NHS - long term support/Are treatments intensive enough???

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NHS - long term support/Are treatments intensive enough???

Postby sjc » Sun Apr 24, 2016 10:50 pm

Hi all,

Not been on here for a very long time? How are you all, despite the FM and life issues? Me still suffering with FM as always and having to shove a hot water bottle on my back - its that pain that feels tight and knawing.

Anway, I probadly asked this before...but cannot remember as it's been a long time - but do you feel that the NHS provide long enough community and NHS treatments. And do you feel that you medical support/treatments are long enough for someone with FM.

Personally, I feel that at the moment, and from my personal experience, I have only received very very basic physio/consultant/advice on the NHS, and it has not been long enough to say that most people with FM have it long term.

And as you know, some ppl with FM have it really severe to the point where they are bed bound or have to stop work, etc...and personally I don't feel that "some" doctors and therapies provide adequate support.

I don't want to bitch about the NHS, and I know some people may only want short term/basic support and it suits them - I know everyone is different, but personally in my experience, I don't feel that FM get the recognition medically, and it baffles me.

What do you guys think? I know that the NHS are abit tight on money, and struggling for cash - so I appreciate it is not easy for the NHS...but I just wondered what you guys think on how the NHS overall treats FM patients, and what would you like the NHS to treat you?

If you had control, how would you like to be supported - it could be anything, from better or quicker diagnosis, better medication options, better advice, longer GP appointments, your own personal health budgets to spend on your choice of therapies, etc?

Sorry to sound clinical here, but just want to know what would make a difference to you....

Love to hear your thoughts on how long should therapies be? If you could get any therapy on the NHS what would it be? How long do you think you should have your therapy or specialist on the NHS, if it was paid by the NHS? How intensive should therapies be each week?

Take care folks, and hope you are all OK...

:-D :-D :-D :-D :-D :-D
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