Rheumatology appointment today

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Re: Rheumatology appointment today

Postby pops » Wed Oct 30, 2013 11:31 am

Its difficult to say what teatment works with fm as its very ' personal' Its an individual thing but for me losing weight and exercising to MY ability has helped me greatly. Its a struggle at times & at times Im unable to exercise. Finding a balance is hard but possible. It takes hard work & time but its so worth it for me:grin:

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Re: Rheumatology appointment today

Postby julesleics » Wed Oct 30, 2013 11:48 am

I agree with you Zappa that being overweight can lead to other problems. The thing that annoyed me was if the GP and nurse bothered to look at my notes then they would have seen that I have been steadily losing weight and that I try to exercise whenever I can. It was just the blunt you are obese and you need to diet and exercise which did me. There was no advise about what I could do just go on a diet and exercise and I did say that if they checked my notes then they would see as the asthma nurse used to record my weight but they said they hadn't time to go through my notes. I suppose with me saying that i was losing weight and exercising they probably thought there was no need then to advice anything regarding diet etc.

I was borderline for diabetes and having regular blood tests but my new surgery does not seem too bothered regarding that and said there is no need to have blood tests done as I am only borderline which I thought was strange because again I would have thought they would have wanted to keep a check on it but the GP stated that i was not diabetic so there was no problem and if I lost some weight then the chances are I wouldn't be borderline.

I think sometimes GPs and nurses are quick to point out when people are overweight and obese due to the problems it can cause which is understandable but then help should be given to people regarding diet and exercise. I know the argument would be it is down to you to sort out diet etc but sometimes a little bit of help and advice wouldn't go amiss.
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Re: Rheumatology appointment today

Postby zappa20 » Thu Oct 31, 2013 2:31 am

Hello Juleleics,

There's already so much information in every weekly magazine, TV programmes and on the internet about different ways to lose weight. Not to mention all the slimming clubs like weight watchers etc. who are specialists with proven track records in weight loss , and will happily monitor and support you fully all the way, as well as getting the encouragement and support of other members in the group. So not sure why a GP would attempt to duplicate this service when it already exists in spades outside his surgery. If your GP had suggested you join a slimming group or read a book on weight loss would you have felt it was a better outcome?

Your GP can if you really want , refer you to a dietician. Who is most likely to just repeat what you already know, then send you out the door. To lose weight you have to eat less than your body needs , and exercise will speed up the process. To lose a 1lb you need to eat approx 3000 calories approx less than your body needs , and to gain a 1lb you have eaten approx 3000 calories more than your body needed.

I put a fairly detailed explanation in another thread obout borderline diabeties, why its occurrs and how to try and avoid it developing into type 2 diabetes, if you can find it on the forum. If you can continue to lose weight , and well done to you so far because that's great news , there's a good chance you'll avoid it.

Basically our GP's are gatekeepers to the NHS services. Their job is to initially diagnose, treat if they can, or if required refer you on to the specialist services you need. Some services may be nurse led clincs held at their surgery or at outpatient hospital clinics after an initial appointment with a consultant. A GP may feel simply lifestyle change advice is needed .But once given, you are then supposed to go on and use this info to help yourself. If someone chooses to ignore their advice ,or won't help themself what more can a GP actually do? Break into someone's house and lock up the cookie jar, cigarettes, bottle of wine, cheese or force certain tablets down their throats. Its our body, our future health at stake, we have the free choice as to whether we take responsibility for it's upkeep or not, as well as living with the consequences .

If you think Dr's are bad at not reading notes, consultants can be much worse. lol. Even when paying to see them privately. I've seen plenty of them over the years, because of multi long term diabetic damage. But it is what it is. Try not to lose heart or take it too personally, just remember you are you, an individual in your own right and you are worth many things to many people in life. Don't let what you feel was a bad experience get you down.
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Re: Rheumatology appointment today

Postby julesleics » Thu Oct 31, 2013 11:56 am

HI Zappa

Many thanks for that. I think I was just more annoyed by the fact that I have been steadily losing weight and also been exercising when able and the surgery just didn't seem to register the fact that I was already doing this.

You are right there are so many different things around now about losing weight and you are right a GP can only really advice. The point I made regarding help I don't think I was too clear in what I meant. I meant advice for anyone who perhaps wasn't sure which way to go I know some people get really confused over all the different diets etc that are around. I know common sense tells you that you need to reduce your calorie intake but I know some people can get quite confused and not sure if that makes sense and I think then these people perhaps would need some advice to get them started. I hope that makes sense I am not very good at putting down what I mean.

