new and need help pls

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new and need help pls

Postby csevern » Tue Aug 26, 2008 12:53 pm

Hi all my name is cat and i live in the south lincs area my local hospital in the pilgrim in boston, i was diagnosed with fibro in march after nagging my gp for ages to refer me as i knew what was wrong but no one wld listen, so finally i got my diagnosis and firgured it was the beginning of getting on top of it but no the dr at grantham hosp gave me a prescription for amitryptiline(sp) which they started off on 25mg everytime iw ent bk they just upped them am now on 75mg they also put me on co-codymol which clash with the amitrypt my bp has also gone thru the roof and im bk tomorrow for re-check altho im wondering if its because of the tablets i desperatly need to see someone who knows about fibro but cant even get a drs appointment at the moment, i wld appreciate any help and advice pls

many thanks
cat
Be the kind of woman that when your feet hit
the ground each morning the devil says,
"OH GOD, SHE'S UP"! .
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Postby LinzWorld » Tue Aug 26, 2008 2:16 pm

Hi Cat

What problems are you having with the two meds? It is possible to take them together.

Amitriptyline use for Fibro above 50mg or long term is not backed up by any research. In fact, a recent research review said that Amitriptyline should only be used for Fibro at low doses and for 2-3 months. So you may want to discuss other options.

To give you some idea of the variety of meds that are availabe that may help Fibro, take a peek at the Medications section on FibroAction's website. There is a lot of choice, so don't let doctors fob you off saying there is nothing they can do!

If your GP isn't prepared to help you find a good treatment plan (which is likely to include lifestyle management and possibly complementary therapies as well as meds) then you may want to ask for a referral to a specialist. The only FM Clinic on the NHS in England is at Guy's Hospital in London, but they take in patients from all over the country. Although the waiting list is pretty bad, they now have a second consultant with the clinic, so waiting times should start to improve.

If going private is an option, then you can get to see Prof Davies, who runs the NHS FM Clinic, privately within a few weeks. He can usually ask your GP to then do your prescriptions.

I hope that helps. It can be really difficult when you are newly diagnosed, but the good thing is that as you're being proactive now, hopefully you will get good treatment quicker and that could mean that you don't get as bad or have as many problems.

Good luck!
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Postby csevern » Tue Aug 26, 2008 3:28 pm

hi linz

thanks for your reply, well with the co-codymol and the amitrypt when the dr first prescribed the co-codymol and flashing warning sign came up on her computer so she told me not to take the two together so i can take them during the day but at night i have to go without any pain killers at all as this is when i take the amitrypt not that the co codymol do a lot anyways i was on tramadol but found they gave me migraines and she said she could prescribe anything stronger only the hosp cld do that but she didnt refer me bk and now shes left so i have to start again with another dr

im in to see nurse tomorrow for blood pressure tests so will enquire as to whether i can be referred to guys hosp or not

thanks again and will definately look up your recommendations on this site
cat xx
Be the kind of woman that when your feet hit
the ground each morning the devil says,
"OH GOD, SHE'S UP"! .
csevern
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Postby csevern » Tue Aug 26, 2008 3:30 pm

csevern wrote:hi linz
she said she could prescribe anything stronger

sorry meant she couldnt

cat xx
Be the kind of woman that when your feet hit
the ground each morning the devil says,
"OH GOD, SHE'S UP"! .
csevern
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Location: lincolnshire

Postby gillshutt » Tue Aug 26, 2008 3:44 pm

Hi Cat and welcome to the site (((xxx)))

If you take the ami's a couple of hours before bed I would have thought you could take a couple of co-codamol before you go to bed.

I've never heard you couldn't take them together. Also I would have thought you could have something else if your doc is set against taking the 2 together. I have tramadol and gabapentin as well as co-codamol.

Hope you find something that helps (((xxx)))

Gill x x
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Postby LinzWorld » Tue Aug 26, 2008 6:32 pm

They both have a sedating effect, which can also depess repiration and I would guess that it why they flagged up (wow that your GP has a system to do that!). However, if you are used to the meds and monitored then the risks are far less.

However, it sounds like you could do with more efficient meds, rather than more ami and stronger opioids, neither of which are very effective for Fibro.

Good luck with a new doc!
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Postby steepdene » Wed Aug 27, 2008 8:47 pm

Hi,

I'm confused, I've been taking both co-codamol and amitryptilene for a while now and my GP's never queried it. I also take sertraline at the same time and I still have trouble sleeping sometimes!
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Postby luuluu » Wed Sep 03, 2008 6:37 pm

Hi Cat

Just thought I'd say welcome to the forum, hope your feeling a bit better.

luuluu (sienna123) :D
xxxxx
what other people think of me is really none of my business
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just been to dr

Postby csevern » Tue Sep 09, 2008 1:28 pm

hi
ok well after 3 weeks of trying i finally got appointment with doc today she has upped my co-codomol to 30mg from 8mg i also told her that i had joined this group and was getting support and information gave her some names of fibro meds that id read about on here so she is going to look into that and i told her about guys hospital have fibro clinic but she seemed doubtful id get referred there but she is sending me bk to the hosipital to see a rheumatologist i told her everyone ive spoken to is under a consultant why am i not?

so we shall see how these meds work and how quick i can get bk to the hosp and keep u updated
thanks you for all ur support

cat x
Be the kind of woman that when your feet hit
the ground each morning the devil says,
"OH GOD, SHE'S UP"! .
csevern
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Posts: 154
Joined: Sun Aug 24, 2008 7:15 pm
Location: lincolnshire

Postby LinzWorld » Tue Sep 09, 2008 5:52 pm

Tell your GP that you can choose to go to Guys under the NHS Choose and Book system updates. A lot of GPs don't realise that the system has changed - you can now opt for any hospital in th country!
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Postby csevern » Tue Sep 09, 2008 7:55 pm

oh really? i didnt realise that either lol many thanks linzi i appreciate that

cat
Be the kind of woman that when your feet hit
the ground each morning the devil says,
"OH GOD, SHE'S UP"! .
csevern
UKFM Member
 
Posts: 154
Joined: Sun Aug 24, 2008 7:15 pm
Location: lincolnshire

sienna

Postby csevern » Tue Sep 09, 2008 7:57 pm

hi hunniiiiiiii ss didnt click it was you lol thanks hun xxxx

cat
Be the kind of woman that when your feet hit
the ground each morning the devil says,
"OH GOD, SHE'S UP"! .
csevern
UKFM Member
 
Posts: 154
Joined: Sun Aug 24, 2008 7:15 pm
Location: lincolnshire


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