Tired of not been taken seriously by my GP

Anything to do with the NHS or Private Healthcare.

Moderators: perseus, *Lisa*, FluppyPuffy

Tired of not been taken seriously by my GP

Postby dcr » Sun May 18, 2014 2:37 pm

Hi all
I'm unsure if I have fibromyalgia but I have many of the symptoms. Whenever I go to my GP which is regularly, I always talk about how i'm feeling and how my symptoms are getting worse, but constantly get fobbed off with a diagnosis of anxiety and depression. That's the reason I can't sleep, the reason I have hot and cold sweats, the reason I get pins and needles, the reason I get headaches/migraines, the reason I get aches and pains, the reason I can't concentrate and get forgetful.

I've had enough and I want a referral to a rheumatologist. I'm going to go back to my GP and request this but if he refuses what can I do? No use asking to see someone else cuz the other GP's are equally as woeful. I'm prepared to pay private, but do I need a GP referall first? Could a GP from the out of hours service or the walk in centre make a referral?

Help i'm getting desperate :-?
dcr
UKFM Newbie
 
Posts: 6
Joined: Sat May 17, 2014 12:12 pm

Re: Tired of not been taken seriously by my GP

Postby Louloubelle101 » Sun May 18, 2014 3:28 pm

I'm sorry to hear that you're having so much trouble with getting any help from your doctor. Have they checked your hormone levels? I know this sounds daft but I also have hot and cold flushes and part of that is because I have Polycystic Ovary Syndrome (PCOS) as well as fibro. If the doctor refuses to refer you to a rheumatologist, you just go and ask another doctor. You have a right to be taken seriously and to also have an explanation as to why the doctor does not think you need to be seen by any specialist. I haven't asked to be seen by a specialist since being diagnosed with fibro but I had to ask to be referred to a dermatologist and an endocrinologist when I was first diagnosed with PCOS. Stick to your guns, it's your health after all xx
Louloubelle101
UKFM Newbie
 
Posts: 9
Joined: Tue Feb 04, 2014 4:41 pm

Re: Tired of not been taken seriously by my GP

Postby Sallyann » Sun May 18, 2014 3:40 pm

I was treated in the same way unfortunately - and still am being treated the same way - even with a diagnosis of Fibro. If I ever need to see a doctor the answer is always the same, regardless of symptoms, "You have Fibro - what do you expect....."
All I can say is that I am extremely sorry and disgusted that you are being treated this way. But, stick to your guns and keep insisting until they refer you - even if it just to shut you up and get rid of you!
Sallyann
UKFM Newbie
 
Posts: 9
Joined: Sun Mar 02, 2014 3:30 am

Re: Tired of not been taken seriously by my GP

Postby FluppyPuffy » Sun May 18, 2014 3:43 pm

Here's what I posted on your intro topic about trying to get things moving in a more suitable direction with your GP.
FluppyPuffy wrote:If you feel what you have been and are experiencing may be FM, there are a few things you can try to see if it helps things along. Firstly, print up some info from a reliable source that can't be disputed such NHS Choices. Go thru the info from the site and highlight the problems and symptoms you suffer with, as well as making some notes about other issues you may have that could suggest FM is the cause of them.

When you go for your GP appt, take your notes with you as they can help remind you of what you want to say/cover, as well as being able to give them or a copy to your GP for their info/your file. Also, rather than letting/waiting for your GP to take the lead with the appt, you try to take the lead. It can be a bit uncomfortable doing this at first, but once you start, it becomes a little easier to do so. Try to be direct, yet still respectful as you explain that you have been looking at conditions which share the symptoms and problems you have, and from that research, you're now wondering if FM could be what is affecting you. Then go thru the symptoms etc that you've highlighted/noted, and ask your GP what they think, could it be a possibility, or could something else be indicated.

According to NHS Choices a referral from a GP isn't necessary, altho it is considered "best practice" for a patient to be referred by their GP for specialist treatment. If you see a specialist privately, without a letter of referral from your GP, then your GP is not obliged to accept the specialists recommendations. From what I can find, referrals don't seem to be made/come from out~of~hours GPs, but from the GP the patient has been seeing/is registered with.

Your other option may be to consider changing surgeries, a call to others in your area and asking a few questions about whether they have patients with FM registered with them, and if there is a particular GP with an interest in such conditions that people tend to see can help you find out where might be a more suitable place.

If the changing surgeries isn't an option, you could always try making an appt with the Practice Manager to discuss the way you have/haven't been treated. If you can put together details to help support what you are saying, it might help bring about a change in things for you.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: Tired of not been taken seriously by my GP

Postby Sallyann » Sun May 18, 2014 3:50 pm

Forgot to say that the other thing I did was to keep a Pain Diary. It was a help in showing the variety and severity of symptoms over a period of time rather than just presenting with 'all over pain' etc.... Would be happy to email you an example from mine if that would help.
Sallyann
UKFM Newbie
 
Posts: 9
Joined: Sun Mar 02, 2014 3:30 am

Re: Tired of not been taken seriously by my GP

Postby Mcongerton » Mon May 19, 2014 7:33 am

I understand how it feels to be fobbed of by the doctor ... Its taken me ten years and four differnt doctors to get where i am today .. Ive finaly been told i have fibro .... All though pain management is still and issue for me he hasnt helped by giving me nothing as yet ... I have to wait till ive been to see a specilist at my local hospital ... Every day seems to be a struggle at the moment .. I find if i do the simple things like housework or change the beding it leaves me in a lot of pain.
Mcongerton
UKFM Newbie
 
Posts: 2
Joined: Fri May 16, 2014 9:27 pm

Re: Tired of not been taken seriously by my GP

Postby happyfeeling » Mon May 19, 2014 7:08 pm

Hi Ive had Fibro for at least two decades and my medical notes go back yrs saying about muscular pain,I was actually diagnosed by a fully trained massage lady two odd yrs ago. All my symptoms was put down to depression and anxiety. It took me two yrs of begging my gp to refer me to a Rhuem who then referred me to pain clinic. Ive lost count of how many doctors ive seen to take me seriously and not keep fobbing me of and now they won't up my pain relief so again im changing doctors!!! Good luck and don't give up,wish you well.x
happyfeeling
UKFM Newbie
 
Posts: 8
Joined: Wed Jan 23, 2013 5:41 pm


Return to Doctors & Health Services

Who is online

Users browsing this forum: No registered users and 1 guest