Rheumatology appointment today

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Rheumatology appointment today

Postby fletch » Tue Oct 29, 2013 6:34 pm

Had my Rheumatology appointment today and I'm very disappointed he asked some questions but then all he went on about was losing weight and getting fit.

So is fibromyalgia a fat persons problem and losing weight will cure it.

What a waste of time are we all fat then with FM I would like to hear from our thin members on here so I can say to my doctor FM is not due to being over weight and here is the proof

Not happy at all no help what so ever from Rheumatology just go away and lose weight
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Re: Rheumatology appointment today

Postby fletch » Tue Oct 29, 2013 8:36 pm

Thanks Lisa

Its so frustrating when your in pain but they don't want to know because I'm fat; I'm the same been over weight for a long time even before FM

The appointment was at Mansfield Orchard Medical Practice

I'm at the doctors this Thursday I'm telling him I'm not impressed and what a waste of time and money
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Re: Rheumatology appointment today

Postby whoami » Tue Oct 29, 2013 8:59 pm

I have to say I agree with what the Dr said. Even loosing a bit of weight helps with pain and depression. we all know that.

I don't think we should use our disabilities as a reason not to loose weight , rather a reason to loose weight.

I am sorry your appointment did not go well. Maybe the Dr thought with the treatment/meds you are getting now , he has nothing else to offer.

It will be interesting to hear from your GP as to what information he gets from the rheumy.
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Re: Rheumatology appointment today

Postby whoami » Tue Oct 29, 2013 9:58 pm

Lisa...I was not centring you out in general.

What I am saying is there has to be options for people with disabilities and if there are to use them.

I understand where you are coming from, I know the price of things back home. I understand how it is to get to shops. The closest grocery store to me is 1/2 hour car ride.... I have no car.

There has to be some organization that can help people with disabilities. We have a home care program where people come in and do your shopping, prepare healthy meals, do household chores. Is there nothing over home like that?

Is there no program that can help budget and teach to be able to prepare healthy meals, I know you have said you can't cook but for those who can?

I am frustrated to think that there is no help.
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Re: Rheumatology appointment today

Postby becbob » Tue Oct 29, 2013 10:28 pm

Hi there. Can't believe they think the answer is to lose weight. I am 5ft 5 and weigh 8st 4lb. I am very slim and I just been diagnosed with FM. I have also had IBS for 15 years. I find that my most painful points are the soles of my feet. I barely weigh anything and I cannot cope with my small frame on my feet. I also know of several others who have FM and they to are thin. FM does not care who it attacks. Young, old, fat, thin.
The fact is we are in a vicious cycle. We hurt so we try not to move around too much. We dont move around and we hurt too much. We can't excercise to lose weight because it hurts too much. We put on weight because we can't excercise because it hurts too much. And round and around we go.
I am struggling with work and every day life but I am determined to move around as much as I can because I find that if I stay still for too long then I stiffen up. I feel like the Tin Man out of The Wizard Of Oz.
Try to do what you can to be healthy and try to do some small exercises. I know it will hurt but we hurt anyway. Don't let it get you down to much and don't become too fixated on it. Everything in moderation.
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Re: Rheumatology appointment today

Postby julesleics » Tue Oct 29, 2013 11:39 pm

Hi Fletch

If it is any consolation I keep getting told I am obese and need to lose weight. This has only happened since we moved. At my old surgery Yes I admit I am overweight but my Asthma nurse helped me with my weight and i have slowly been losing weight. She was very understanding that because of the problems and the medication I took it would not be easy but every pound I lost she made me feel that I had achieved a lot.

Since moving though I have been told to lose weight, exercise more and then I wouldn't feel so bad. They have not even looked at my notes to see that I have been slowly losing weight and have been trying to exercise. I have been told so many times now that I am obese I have started to feel quite depressed about it.

The rheumatology dept I went to aren't interested I was told by the consultant that I have to learn to manage my illness and cope and that is all there is to it. I think the problem is they just don't know what to do. they can diagnose fm and then after that they either refer you to pain clinic or back into GPS care. The consultant who runs our rhuema clinic is only really interested in people with rheumatoid artheritas I am afraid to say. I think some rheumatologist try and sort out pain relief etc but I am beginning to think it is luck of the draw whether you get an understanding consultant or a dismissive one.

