Physio at Pain Clinic appointment

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Physio at Pain Clinic appointment

Postby Zia2014 » Wed Dec 17, 2014 2:36 pm

Hmm...I just had my Physio (Pain Clinic) appointment. Was not impressed. She didn't seem to be very sympathetic to be shabby treatment so far, insisted that the nurse specialist would not have told me she was doing a referral to hydro (but she did cos I wrote it down!).

She offered me no help regarding aids (for hand problems etc) so that means I have tried everyone and not got anywhere with that. Aids look really expensive so I doubt I can afford to get them, so I have come to a dead end on that front. She did say I could try a moulded handle walking stick but was rather vague and didn't seem to know about it, which is weird because everyone has told me to speak to her!

She told me to try yoga, which I read was not good for people with balance problems (yes) and dodgy knees (yes). But she told me to go anyway.

She told me I should carry on with Tai Chi which I will do, but hopefully find a class in the community as getting to that site in the evenings is a pain.

She has now referred me to hydro but obviously there is a waiting list, and she didn't seem bothered or very apologetic about the 3 week delay in sending me a letter asking me to call for an appointment! So my hydro is now of course delayed. And it's during the day, so I will have to see if I get the job what I do, I think they'll be flexible but it's all frustrating. Anyway I have said my piece and do not want to complain because of the stress.

She has in the meantime given me some exercises I can do in the pool, it's not as hot as the hydro one (35 degrees!) but at least it's something I can get on with myself.

She said they didn't do physio in the pain clinic (what!!!!!) so I have to go back to my GP for that. Again. Sigh.

I asked about Massage Therapy which a friend mentioned yesterday, and she said I would have to get that privately but it's the same as normal massage?? Which is not my understanding but there you go, I'll look for that myself.

She also suggested a Tens machine, but didn't offer me one so I guess I have to get that myself?? I know my mum has one so I'll see if I can borrow it from her.

She thought the nurse specialist had talked me through relaxation techniques and pacing, to which I said no and she was quite surprised. Good to know they know what each other are doing!! So I now have an appointment, and she got me in quickly because I had waited so long for this one, so I am going there on 2nd Jan at 9am (groan!). Hopefully not any snow or traffic but that early is going to kill me :(

So, mixed bag, but I don't feel she listened to me or was that helpful. I really thought they would offer me some physio but it seems they tell you to access things yourself if you want them, they won't offer much in-house at all. So CBT, physio, O/T services - all of which they have on staff - I have had to sort myself. Which I think is rubbish, tbh.
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Re: Physio at Pain Clinic appointment

Postby Theresa34 » Wed Dec 17, 2014 2:55 pm

My first appointment with the physio was just as rubbish. So much so, I decided that would be my first and last appointment. My rheumy nurse suggested tai chi or Pilates for fibro and definately not yoga as the twisty bendy movements would be bad for someone like us. I tried Pilates at home with great results. I haven't deepen it for a while which means my back pain has returned. Must find time for it again :-)
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: Physio at Pain Clinic appointment

Postby Zia2014 » Wed Dec 17, 2014 3:03 pm

Ah interesting! I wish I was still under Rheumo but they discharged me :roll:

I thought I had heard about yoga not being a good idea! The physio said I could just leave out those bits, but I was thinking that between them and my balance problems I probably wouldn't do anything! :oops: She was suggesting it mainly for the meditation I think, but I said that I was looking at classes solely on meditation and she had no idea about that.

I tried pilates years ago but again the balance was a big issue, I couldn't do it at all.
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Re: Physio at Pain Clinic appointment

Postby dazzleship » Wed Dec 17, 2014 6:39 pm

sorry you didn't have a very productive time Zia :hugs:

I'm sure I've seen the sort of walking sticks you are talking about with the molded hand grips - if you like I can find a link to them?

trying to be positive here (with me Pollyanna hat on :-) ), at least you've got some exercises you can do in your normal pool (hey it's better than nothing)

massage can help, I don't go to any places for it just hubby does it :) with our vibrating massage ball (sounds a bit iffy but it's not!) it really does help get the tight knots out of my muscles.

as for a TENS machine another good idea. I wouldn't expect them to provide it for you - my physiotherapist first suggested it to me and gave me one that they give out on loan to try (the only useful thing she did for me - the exercises she had me do just made me worse) and although I liked it I didn't like that particular one very much. so when I looked on AMazon for one of my own we found one that looked nice (important criteria!) less 'industrial looking' than the one I'd tried and it works really well. there are lots of different settings on it, some I've never tried at all, and when I use it I use whichever setting seems to feel best at that particular time.

this is the one I have: http://www.amazon.co.uk/TensCare-Touch-TENS-Relief-Machine/dp/B000QG7LLE/ref=sr_1_5?ie=UTF8&qid=1418838034&sr=8-5&keywords=tens

tis frustrating though when the level of help offered differes so much between areas.

good luck with your appointment on 2 Jan. :hugs: :-D
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Re: Physio at Pain Clinic appointment

Postby Zia2014 » Wed Dec 17, 2014 6:55 pm

Cheers dazzler!

