Think I have fibro- what to say?

Anything to do with the NHS or Private Healthcare.

Moderators: perseus, *Lisa*, FluppyPuffy

Think I have fibro- what to say?

Postby emma83 » Wed Aug 06, 2014 5:10 pm

Hi I'm new and would love some advice. I'm pretty sure I have fibromyalgia. Slept badly for a long time and I am always tried but past year I have been getting pains in my neck and knees mainly but last couple of months the pain is terrible and more widespread. Tender points are agony. I have a doctors appointment on Friday with the doctor I like at the surgery and would like some advice please.
What would you recommend I must say? Do you think I should tell the doctor I think it's fibromyalgia, or let them come to that conclusion?
What is likely to happen after my first Gp visit ie- referrals? Tests? Etc?
Grateful for any advice,
Emma x
emma83
UKFM Member
 
Posts: 26
Joined: Wed Aug 06, 2014 5:53 am
Location: Maidstone

Re: Think I have fibro- what to say?

Postby Lindilou » Wed Aug 06, 2014 7:51 pm

Emma, I am not aware of any tests for fibro, it seems to be a process of elimination. They may want to see if you have rhuematism or arthritis. As for what to say, just tell the doc everything. :hugs:
Lindilou
 

Re: Think I have fibro- what to say?

Postby emma83 » Wed Aug 06, 2014 8:43 pm

Thank you. I thought it was a case of elimination. Is he likely to refer me to a specialist for a official diagnosis or will I get it at doctors? Yeah my mum has said make a list of my symtoms to tell him which is fairly easy as I have every fibro symtom going I think! Pain has been so bad lately in my neck, knees, arms and fingers :-( thanks for repling x
emma83
UKFM Member
 
Posts: 26
Joined: Wed Aug 06, 2014 5:53 am
Location: Maidstone

Re: Think I have fibro- what to say?

Postby Lindilou » Wed Aug 06, 2014 9:02 pm

emma, no one has told me I have fibro it was just elimination to prove/confirm what I thought in the first place - fibro. :-D
Lindilou
 

Re: Think I have fibro- what to say?

Postby denys » Wed Aug 06, 2014 10:43 pm

We cannot comment on whether or not we think you have FM as we arent qualified but from experience it is correct that its a case of elimination, there is the trigger point but not everyone uses that for diagnosis. There is nothing wrong with broaching the subject with your doc, it just depends if they are the type who get a bit touchy or not.

My doc brought it up to me and at a later appointment said he knew I would have gone straight home and looked it up (which of course I had :lol: )

But I would like to say :welcome: to the forum :cow-wave: :cow-wave: I hope you get some answers soon :-D :-D :-D :-D
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
User avatar
denys
UKFM Veteran
 
Posts: 11901
Joined: Tue Feb 09, 2010 10:05 pm

Re: Think I have fibro- what to say?

Postby emma83 » Thu Aug 07, 2014 7:50 am

Thank you for you advice. Oh no I don't expect you to comment if you think I have it or not :-) I'm just nervous about my gp appointment tomorrow and what to say. My doctor is the type I can say what I think something is he's usually really good.
Thankyou for the welcome too x
emma83
UKFM Member
 
Posts: 26
Joined: Wed Aug 06, 2014 5:53 am
Location: Maidstone

Re: Think I have fibro- what to say?

Postby FluppyPuffy » Thu Aug 07, 2014 8:46 am

:welcome: to our little sanctuary Emma :cow-wave: :cow-wave: :cow-wave:

If you feel FM is the reason for what has been affecting you over thye past few months and years, then you should raise the possibility with your GP. Not all GPs are open to the idea of FM as a dx tho, but you should be able to gauge your GP's response within the first few moments of your conversation as to which way they are leaning.

As well as compiling details about the symptoms you have/do experience, you could also print up some info about FM and use this to help show the similarities between what you experience and what is said about the condition. Make sure that the source of the info you use is a reliable one, such as NHS Choices or UKFM site.

In the meantime, have a bit of a looky around the place and see what there is. The boards are full of all sorts of info and advice, so there might be some suggestions which could help make things a little more comfortable for you :cow-wave: :cow-wave: :cow-wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: Think I have fibro- what to say?

Postby Theresa34 » Thu Aug 07, 2014 10:08 am

I hope your appointment goes well and your dr really listens to you. I expect he might take bloods to rule other things out. I was diagnosed with arthritis last year so I was already with a rheumatologist when I was diagnosed with firbromyalgia this year. It didnt even enter my head what it was. I just thought it was the arthritis causing my pain and tiredness. I wrote down a huge list of things that was happening to me and I gave it to him. He read some of it whilst asking me about how I had been feeling. He said he thought it was fibro. He had me lie on a bed and he checked my joints them did the trigger point test. I passed or failed however you want to see it lol Every area he pressed on hurt. Before leaving he sent me for bloods to check for vitamin D deficiency. He believes most fibro people have this and also the bad sleep patterns we have can also cause pain, so i was put on Amitriptyline to help me sleep. My vitamin D levels were very low so I'm also on vitamin D :-)
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
Theresa34
UKFM Member
 
Posts: 776
Joined: Fri Feb 21, 2014 10:44 pm


Return to Doctors & Health Services

Who is online

Users browsing this forum: No registered users and 1 guest