Sleep Clinic & Neurologist

Anything to do with the NHS or Private Healthcare.

Moderators: perseus, *Lisa*, FluppyPuffy

Sleep Clinic & Neurologist

Postby robbiecramp » Thu Aug 14, 2014 8:51 pm

I hope I am in the right section can anyone help in relation to firstly

Sleep Clinic - Been referred so not been yet very noisy snoring waking up non refreshed after a night's sleep and just so tired all the time.

Neurologist - Been referred here also on telling GP I get pains all over getting worse just lately but also having spasms in my hands and legs. Vision not great one eye pretty good other very little sight in it so little optician did not even test it and even with new glasses being on a computer, reading a paper, (which as same as books I hardly get past first page just holding it up then it's like a Electric impulse but one that really hurts and my hands just let whatever I got in my hand go.) I get blurry vision and sore eyes and even watching telly it does it.

There is probably more but I have forgotten and have very painful hands but please comment if anyone has experience of either clinics or if you can offer advice

My medication is

2x500mg Paracetamol 4 times a day (2x3 times a day and 1 at 7pm)
1 or 2x50mg Tramadol 4 times a day (2x3 times a day and 1 at 7pm)
1x10mg Baclofen 3 times a day
3X300mg Gabapentin 3 times a ay
125mg Amitriptyline at night
robbiecramp
UKFM Member
 
Posts: 97
Joined: Wed Jan 08, 2014 9:37 pm
Location: chesterfield

Re: Sleep Clinic & Neurologist

Postby whoami » Thu Aug 14, 2014 9:24 pm

I have been under a sleep clinic for a few years now. At first a sleep study was done and it was determined I have sleep apnea. I now use a machine at night. I go for checks every 6 months in case things need adjusting.
When you stay for the sleep study and stay overnight the procedure is quite simple and was worth finding out the results.

Over the 25 years I have seen numerous neurologists. They were helpful in determining my issues and treating things.

I think you have nothing to lose by visiting these clinics.
[i][b]

Expect the worst in life you won't be disapointed and you'll be prepared!
whoami
UKFM Regular
 
Posts: 1537
Joined: Wed Jan 23, 2013 9:22 pm
Location: Ontario, Canada

Re: Sleep Clinic & Neurologist

Postby robbiecramp » Thu Aug 14, 2014 10:12 pm

Thanks Whoami that is a very positive reply and helped me especially the sleep study my GP said they may do that anyway.

My mum had fibromyalgia diagnosed in 1983 then 1985 changed it to MS then 1986 said she had both she saw a professor who specialised in MS and although she sadly passed away in 2008 in certain ways am glad she not seeing her son in same agony she was in but in other ways she would be supporting me and vise versa so it's good to have this forum. I have mentioned to GP my worries about MS as know it can be hereditary and we actually don't know anything about my mum's mum family background so guess this will give me a firm answer and I can start preparing myself to go back to work in whatever job I can do
robbiecramp
UKFM Member
 
Posts: 97
Joined: Wed Jan 08, 2014 9:37 pm
Location: chesterfield

Re: Sleep Clinic & Neurologist

Postby whoami » Fri Aug 15, 2014 2:25 pm

My father in law had MS. As you know through your mum it is a complicated disease. When you see the neurologist he will be able to test you for MS. Even though there is a genetic relation it does not mean you will inherit the disease. I understand your concern. My father in law was diabetic as well he also had some other serious health issues. My hubby has inherited all of them but the MS, it sticks in the back of his mind that he may get it. Keep us informed
[i][b]

Expect the worst in life you won't be disapointed and you'll be prepared!
whoami
UKFM Regular
 
Posts: 1537
Joined: Wed Jan 23, 2013 9:22 pm
Location: Ontario, Canada

Re: Sleep Clinic & Neurologist

Postby robbiecramp » Wed Aug 27, 2014 4:42 pm

Thanks Whoami I certainly will I am due to see neurologist at end of September so will fill you in after that
robbiecramp
UKFM Member
 
Posts: 97
Joined: Wed Jan 08, 2014 9:37 pm
Location: chesterfield

Re: Sleep Clinic & Neurologist

Postby thisbridgetisgreat » Mon Sep 15, 2014 3:33 pm

I have worries about this too, I'm glad to see that it's worth doing but I worry about having to stay overnight, what does that entail and is it needed?
thisbridgetisgreat
UKFM Newbie
 
