, or a mix of both, but he always seems to be well aware of meds, treatments, research etc. Other people I have seen have come about from referrals made by my GP, and they too have been really good with treating me. I do know my experiences are much, much better than what others have gone thru, and I consider myself very fortunate to have been seen by decent people compared to the nightmares others have gone thru in trying to get the answers and help they need.

From what I have gathered over the years, wrt rheumies (and also other specialists/consultants) there seems to be very little consistency in how they treat patients. With some, you're in, poked and prodded, then out with a new label to add to the collection. With others, they will send patients for additional tests and things and see them again to tell them their dx.

Being discharged back into the care of GPs tends to be standard practice, but again it's not always done in the same way. There have been mentions of people being given an open~ended appt to go back and see the rheumy whenever they need/want to, whilst others are just passed back over without even a :wave: :wave: :wave: :wave:

There are many many differences with the info that is sent to GPs from rheumies as well :facepalm: :facepalm: :facepalm: :facepalm: Some will just sent a letter confirming their dx, whilst others will include suggestions for meds, treatments, therapies etc.

As for actually treating FM tho, the onus for that seems to fall on GPs, I can't remember anyone saying that a rheumy has given them meds and had the patient going back for checks, reviews etc. Of course, there is a distinct possibility that there have been such mentions and the reason I can't recall to them is thanks to the fog that seems to be permanently residing in my head these days :oops: :oops: :oops: :oops: :oops: :oops: :oops: :oops: :oops: :oops:
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Re: Do Rheumatologists help? Do you see one

Postby Tracie » Tue Aug 06, 2013 8:54 am

Seen specialist once due another appointment then prob be back to gp with my care,my friend seen specialist and they worked out a plan and said if she had any problems to refer back but gp will issue her meds.
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Re: Do Rheumatologists help? Do you see one

Postby shazq » Wed Aug 07, 2013 4:46 pm

In most cases you will normally only see a Rheumy for the Dix of Fibro, once you have that you are put back into the care of your gp. Some rheumies will prescribe a medication for the gp to get started on but that's about it really.

My one did put me on a waiting list for a living with pain course.

If you don't have an understanding gp do you have another one who you can see? Or can you change to another surgery?
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Re: Do Rheumatologists help? Do you see one

Postby Tel1 » Fri Sep 06, 2013 10:44 pm

My GP thought I had Fibro, then he came to conclusion that after all the tests that he sent me for that it was Fibro.
A little while after he told me that it was 100% Fibro.. I asked to see Rheumatologist, he asked me why I wanted to
see one, he said if it for your low spine and leg problems, then it is no good me sending you there as there is nothing
else they can do for you.. but I said no, not that, I want to see a Rheumatologist about this Fibro... and he referred me.
I think my GP assumed I didn't believe him and that I wanted a 2nd opinion... but I wanted to go to see what else a
Rheumatologist could do for me.. however the Rheumatologist talked to me about everything and then asked me to
take all my clothes off in another room so that he could do the pressure points on me...Afterwards he asked me to
come back into the other room and still asked me questions about how I am from day to day...He then said to me
* you definitely have Fibro * and gave me a leaflet about it all, and recommended that I go for relaxation classes
and perhaps CBT treatment... I said to him *what* has that got to do with making Fibro better? He just said to me
I will write to your GP and if he thinks I should see you again, then we will go from there. So in *real* terms, the
Rheumatologist doesn't do much for you really, he just confirms, or not confirms what you have,.. the rest is left to
the individual to keep going to the GP with all the continuous symptoms :yikes: :yikes:
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