Terrified - Psycology referral

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Terrified - Psycology referral

Postby V_Eeyore » Fri Jun 06, 2014 2:06 pm

Hi,

I am scared, I don't think I have ever been scared like this before. I have been struggling a lot lately with my symptoms and now my new GP have referred me to the Psycology depertment as he thinks I have somatoform disorder.

I am terrified that if I get labeled with this that no matter what I say or do will simply play into their diagnosis, with everything I have read about it and the information the doctor gave me to read it sounds, to me anyway, that the symptoms are wide spread and varied that whatever I say could be made to fit this and whilst trying not to sound like the hypochondriac they think I am, I am sure this isnt what I have or at least not all I have, as it doesnt explain all of my symptoms nor have I experienced and emotional trama around the time it started that it says triggers it.

I feel so lost, I don't really want to be sent to see the pysc department, I am not against anything that might help with the pain or other symptoms I have, I just feel that is another department to be sent to that wont help me. The doctor says that I have had a lot of expensive tests and the results have all come back within normal limits. Which I know is a good thing that there isnt some awful disease or anything going on but each time I hear that I feel a little dissapointed, not that I want that illness by any stretch of the imagination but simply knowing what it is means they can do something helpful which being back to square one again knowing it will lead to another fight with my GP leaves my feeling dissapointed. I don't want to say any of this to a psyc. as I know they will just say "its in my head" or that I want to be ill. I really really really don't I just want some help.

I am sorry for posting this here, I don't have anyone else to talk to about this. My family are very supportive but I dont want to upset them. I am so tired of fighting do I just roll over and try to "get on with it"?

Sorry,
V
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Re: Terrified - Psycology referral

Postby Theresa34 » Fri Jun 06, 2014 2:37 pm

I don't know what somatoform is. I will look it up. Can I ask...Did you have to agree to the referral? If you don't want to go, do you have to? If I didn't want to go to somewhere I didnt want to go, I wouldn't go! You need a different gp asap.

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Re: Terrified - Psycology referral

Postby Helhit » Fri Jun 06, 2014 3:04 pm

Hello
Did your dr ever mention that you might have fm/cfs/me at any point or did they think it's all just in your head?

It sounds to me like your new dr thinks that, yet if your symptoms are like fm, they def aren't!
I agree that before you agree to the referral that you get a second opinion from a dr who has treated fm before.

The OH woman at my work thinks my fm is caused by depression - my dr has told me that I am not at all depressed, just frustrated at not being able to live the life I used to do. There def is a difference.
That being said I am just about to start CBT counselling as I will try anything that helps.
Good luck xx
Last edited by FluppyPuffy on Sat Jun 07, 2014 12:15 pm, edited 1 time in total.
Reason: Made paragraphs clearer for easier reading.
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Re: Terrified - Psycology referral

Postby denys » Fri Jun 06, 2014 10:52 pm

Go and see the doc they should be able to distinguish the difference and maybe get you the right referral, just saying cos if you refuse to go there is a possibility it will go against you for any other treatment.

Its not all in your head we know that, you know that and so should the psychologist :hugs: :hugs:
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Re: Terrified - Psycology referral

Postby carolad » Sat Jun 07, 2014 9:01 am

I have read that some medical professionals think fibromyalgia is a somatoform disorder. But this certainly doesn't mean that you are making it up and don't have real symptoms. My understanding is that stress causes real physical symptoms in the body - I think most of us can identify with times that being under stress has caused an increase in our symptoms. I have eczema that gets worse when I'm stressed - it is there for everyone to see so there's no way it could be interpreted as being 'all in my head'. And it is the same for pain and other symptoms you can't see.

Also, if you concentrate on your pain, it will seem to get worse, whereas if you are involved in an activity you enjoy, you are distracted from your pain for a while. So the mind has a big influence on how we perceive pain - and this is the same for absolutely everyone.

So please don't be scared about this appointment. Go with an open mind and you may find you get some tips and help to manage your condition. I know things like CBT have been very successful in helping people manage pain - the pain may still be there but CBT changes how you feel about it and makes it easier to cope with.

I think the labels we are given aren't the most important thing. The key is learning to live with your symptoms, with pain relief, psychological techniques, alternative therapies like acupuncture...basically whatever works for you. I think it's definitely worth going to this appointment - you have nothing to lose :)
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Re: Terrified - Psycology referral

Postby FluppyPuffy » Sat Jun 07, 2014 12:38 pm

I can understand why this is making you feel terrified, like Denys has already said tho, a decent therapist should be aware of the various possibilities that could relate to what you experience, and should be able to determine which of them applies to you.

And as carolad has said, CBT/talking therapies can be rather helpful for some. When I was at my lowest I had a number of sessions over around 6 months, and for me it was a real turning point. By working thru issues that affected me, re~examining them for other ways that they could be handled, and working on ways to deal with them should similar situations arise again, it meant a few more tools were added to my survival kit.

