Could this be the answer?

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Could this be the answer?

Postby DarwinGirl » Mon Jun 13, 2016 4:48 pm

I'm from Sussex and 25 years old.
I know this type of forum in no way replaces qualified medical expertise but I would like general opinions....I can't take many more gp visits where we both sit there and say my symptoms are strange and I leave.

For the last two years I've been struggling with pain. It starts as almost a tingly itchy burning sensation in my skin and if I ignore it and keep moving it gets so intense I can no longer stand. I've had to crawl home before and at one point was using lampposts to lean against after walking 200m.
I dont know if this fits FBM as it's in my skin. It's in small patches and moves around constantly. It's triggered by anything but heat and vibration are the worst and I cannot exercise at all really.
I occsssionally get pain in my bones like the middle of my forearm but that's fairly few and far between.
I dont sleep well. I wake a minimum of two time a night for no reason and so I rarely feel awake but sometimes when I feel alert I will suddenly feel a crashing wave and be so tired I want to cry. My brain gets cloudy and I feel like its wading through mollasses. My short term memory gets poor too, then comes right back.
I have no idea of its relevant but I also have tinnitus in both years (that's been there for 10 years +)
Does this sound right? I have no idea about tender points but I've seen dermatologists and neurologists and had most of my blood taken haha but all tests have been normal.
Gabapentin has been a lifesaver but the side effects are pretty intense too.

Apologies for the over share but I just want an answer (and so does my work)

Thanks for any advice and I hope you're all having good symptom days
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Re: Could this be the answer?

Postby DarwinGirl » Mon Jun 13, 2016 4:51 pm

Also, today (as regularly happens) I feel as weak as a kitten! Holding a full cup of tea felt a little precarious
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Re: Could this be the answer?

Postby FluppyPuffy » Mon Jun 13, 2016 5:14 pm

:welcome: to our little FibroFamily DarwinGirl :cow-wave: :cow-wave: :cow-wave:

Sorry to hear what you are juggling with at the moment xx I more than understand why you are wanting some answers, and also whyyour employer is wanting to know what it is that affects you xx It is possible that what you have described could be related to FM as the symptoms and problems you have mentioned have been mentioned in many posts and topics across the boards xx

Have you mentioned FM to your GP??? If not, it may be something to consider doing. Armed with info from a reliable source, such as NHS Choices ~ Fibromyalgia details of the things which affect you, and how it could tie in to FM, and see what is said. If your GP is unsure, or seems somewhat non~commital, then you could ask for a referral to a Rheumatologist, or other suitable specialist that deals with such conditions to see if you can get any further along the path to find out what it is that affects you

This linky should explain what is involved with the Tender Point Test which can be used as part of the dx'ing process if FM is being considered xx
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Re: Could this be the answer?

Postby DarwinGirl » Mon Jun 13, 2016 7:17 pm

Hi fluppypuffy, thanks for the quick reply.

I have an appointment on Thursday and I plan to mention it then.

Honestly I think I'm relatively lucky in some respects because I haven't ever been unable to go to work although I did get sent home once their major issue is that I can't complete a running test they require because I can't run for really any length of time.

Thanks for the info, I think some of them match up and Im laughing as I write this but I'm really hoping this is the answer as it's driving me up the wall :crazy:

Half the time I wish it was something that required a cast or equivalent. I've had line managers tell me its in my head and in their opinion I'm absolutely fine!
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