Rheumatology appointment today

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Rheumatology appointment today

Postby fletch » Tue Oct 29, 2013 6:34 pm

Had my Rheumatology appointment today and I'm very disappointed he asked some questions but then all he went on about was losing weight and getting fit.

So is fibromyalgia a fat persons problem and losing weight will cure it.

What a waste of time are we all fat then with FM I would like to hear from our thin members on here so I can say to my doctor FM is not due to being over weight and here is the proof

Not happy at all no help what so ever from Rheumatology just go away and lose weight
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Re: Rheumatology appointment today

Postby *Lisa* » Tue Oct 29, 2013 7:23 pm

Im a *fat* person and always been since i was 10.

I must say that until recently me being overweight was never an issue. Then the government decided to atack the countrys obesity and since then whoever i see about anything i have i get the *fat stamp* :roll:

All i can say is that i know of many FM sufferers who are not overweight yet still in the same pain.

When i get pulled up on my weight i tell them to stick it!! and bog off, leave me alone! :nono: :nono: as i have many problems effecting me to be able to loose weight. Im sure they think iv not tried or just sit here gorging on [chocolate] i wish!!! Mmmmm chocci :mrgreen: :mrgreen: :mrgreen: [chocolate] [chocolate] [chocolate] [chocolate]

Im back seeing my rhumatologist in a few weeks!!! :shock: last time i see him he told me to take paracetamol and go swimming!!! and to stop searching for answers :evil: :evil: cant wait!!!! so im gonna be prepared for a fight!! cause i aint taking no poop no more :nono: :nono: :nono:

FM cannot be cured by anything!!! loosing weight may help with energy levels :dunno: so in turn you can exercise more which will help :dunno: but it wont take it away!!! :roll:
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Re: Rheumatology appointment today

Postby fletch » Tue Oct 29, 2013 8:36 pm

Thanks Lisa

Its so frustrating when your in pain but they don't want to know because I'm fat; I'm the same been over weight for a long time even before FM

The appointment was at Mansfield Orchard Medical Practice

I'm at the doctors this Thursday I'm telling him I'm not impressed and what a waste of time and money
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Re: Rheumatology appointment today

Postby whoami » Tue Oct 29, 2013 8:59 pm

I have to say I agree with what the Dr said. Even loosing a bit of weight helps with pain and depression. we all know that.

I don't think we should use our disabilities as a reason not to loose weight , rather a reason to loose weight.

I am sorry your appointment did not go well. Maybe the Dr thought with the treatment/meds you are getting now , he has nothing else to offer.

It will be interesting to hear from your GP as to what information he gets from the rheumy.
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Re: Rheumatology appointment today

Postby *Lisa* » Tue Oct 29, 2013 9:38 pm

whoami wrote:
I don't think we should use our disabilities as a reason not to loose weight , rather a reason to loose weight.



Each person differs. For me my disabilities prevent me from loosing weight in many ways and this is just not physical but financial also. For example: In my case:

Not only do i have fibro but oesteoarthritis / sciatica / DDD / prolapse disks / CFS and many more...

This added with fibro restrics my mobility severely causing me to only be able to take small walks. Not every day just some days which is not enough to burn fat as im not walking much distance and at a pace where i'll burn off fat as i am unable to.

The fatigue and pain prevents me (and pain whilst standing as have curved spine) to stand and prepare a cooked meal. So i end up living on *grabb* foods.

I cannot get out to shop , only venturing out once a fortnight so everything has to be frozen / prepared packed meals (not as healthly) plus fruit goes off etc...

Finances... I have a small food budget and here in UK all fresh food / meats / fish etc is sooo expensive. I have no car to shop around nor the walking abilities to go from shop to shop to sift thro prices.

Its cheaper and easier to buy cheap frozen food.

Slimming drinks and meals come to much more then my budget.

Then some days im too fatigued to get out of bed... so not burning off what i eat and list goes on thats just a few hurdles

So it not a case as using my disabilities as an excuse.

Iv seen a dietician and they couldnt help me :roll:
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Re: Rheumatology appointment today

Postby whoami » Tue Oct 29, 2013 9:58 pm

Lisa...I was not centring you out in general.

What I am saying is there has to be options for people with disabilities and if there are to use them.

I understand where you are coming from, I know the price of things back home. I understand how it is to get to shops. The closest grocery store to me is 1/2 hour car ride.... I have no car.

There has to be some organization that can help people with disabilities. We have a home care program where people come in and do your shopping, prepare healthy meals, do household chores. Is there nothing over home like that?