I also think as well it is all to easy to trot out you need to lose weight and exercise more. I can understand that yes you do need to try and do some kind of exercise and eat healthily but I don't think it makes any difference to FM just as some GPS say you can't have it if you are below 40.
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Re: Rheumatology appointment today

Postby whoami » Wed Oct 30, 2013 1:57 am

Jules....you hit the nail on the head....

Fibromyalgia can be diagnosed, even with a blood test now. The thing is, Dr's do not know everything yet about fibro. If everything was known there would be a cure. Since there is no cure, Dr's can only treat each symptom individually. Some may single out a symptom and focus on that one thing because that is their specialty.

Becbob...I agree when you say to try to do what you can, try small excercises. You are right, it is going to hurt and we do hurt anyway. If we try to do something to help ourselves then we are in control, not the fibro.

I remember being at a point where I would not move. I had fallen and fractured my neck. I would scream in pain when I tried to move my neck and shoulders. I was also scared if I moved I would hurt myself more. I had convinced myself. When the fracture was healed, I could not damage it any more, I had the pain from the fibro still but I could not hurt myself by trying to move. It took me a long time to push myself. I now tend to push too much the other way. Yes I am in pain but I know that overall I am doing my body as a whole a huge favour. The parts beyond the fibro symptoms are healthy.

We can only do what we can. I would never judge anyone by what they can or can't do. How they handle things. It just saddens me when some people don't help themselves.
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Re: Rheumatology appointment today

Postby zappa20 » Wed Oct 30, 2013 3:54 am

I'm a type 1 diabetic who's been much the same weight since my twenties. And I've never been much overweight, despite having severely restricted mobility and any activity leaving me dizzy due to a combination of heart , autonomic nerve damage + severe vascular disease to extent Im looking at losing both legs in the near future.

There's very good reasons why doctors suggest people who are more than just a bit overweight, try and lose some of it. You're piling up a load of future health problems for yourself to add into the mix you already have. eg heart disease and type 2 diabetes which can cause terrible damage over the years. Carrying extra weight also puts more pressure on your heart and circulatory systems , makes any form of exercise far more difficult and painful. There is also a link between depression and low mood or self esteem in some people due to weight issues which doesn't help Fibro .So it becomes a big vicious circle. Losing weight and controlling your weight is one of the few things you can still control , thereby helping yourself.

While I agree many of the anti depressant medications used to treat fibro slow down your metabolism and so make losing weight a bit more difficult, I don't buy into many of the explanations given by people to explain why it's impossible to lose even just a bit of weight. And doctors probably don't either. My friend is a GP and despairs at the number of people who come to her surgery for help (not necessarily on Fibro) then ignore her advice onthe life changes they need to put in place to improve or control their health conditions. It's not just GP's and specialists who are responsible for our health, we are too.

I sometimes think people expect too much from their Rheumatologist appointments with Fibro. There's very little they can do other than diagnose Fibro then refer you on to other specialist clinics eg pain clinics, physios or Fibro speiclaist nurses etc. It's the same with many other well documented conditions eg diabetes, vascular , cardiac etc.

Rheumatoid arthritis is one of the specialities of a Rheumatologist . they treat this conditon very agressively when first diganosed to try and limit the severity of joint damage which can result. So it's not surprising they may see their RA patients more often than fibro sufferers.
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Re: Rheumatology appointment today

Postby whoami » Wed Oct 30, 2013 4:42 am

Zappa 20........well said!
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Re: Rheumatology appointment today

Postby fletch » Wed Oct 30, 2013 10:38 am

many thanks to all the replies I've calmed down a little now.

I was disappointed because the doctor moved straight away to me being over weight It made me feel he was saying it's all down to being over weight he gave no advise on FM just my weight even when I told him I keep myself active as much as possible he just didn't want to know.

he mentioned a 8 week course at kingsmill hospital on exercise and pacing your self

Anyway upward and forward we go and hope you all feel better today.
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Re: Rheumatology appointment today

Postby SchroedingersCat » Wed Oct 30, 2013 10:51 am

I'm 5 foot 4, just under 9 stone with a muscular build and previously very fit and active, so no, FM is not a condition of fat people.
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Re: Rheumatology appointment today

Postby pops » Wed Oct 30, 2013 11:31 am

Its difficult to say what teatment works with fm as its very ' personal' Its an individual thing but for me losing weight and exercising to MY ability has helped me greatly. Its a struggle at times & at times Im unable to exercise. Finding a balance is hard but possible. It takes hard work & time but its so worth it for me:grin:

