Trigger points. Do I have fibro?

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Trigger points. Do I have fibro?

Postby Genevieve489 » Sat Mar 07, 2015 4:52 pm

I saw a rheumatologist for the first time last week. She pressed the front of my chest - very painful - and also the inside of my knees - again, very painful.

She then tested my range of movement, raised my arm and pressed into my elbow joint from the back (her fingers were either side of the joint) and I felt nothing. However, I know that the sides of my elbows (on the inside) are very tender, but she didn't press that part. Then she worked her way down my spine - again everything was fine. My shoulders were a little tender, but not the way my knees and chest were.

She concluded that I have 'signs of fibromyalgia', but my main problem was osteoarthritis and hip bursitis, for which I am having steroid injections next week. She has also referred me for physiotherapy. Fair enough. But I'm now wondering if I've got fibro at all. How have others reacted to the pressing of these trigger points. And how was your elbow joint assessed?
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Re: Trigger points. Do I have fibro?

Postby Zia2014 » Sat Mar 07, 2015 6:15 pm

The trigger point test isn't used as much anymore to diagnose fibro. My GP did it rather than my rheumo, although he didn't press on my hips/knees/elbows at all.

Tbh my pain is mainly around my upper back/neck/shoulders and my knees, whereas my hips aren't always that sore, so I don't put that much faith in the trigger point test because it depends what day you have it as to where your pain is at that moment.
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Re: Trigger points. Do I have fibro?

Postby carolad » Sat Mar 07, 2015 9:18 pm

They are actually called 'tender points' rather than trigger points...trigger points will give referred pain in a different area. But as Zia says, the tender point test isn't always used in diagnosis now. My Rheumatologist examined my back but didn't press on any of the other points.

I can really identify with your confusion about whether or not you have fibro. I have scoliosis and a twisted pelvis so I think that is the source of my pain because my problems are all spine related - thoracic and lumbar spine, hips, shoulder and neck. So I am always doubting my fibro diagnosis. I do have some sort of chronic fatigue thing going on as well as having pain but I just don't know if it is fibro.... Unfortunately though there is no test to say you definitely have it or you don't.

But in some ways, it makes no difference if you have the label of fibro or not. You have symptoms so the thing to do is to try and manage your symptoms as best you can. Hopefully the injections and physio will help you :-)
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Re: Trigger points. Do I have fibro?

Postby SHARON B » Wed Jun 03, 2015 8:31 pm

When I saw Rheumatologist he wasn't very chatty at all, went about checking my tender points, I handed him my list of ailments, and a diary I kept of my pain for the previous month etc and he just mutted fibromyalgia and he would send my care plan to the doctors. 2 weeks later I took myself of to the doctors to find out what the care plan was and it was the usual medication and she said did the the rhuemotologist mention to me what I had, and I said he mentioned fibro, and she said yes symptoms of. Since then I have requested my notes, I am not happy with what they write about you. On mine specialist had put I had 14 tender points, but was overweight (which I do not deny) but he never spoke to me about that. My own doctor that referred me,had wrote that I have only just mentioned the pain, when In fact I have been back and forth to doctors with all sorts, and no one put 2 and 2 together but me. And they put about the fact that I do not like to take medication. They do not put why I do not like to take a lot of medication. Such as my severe IBS and medication apart from codeine phophate make me run to the loo even more than I do already, the pain I get with medication, and other side effects. They just see it as I am not willing to help myself. With out codeine I would not be able to leave house, I have tried many amounts of other tablets and they have failed in the end.
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Re: Trigger points. Do I have fibro?

Postby SchroedingersCat » Thu Jun 04, 2015 8:18 am

Sharon, why on earth is not wanting to take medication a bad thing?! I don't get that. The rheumatologist I saw agreed with my opinion that medication is a last resort, due to the sheer weight of side effects from those medications normally prescribed to mask the symptoms of fibro. Why is the medical profession so damned divided on fibro? *headdesk*
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Re: Trigger points. Do I have fibro?

Postby Genevieve489 » Thu Jun 04, 2015 2:42 pm

Hi Sharon. I think I would be very tempted to go back to the GP and discuss this more fully and ask that your records be amended to clarify things. I agree that simply saying you don't like to take medication can be read that you don't want to help yourself, which is, obviously, not the case.

Maybe you could write out a few sentences making things clearer and ask the GP if these can be added to your notes?

I hope you get things sorted.
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Re: Trigger points. Do I have fibro?

Postby carolad » Thu Jun 04, 2015 3:27 pm

Aaarrgh, b****y doctors!! I had a similar experience with my Rheumatologist. He waffled on about 'non-restorative sleep', mentioned 'rheumatism' and fibromyalgia and then told me I had scoliosis (which I knew). I was left completely baffled by his ramblings and had to go to my GP to find out I had a 'probable' diagnosis of fibromyalgia. I also had to get a copy of his letters for my Occupational Health Doctor and they were the biggest load of rubbish ever!! He seemed to think my main problem was Raynaud's Syndrome...but that was only in my notes because my GP thought it could be an indication of lupus. Nothing else he wrote bore any resemblance to what I said to him. So I wrote a (quite grumpy) letter to him, correcting all his mistakes and sent a copy of the letter to my GP and my OH Doctor. I would say to anyone seeing a consultant to get copies of the letters they send to your GP. At least if you know what is being said, you have a chance to correct it.

Maybe one day they will invent doctors with good listening skills ;-)
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