Try to keep your mind as open as you can when/if you have to go for your appt. From being something scary, it could become something that makes a difference to you.
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Re: Terrified - Psycology referral

Postby whoami » Sun Jun 08, 2014 2:02 am

V.......I can understand why you are nervous, scared and genuinely upset about your referral. I saw a psychologist and it really did help.

Don't worry about being labelled with anything. What you are experiencing is real. Whatever help we can get is a good thing. Try to go to this appointment without any pre judgement.
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Re: Terrified - Psycology referral

Postby V_Eeyore » Sun Jun 08, 2014 5:11 pm

Thanks everyone,

I am not afraid of a label as such I am afraid that if I get a wrong label I won't get the help I need.

My previous GP was pretty sure I had FM and started me on pregabalin which seems to have taken the edge off, then he left, the GP I have now seems adamant that I am just looking for attention, which is the complete opposite of what I have gotten.

I did agree to go but only based on that if I didn't agree to go he was going to stop my meds.

I don't think that was very fair and I think that's where the fear came from. I guess I can only hope that for once I get to see a specialist that doesn't dismiss me.

Thank you for your replies it has really settled my nerves.

V
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Re: Terrified - Psycology referral

Postby FluppyPuffy » Sun Jun 08, 2014 5:28 pm

Is there a different GO you can see??? Using a threat such as stopping medication to get you to do what he wants is surely a big NO NO!!!!

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Re: Terrified - Psycology referral

Postby denys » Sun Jun 08, 2014 7:44 pm

I agree that is emotional blackmail and certainly not what anyone needs, I'm wishing that you get a good professional this time and they sort the GP out good style :twisted: :twisted: :twisted: :twisted:
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Re: Terrified - Psycology referral

Postby V_Eeyore » Mon Jun 09, 2014 12:14 pm

Thanks guys,

It wasnt until I read post's on here that I realised how badly I was being treated. I have tracted down a GP in my area that has been recommended for FM so I am going to try and move there.. Hopefully that will help things.

It can't make it much worse! :yikes:

It helps to remember that I am not loosing my mind although sometimes it feels like it! :crazy:

Thank you all.
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Re: Terrified - Psycology referral

Postby V_Eeyore » Mon Jun 23, 2014 12:07 pm

Well my appointment has come through for this friday.

I am not sure what the GP has put in the referral letter so I don't know where to start. I have written down everything that has been going wrong with me for the past 5 years in a sort of timeline with how much of an effect it has had on me. It helped me be a little more confident that it isnt all in my head. Should I bring this to the appointment or will it just make me look more like a the hypochondriac the GP already thinks I am?

Thanks
V xx
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Re: Terrified - Psycology referral

Postby whoami » Mon Jun 23, 2014 5:26 pm

Take your notes with you. Explain how easily you get confused or frustrated and need to write things down so you don't forget. You will not sound like a hypochondriac. You are being honest.

It is only natural to feel a little anxious. You are treading on new territory with seeing a new Dr. Try to relax. Hang on to that self confidence you have gained and just be honest. Be yourself no matter what the day brings you.
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Re: Terrified - Psycology referral

Postby tonydin » Mon Jun 23, 2014 11:57 pm

hii i hope this helps befor the fm dx i was being treated for health anxiety ie hypercondrosis due th the fact i had so many things wrong but nothing to show so to speak and yes i was worried sick what was wrong :yikes: :yikes:

but i was sent to a psycoligest who decided i did not fit the hypo box and reaised my problem was i was in pain all the time and worrying myself about it . ther is a diffeance she said . i learnt some good copeing statagies from her and a year after discharge with no improvement from pain i was dx with fibro and gusse what , the anxity faded because i finaly knew what was weong :lol: :lol: :lol:

so do go and get it ruled out , or treated
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Re: Terrified - Psycology referral

Postby MPSGuy » Sat Jun 28, 2014 8:07 pm

My understanding is that somatoform disorder is where the doctors can't find any evidence (blood test, scan, xray, etc) that would explain your symptoms and they then believe the symptoms you are having are being caused by a psychological problem like depression or anxiety.

It does kind of mean they think it is 'all in your head', but NOT in a negative way. The symptoms and pain you are experiencing are very real, it is just that they think it is caused by mental trauma. It should not mean they think you are faking or an attention seeker. Also many doctors believe Fibromyalgia and Chronic Fatigue Syndrome are types of somatoform disorder because no test or scan can prove a physical abnormality.

To be honest your GP doesn't sound very compassionate if he has used the threat of stopping your medication to get you to do as you are told. That does not sound very ethical. I do wonder if they dislike you being on pregablin because it is a very expensive medication and it is also abused by some people so is gaining a bad reputation even though it can help people with chronic pain.

I think you should try not to worry about what the doctor has put in the referral letter as you can't change that. All you can really do is go along to the appointment and see if they have anything helpful to offer you.
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