Posts: 3
Joined: Mon Sep 15, 2014 9:33 am

Re: Sleep Clinic & Neurologist

Postby TNK* » Mon Sep 15, 2014 3:35 pm

How do you get referred to a sleep clinic?
A Dream Is A Wish Your Heart Makes When You're Fast Asleep ºOº


Jo xx
User avatar
TNK*
UKFM Member
 
Posts: 319
Joined: Wed May 07, 2014 4:14 pm

Re: Sleep Clinic & Neurologist

Postby denys » Mon Sep 15, 2014 6:03 pm

Ask your GP
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
User avatar
denys
UKFM Veteran
 
Posts: 11901
Joined: Tue Feb 09, 2010 10:05 pm

Re: Sleep Clinic & Neurologist

Postby Zia2014 » Thu Sep 18, 2014 5:11 pm

I was referred to a sleep clinic by my endocrinologist as they thought I had sleep apnea. I kept saying I didn't and sure enough, I was right! All because I was tired all the time. But at least it was ruled out. I saw clinical measurement first to get the equipment, a watch with a finger thing you put on (and had to remove all my nail varnish lol). It was fairly straightforward although the first time it didn't work!
Zia2014
UKFM Regular
 
Posts: 1033
Joined: Sun Jun 29, 2014 2:55 pm

Re: Sleep Clinic & Neurologist

Postby robbiecramp » Thu Sep 18, 2014 10:52 pm

Hi I have just had that device with it on your wrist and the clip on your second finger and when it was returned within 2 days (actually it was a couple of weeks ago) have an appointment with a Dr on Monday 22nd at 15.30 which should be hysterical as this is when I am usually so tired I sleep wherever I am.

Neurologist is on 24th and first appointment so will try to let people know how I get on. This is because I have read different opinions by clinical people online that Multiple Sclerosis can be hereditary and my Mum had it but none of our family know anything about mum's parents family background as she was put into a workhouse and abandoned so it is to get a proper decision and my GP is really good even thought he thinks in his opinion and pain clinic consultant that it is fibromyalgia and nothing else have agreed it would be best thing

Has anybody else thought maybe they have had MS with fibro and what happened if you don't mind sharing
robbiecramp
UKFM Member
 
Posts: 97
Joined: Wed Jan 08, 2014 9:37 pm
Location: chesterfield

Re: Sleep Clinic & Neurologist

Postby Purpledot » Sun Sep 21, 2014 1:00 pm

I have never attended a sleep clinic, so can't help with that one I'm afraid.

However, I have recently been investigated for MS, so can tell you my experiences......

I had a brain MRI that showed multiple lesions all over my brain. Saw 2 Neurologists....the first who ruled out any ischemic causes for the lesions (mini-strokes, blood clotting/flow issues, heart issues etc) and the second who specialised in MS and other neurological conditions.

The second one asked me loads of questions, did a basic Neuro examination (reflexes, pin-prick test etc) and then sent me for an MRI of my cervical and thoracic spine, a lumbar puncture and evoked potential tests. These, along with a brain MRI (which I had already had), are the set of tests commonly used to confirm or rule-out MS. He told me at the time that this was his aim. Thankfully, the tests showed I do not have MS, although the brain lesions are yet to be explained (have an appointment at the National Neuro hospital next month).

So, basically, at your initial appointment with the Neuro he will probably ask you lots of questions about your health history and your family's health, and also your current issues. He will then perform a basic, non-invasive neuro examination, and, if he suspects anything neurological going on he will order tests. Each Neuro works in a slightly different way, of course, but this is more or less how things will probably pan out. You may only be initially referred for a brain MRI and then other tests will be ordered or not, depending on the results of the MRI.

My 2 pieces of advice would be to take someone with you, and to take a list of symptoms with you as a memory jogger, including, where possible, time scales etc. Neuros find this very useful. He may ask to keep it for his notes.

Good luck, and please let us know how you get on xx
Purpledot
UKFM Member
 
Posts: 127
Joined: Mon Nov 05, 2012 2:47 pm


Return to Doctors & Health Services

Who is online

Users browsing this forum: No registered users and 1 guest

cron