If you know what you're looking for and can link to them that would be great thanks :) That looks like a good Tens machine too, I saw :crazy: at the price of some! I'll definitely try and borrow my mum's first if she'll let me (she uses it herself). I suppose I was expecting them to loan me one rather than buy me one! :-D

Yes the exercises were offered but she gave me the back ones which need a rail (no such thing in my pool) so she's going to send me the right ones out. She only did that cos I had a bit of a go about the incompetency of the appointments! (disclaimer: it was not a moan and I didn't use that word, I just pointed out calmly that it took them 3 weeks just to send me a letter. To which she apologised and then defended it!).

I guess I got what I wanted in terms of a hydro referral, although she only asked me if I swam then said she would refer me (so well worth waiting for the appointment then!!!). It's just disappointing about other stuff that I was waiting and waiting for only to find out I won't get it.
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Re: Physio at Pain Clinic appointment

Postby *Lisa* » Wed Dec 17, 2014 6:59 pm

NHS physiotherapy department in my area (not sure how many others but alot i guess!) do not fund or provide aids no more nor things like wrist supports etc. They also do not do any therapies like massage etc.

All they can do is suggest private therapies like massage, suggest what aids may help, give you some stretching exercises and talk about things like pilates etc which may also be of benefit. They just dont have the funding no more.

I have had to pay for my own treatments etc since i became ill 15 years ago! :shock: which is why i rely on my DLA or i'd be fluffed!
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: Physio at Pain Clinic appointment

Postby Zia2014 » Wed Dec 17, 2014 7:06 pm

Ugh, that sucks Lisa. I didn't realise that! I didn't get any stretching exercises :-?
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Re: Physio at Pain Clinic appointment

Postby dazzleship » Wed Dec 17, 2014 7:24 pm

Zia2014 wrote:Cheers dazzler!

If you know what you're looking for and can link to them that would be great thanks :)


amazon - for all your fibro needs :mrgreen:

I think it's this sort of thing you are thinking of?
http://www.amazon.co.uk/Anatomical-Marbled-Adjustable-Walking-Stick/dp/B00CJ0JE6K/ref=sr_1_2?ie=UTF8&qid=1418840303&sr=8-2&keywords=moulded+handle+walking+stick

http://www.amazon.co.uk/Homecraft-Contoured-Right-Walking-Stick/dp/B004XUL8E0/ref=sr_1_4?ie=UTF8&qid=1418840397&sr=8-4&keywords=moulded+handle+walking+stick

I've never tried these meself so can't offer any recommendation on whether they are good. but the handles are supposed to be more comfortable if you have trouble gripping.


although if you want to have a comfy handle and look funky at the same time, I would recommend these - we bought two of these for when I'm out in wheelchair and just need to walk for short distances (cos they fold up they are easier to take with wheelchair than my crutches). I've only used them once so far but they are very comfy to grip. and they glow in the dark :-D
http://www.amazon.co.uk/Folding-Height-Adjustable-Walking-Silicone/dp/B0056FTASM/ref=sr_1_5?ie=UTF8&qid=1418840541&sr=8-5&keywords=gel+handle+folding+walking+stick
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Re: Physio at Pain Clinic appointment

Postby Zia2014 » Wed Dec 17, 2014 7:27 pm

Ooh thanks, will check those out :)
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Re: Physio at Pain Clinic appointment

Postby Theresa34 » Fri Dec 19, 2014 5:14 pm

Zia2014 wrote:Ah interesting! I wish I was still under Rheumo but they discharged me :roll:

I thought I had heard about yoga not being a good idea! The physio said I could just leave out those bits, but I was thinking that between them and my balance problems I probably wouldn't do anything! :oops: She was suggesting it mainly for the meditation I think, but I said that I was looking at classes solely on meditation and she had no idea about that.

I tried pilates years ago but again the balance was a big issue, I couldn't do it at all.


I don't have the best balance in the world but the specific workout I've done isnt difficult. The only balancing part is when I'm on my knees and stretching out.
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: Physio at Pain Clinic appointment

Postby Zia2014 » Mon Dec 22, 2014 11:34 am

Theresa34 wrote:
Zia2014 wrote:Ah interesting! I wish I was still under Rheumo but they discharged me :roll:

I thought I had heard about yoga not being a good idea! The physio said I could just leave out those bits, but I was thinking that between them and my balance problems I probably wouldn't do anything! :oops: She was suggesting it mainly for the meditation I think, but I said that I was looking at classes solely on meditation and she had no idea about that.

I tried pilates years ago but again the balance was a big issue, I couldn't do it at all.


I don't have the best balance in the world but the specific workout I've done isnt difficult. The only balancing part is when I'm on my knees and stretching out.


Thanks, I've found a meditation class now so will try that first.
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