Is there no program that can help budget and teach to be able to prepare healthy meals, I know you have said you can't cook but for those who can?

I am frustrated to think that there is no help.
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Re: Rheumatology appointment today

Postby becbob » Tue Oct 29, 2013 10:28 pm

Hi there. Can't believe they think the answer is to lose weight. I am 5ft 5 and weigh 8st 4lb. I am very slim and I just been diagnosed with FM. I have also had IBS for 15 years. I find that my most painful points are the soles of my feet. I barely weigh anything and I cannot cope with my small frame on my feet. I also know of several others who have FM and they to are thin. FM does not care who it attacks. Young, old, fat, thin.
The fact is we are in a vicious cycle. We hurt so we try not to move around too much. We dont move around and we hurt too much. We can't excercise to lose weight because it hurts too much. We put on weight because we can't excercise because it hurts too much. And round and around we go.
I am struggling with work and every day life but I am determined to move around as much as I can because I find that if I stay still for too long then I stiffen up. I feel like the Tin Man out of The Wizard Of Oz.
Try to do what you can to be healthy and try to do some small exercises. I know it will hurt but we hurt anyway. Don't let it get you down to much and don't become too fixated on it. Everything in moderation.
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Re: Rheumatology appointment today

Postby julesleics » Tue Oct 29, 2013 11:39 pm

Hi Fletch

If it is any consolation I keep getting told I am obese and need to lose weight. This has only happened since we moved. At my old surgery Yes I admit I am overweight but my Asthma nurse helped me with my weight and i have slowly been losing weight. She was very understanding that because of the problems and the medication I took it would not be easy but every pound I lost she made me feel that I had achieved a lot.

Since moving though I have been told to lose weight, exercise more and then I wouldn't feel so bad. They have not even looked at my notes to see that I have been slowly losing weight and have been trying to exercise. I have been told so many times now that I am obese I have started to feel quite depressed about it.

The rheumatology dept I went to aren't interested I was told by the consultant that I have to learn to manage my illness and cope and that is all there is to it. I think the problem is they just don't know what to do. they can diagnose fm and then after that they either refer you to pain clinic or back into GPS care. The consultant who runs our rhuema clinic is only really interested in people with rheumatoid artheritas I am afraid to say. I think some rheumatologist try and sort out pain relief etc but I am beginning to think it is luck of the draw whether you get an understanding consultant or a dismissive one.

I also think as well it is all to easy to trot out you need to lose weight and exercise more. I can understand that yes you do need to try and do some kind of exercise and eat healthily but I don't think it makes any difference to FM just as some GPS say you can't have it if you are below 40.
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Re: Rheumatology appointment today

Postby whoami » Wed Oct 30, 2013 1:57 am

Jules....you hit the nail on the head....

Fibromyalgia can be diagnosed, even with a blood test now. The thing is, Dr's do not know everything yet about fibro. If everything was known there would be a cure. Since there is no cure, Dr's can only treat each symptom individually. Some may single out a symptom and focus on that one thing because that is their specialty.

Becbob...I agree when you say to try to do what you can, try small excercises. You are right, it is going to hurt and we do hurt anyway. If we try to do something to help ourselves then we are in control, not the fibro.

I remember being at a point where I would not move. I had fallen and fractured my neck. I would scream in pain when I tried to move my neck and shoulders. I was also scared if I moved I would hurt myself more. I had convinced myself. When the fracture was healed, I could not damage it any more, I had the pain from the fibro still but I could not hurt myself by trying to move. It took me a long time to push myself. I now tend to push too much the other way. Yes I am in pain but I know that overall I am doing my body as a whole a huge favour. The parts beyond the fibro symptoms are healthy.

We can only do what we can. I would never judge anyone by what they can or can't do. How they handle things. It just saddens me when some people don't help themselves.
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Re: Rheumatology appointment today

Postby zappa20 » Wed Oct 30, 2013 3:54 am

I'm a type 1 diabetic who's been much the same weight since my twenties. And I've never been much overweight, despite having severely restricted mobility and any activity leaving me dizzy due to a combination of heart , autonomic nerve damage + severe vascular disease to extent Im looking at losing both legs in the near future.

There's very good reasons why doctors suggest people who are more than just a bit overweight, try and lose some of it. You're piling up a load of future health problems for yourself to add into the mix you already have. eg heart disease and type 2 diabetes which can cause terrible damage over the years. Carrying extra weight also puts more pressure on your heart and circulatory systems , makes any form of exercise far more difficult and painful. There is also a link between depression and low mood or self esteem in some people due to weight issues which doesn't help Fibro .So it becomes a big vicious circle. Losing weight and controlling your weight is one of the few things you can still control , thereby helping yourself.