I think as well as regards medication sometimes it can give you the false impression you are hungry when in fact your are not and I think that is why some people put on weight with medication.
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Re: Rheumatology appointment today

Postby fletch » Thu Oct 31, 2013 6:38 pm

Been to the doctors today and told him I was disappointed with the Rheumy doctor and the doctor said there in not a cure and if the pain killers don't work you have to just manage as best I can and alter my lifestyle to make every day things easer
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Re: Rheumatology appointment today

Postby julesleics » Thu Oct 31, 2013 9:48 pm

Hi Fletch

If it is any consolation that is pretty much the same attitude I have come across. One thing though I have found is it does help to pace yourself and try and ensure you rest up as needed. Don't push yourself too much I know some people think you should push yourself but this is where you need to be able to pace. For example I know if I go with my partner to do the shopping afterwards I am going to be tired and achy so I know I need to rest up afterwards.

I have been quite low just lately but being able to come on here and express how I am feeling has helped I am still quite low but I am not beating myself up so much and I think that is important not to beat yourself up. At the end of the day we have a chronic illness which is not through any fault of our own. I was getting quite depressed about the lose weight attitude when I am already doing that but now I have took a step back and thought no I am not going to let that get me down.

I think as said before it is right a rheumatologist will make the diagnosis and then either help with medication or refer you to pain clinic and after that then they put you in GPS care. Alas there seems little GPs can actually do. I think some people are in rheumatology clinics whereby they have consultants who are more sympathetic and try to offer different options whereas the rest of us are stuck with clinics that have consultants who are not really interested in FM. I think a lot of it is luck of the draw and where you live to be honest.

I have said in a previous thread I feel that there is lack of support and that it was getting me down so I can understand your frustration and feelings. I had a really good GP where I used to live and a brilliant asthma nurse who used to help me but now no one seems really interested, basically I get told learn to manage and cope with your illness which is not easy when you are in pain.

I have recently started pregablin but it is too early yet to say whether it is working but just a thought Fletch might be worth asking if there is any other pain killer you could take to help with the pain (I don't know what you are on). The rheuma kept putting me on amitrytline which didn't suit me at all (four times in all I have tried that) and then said if it don't work then there is nothing but the GP came out with you could try pregablin so I am giving it a go.

Sending you much love and hugs.
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Re: Rheumatology appointment today

Postby *Lisa* » Fri Nov 01, 2013 7:30 am

fletch wrote:Been to the doctors today and told him I was disappointed with the Rheumy doctor and the doctor said there in not a cure and if the pain killers don't work you have to just manage as best I can and alter my lifestyle to make every day things easer


I'll lend you my magic wand and POOOOF all will change in an instant for you!! :roll:

These doctors think we can just alter our lives here/now to suit our needs :-? with no help in how to??? easy saying to someone this but in real life its hard!!

What i can suggest is CBT in chronic pain. GP can refer you for this or there is a book on it. It helps to guide you in how best to pace and cut out stress and how change your lifestyle to suit your needs. Its better then telling you to jog on and change everything without advice/help or refering you for support into this.

I know what he said is true but we need help to be able to achieve this. Its a 24/7 job living with chronic pain and how it can flucuate and allsorts can agrivate it etc...
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: Rheumatology appointment today

Postby zappa20 » Sat Nov 02, 2013 6:36 am

fletch wrote:Been to the doctors today and told him I was disappointed with the Rheumy doctor and the doctor said there in not a cure and if the pain killers don't work you have to just manage as best I can and alter my lifestyle to make every day things easer


Have you tried a Pain Cinic for advice? As specialists they can offer various combinations of medications and alternative therapies ag acupuncture and aromatherapy masssage etc to help with pain. If you've not attended one maybe you could ask your GP for a referral?

Again weight may possibly be mentioned. It's not because they think the weight is causing your condition, just they'll know it's not helping your mobility , and it's their responsibility to advise people to lose it if needed.
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Re: Rheumatology appointment today

Postby fletch » Sat Nov 02, 2013 7:39 pm

Thanks all for the replies I do appreciated your input

Next time I'm at the docs I will ask about the pain clinic thanks
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Re: Rheumatology appointment today

Postby denys » Sat Nov 02, 2013 9:03 pm

Hi Fletch, I agree with Lisa about the talking therapies a lot of the pain clinics have these available as part of the course so :fingerscrossed: :fingerscrossed: :fingerscrossed: you will get some help and support :hugs: :hugs: :hugs: :hugs: :hugs: :hugs:
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