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The UKFibromyalgia Forums • View topic - GP Diagnosis & extra support



GP Diagnosis & extra support

Anything to do with the NHS or Private Healthcare.

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GP Diagnosis & extra support

Postby Oriole » Tue Nov 05, 2013 7:06 pm

Hi All

I was diagnosed with fibro recently by my GP. As well as other pain/joint issues I have been suffering with severe stiffness in neck & upper back, which sometimes travels to my arms. I get a lot of pain in legs, severe fatigue, morning stiffness and other symptoms.

My GP is great & been very supportive, but I wonder if I should be asking him for referrals elsewhere? I've had an x-Ray on my neck and whilst there were no issues with the bones, it's not getting better -I am still wondering if I should have an MRI scan to see if there are any other neurological issues? The neck stiffness also causes frequent headaches.

I have been given amitriptaline which helps a lot with the sleeping problems and also cocodamol, which helps with the pain, but I take these sparingly as I wonder whether I will be allowed to take them on a longer term basis? Adjusting to the news of the diagnosis has also been hard and feel a bit down about it & feel my health is worsening that I may have to cut my hours at work. I am wondering really whether I should be asking for further investigations, referrals or support?

Thanks for listening & interested in any suggestions you may have.
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Re: GP Diagnosis & extra support

Postby whoami » Tue Nov 05, 2013 8:54 pm

Do you feel comfortable with your Dr? Do you trust he will listen to your concerns?

It sounds like your Dr is on top of things. Sometimes we tend to want to look for something else in hopes that there will be something wrong to be fixed and take all the pain away.

Talk to your Dr about your concerns.
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Re: GP Diagnosis & extra support

Postby FluppyPuffy » Tue Nov 05, 2013 9:13 pm



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Re: GP Diagnosis & extra support

Postby Oriole » Tue Nov 05, 2013 9:44 pm

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Re: GP Diagnosis & extra support

Postby Oriole » Tue Nov 05, 2013 10:09 pm

FluppyPuffy - thank you so much for your extensive reply and advice. It's not that I disagree with the diagnosis, I'm in fact mightily relieved that he knows about fibro and has been able to identify what is wrong with me. I am very grateful for that after reading many horror stories on here of doctors who don't seem to understand it all. I am worried about my neck in particular, in case there are any additional issues and I am seeing him later this week, I will ask him if any more can be done.

In terms of extra support, I am not really sure, I just feel I need a little more information etc on how to cope and manage and perhaps some treatments to ease the pain? I have started seeing a chiropractor about my neck, but I am not sure really what's available in my area on the NHS.

Regards meds and taking them sparingly - sorry for the confusion there, I meant the cocodamol I take sparingly - I have been told to take for relief of the neck pain/stiffness - I take anywhere between 1 to 3 doses of 30/500mg cocodamol per day. I do find them to really help with the pain, but I am worried as I've read they can be addictive and they do also cause constipation at times.

Thank you for all the advice an information, I do appreciate it :-D
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Re: GP Diagnosis & extra support

Postby FluppyPuffy » Wed Nov 06, 2013 2:24 pm

Wrt to your worries about your neck, talking to your GP is the first thing to do. Maybe write down the symptoms and problems it is giving you that are particularly troublesome to you and take this with you so you make sure you get all the important points across.

For some additional info, help and support, as well as access to other possible treatments, you could ask about being referred to your areas Pain Clinic/Management peoples. Thru them you can often access things like acupuncture, physios, pain management programs/courses, info and advice about meds, talking therapies. Or such things may be available separately, as it does seem to vary from area~to~area.

A lot of the meds we take can become habit~forming, but when taken sensibly/as prescribed/directed, problems with this would normally be minimal. And as FM tends to be with us for the long haul, the benefits a med can bring may well outweigh the concerns about dependence. It's another one to discuss with your GP as he knows you and should be able to give you some more personalised advice based on how you are and what he thinks could happen with the meds.


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