While I agree many of the anti depressant medications used to treat fibro slow down your metabolism and so make losing weight a bit more difficult, I don't buy into many of the explanations given by people to explain why it's impossible to lose even just a bit of weight. And doctors probably don't either. My friend is a GP and despairs at the number of people who come to her surgery for help (not necessarily on Fibro) then ignore her advice onthe life changes they need to put in place to improve or control their health conditions. It's not just GP's and specialists who are responsible for our health, we are too.

I sometimes think people expect too much from their Rheumatologist appointments with Fibro. There's very little they can do other than diagnose Fibro then refer you on to other specialist clinics eg pain clinics, physios or Fibro speiclaist nurses etc. It's the same with many other well documented conditions eg diabetes, vascular , cardiac etc.

Rheumatoid arthritis is one of the specialities of a Rheumatologist . they treat this conditon very agressively when first diganosed to try and limit the severity of joint damage which can result. So it's not surprising they may see their RA patients more often than fibro sufferers.
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Re: Rheumatology appointment today

Postby whoami » Wed Oct 30, 2013 4:42 am

Zappa 20........well said!
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Re: Rheumatology appointment today

Postby fletch » Wed Oct 30, 2013 10:38 am

many thanks to all the replies I've calmed down a little now.

I was disappointed because the doctor moved straight away to me being over weight It made me feel he was saying it's all down to being over weight he gave no advise on FM just my weight even when I told him I keep myself active as much as possible he just didn't want to know.

he mentioned a 8 week course at kingsmill hospital on exercise and pacing your self

Anyway upward and forward we go and hope you all feel better today.
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Re: Rheumatology appointment today

Postby *Lisa* » Wed Oct 30, 2013 10:44 am

whoami wrote:
There has to be some organization that can help people with disabilities. We have a home care program where people come in and do your shopping, prepare healthy meals, do household chores. Is there nothing over home like that?

Is there no program that can help budget and teach to be able to prepare healthy meals, I know you have said you can't cook but for those who can?

I am frustrated to think that there is no help.


Hi whoami.

I have searched high and low for help here.

I recently had a social services assessment for just that a few weeks ago stressing my problems being unable to get around shops and to cook meals etc...

They were not interested and said all they do here is get you out of bed, wash, dress you and go!!

They did give me a phone number to private organisations who will cook meals and take you to shops but all this costs at a high price, moneys i just dont have.

I eat things like cereal, sandwhiches, put prepared frozen meals in oven. Snacks like yogurts. I find fruit goes on in days and i shop fortnightly.

When i saw the dietician after trying to loose weight as i do try on and off but financialy its just too expensive then the preparing of the meals etc she listened to my hurdles and couldnt help! all she was there for was to guide me in what is good for me and what wasnt :-? i already knew that! I even asked about meal replacement drinks and they dont perscribe them for my case.

I have found this country to be very contridictive in every way. I do want help, do want to loose weight and also being told to loose weight and it always comes up within appointments BUT how can i do this? iv asked for help and asked for diet drinks etc... asked for someone to do my shopping, asked for someone to come in and cook meals and help with budgeting but NO!... :(

SO here i am :roll: back to square one scratching my head wondering what to do next! :-|
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Re: Rheumatology appointment today

Postby SchroedingersCat » Wed Oct 30, 2013 10:51 am

I'm 5 foot 4, just under 9 stone with a muscular build and previously very fit and active, so no, FM is not a condition of fat people.
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Re: Rheumatology appointment today

Postby *Lisa* » Wed Oct 30, 2013 10:51 am

fletch wrote:many thanks to all the replies I've calmed down a little now.

I was disappointed because the doctor moved straight away to me being over weight It made me feel he was saying it's all down to being over weight he gave no advise on FM just my weight even when I told him I keep myself active as much as possible he just didn't want to know.

he mentioned a 8 week course at kingsmill hospital on exercise and pacing your self

Anyway upward and forward we go and hope you all feel better today.


There very quick to judge you which is why i get defensive and tell them to get lost! when weight subject comes up as iv tried many ways to loose weight. Not only do i find exercise and pre paring and cooking meals a struggle its also keeping the motivation going as i have lots to loose and will take many years.

Anyways i hope this 8 week course will help :-D good luck!!
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