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Re: Rheumatology appointment today

Postby julesleics » Wed Oct 30, 2013 11:48 am

I agree with you Zappa that being overweight can lead to other problems. The thing that annoyed me was if the GP and nurse bothered to look at my notes then they would have seen that I have been steadily losing weight and that I try to exercise whenever I can. It was just the blunt you are obese and you need to diet and exercise which did me. There was no advise about what I could do just go on a diet and exercise and I did say that if they checked my notes then they would see as the asthma nurse used to record my weight but they said they hadn't time to go through my notes. I suppose with me saying that i was losing weight and exercising they probably thought there was no need then to advice anything regarding diet etc.

I was borderline for diabetes and having regular blood tests but my new surgery does not seem too bothered regarding that and said there is no need to have blood tests done as I am only borderline which I thought was strange because again I would have thought they would have wanted to keep a check on it but the GP stated that i was not diabetic so there was no problem and if I lost some weight then the chances are I wouldn't be borderline.

I think sometimes GPs and nurses are quick to point out when people are overweight and obese due to the problems it can cause which is understandable but then help should be given to people regarding diet and exercise. I know the argument would be it is down to you to sort out diet etc but sometimes a little bit of help and advice wouldn't go amiss.
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Re: Rheumatology appointment today

Postby zappa20 » Thu Oct 31, 2013 2:31 am

Hello Juleleics,

There's already so much information in every weekly magazine, TV programmes and on the internet about different ways to lose weight. Not to mention all the slimming clubs like weight watchers etc. who are specialists with proven track records in weight loss , and will happily monitor and support you fully all the way, as well as getting the encouragement and support of other members in the group. So not sure why a GP would attempt to duplicate this service when it already exists in spades outside his surgery. If your GP had suggested you join a slimming group or read a book on weight loss would you have felt it was a better outcome?

Your GP can if you really want , refer you to a dietician. Who is most likely to just repeat what you already know, then send you out the door. To lose weight you have to eat less than your body needs , and exercise will speed up the process. To lose a 1lb you need to eat approx 3000 calories approx less than your body needs , and to gain a 1lb you have eaten approx 3000 calories more than your body needed.

I put a fairly detailed explanation in another thread obout borderline diabeties, why its occurrs and how to try and avoid it developing into type 2 diabetes, if you can find it on the forum. If you can continue to lose weight , and well done to you so far because that's great news , there's a good chance you'll avoid it.

Basically our GP's are gatekeepers to the NHS services. Their job is to initially diagnose, treat if they can, or if required refer you on to the specialist services you need. Some services may be nurse led clincs held at their surgery or at outpatient hospital clinics after an initial appointment with a consultant. A GP may feel simply lifestyle change advice is needed .But once given, you are then supposed to go on and use this info to help yourself. If someone chooses to ignore their advice ,or won't help themself what more can a GP actually do? Break into someone's house and lock up the cookie jar, cigarettes, bottle of wine, cheese or force certain tablets down their throats. Its our body, our future health at stake, we have the free choice as to whether we take responsibility for it's upkeep or not, as well as living with the consequences .

If you think Dr's are bad at not reading notes, consultants can be much worse. lol. Even when paying to see them privately. I've seen plenty of them over the years, because of multi long term diabetic damage. But it is what it is. Try not to lose heart or take it too personally, just remember you are you, an individual in your own right and you are worth many things to many people in life. Don't let what you feel was a bad experience get you down.
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Re: Rheumatology appointment today

Postby julesleics » Thu Oct 31, 2013 11:56 am

HI Zappa

Many thanks for that. I think I was just more annoyed by the fact that I have been steadily losing weight and also been exercising when able and the surgery just didn't seem to register the fact that I was already doing this.

You are right there are so many different things around now about losing weight and you are right a GP can only really advice. The point I made regarding help I don't think I was too clear in what I meant. I meant advice for anyone who perhaps wasn't sure which way to go I know some people get really confused over all the different diets etc that are around. I know common sense tells you that you need to reduce your calorie intake but I know some people can get quite confused and not sure if that makes sense and I think then these people perhaps would need some advice to get them started. I hope that makes sense I am not very good at putting down what I mean.

I think as well as regards medication sometimes it can give you the false impression you are hungry when in fact your are not and I think that is why some people put on weight with medication.
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