London Hospital Inpatient Treatment?

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London Hospital Inpatient Treatment?

Postby Withane » Mon Jul 06, 2009 4:10 pm

Hi Folks :wave:

I saw my Rheumatologist who is referring me back to my GP to refer on to another service, no more resource in that Acute Trust!

Basically he said there are 4 things to focus on with regards to treating FM;

[*] Pain - Which for me, is currently being managed by pain relief medication (Morphine) and I have been referred to pain clinic who wish to commence other treatments too
[*] Sleep - Amitryptilene is the drug I am on - which does induce sleep, all be it non refreshing
[*] Aerobic Exercise - advised to increase, increase, increase (Even if that causes pain!) And
[*] Thinking/Beliefs - need to change my beliefs about FM and the symptoms. Consultant also has recommended I access CBT (Hence referral back to my GP who may have some budget for this)

BUT what interested me was that he said depending on the PCT and area, there are different approaches AND in London there is one Trust that offer an in-patient service for FM and it has proven very successful.

I have subsequently gone back and tried to find out which hospital and was told to ask a FM Group! :dunno:

Does anyone know what this service is or how it works?

Thanks

Withane
Moving into acceptance about having FM - but that doesn't mean I like it!
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Re: London Hospital Inpatient Treatment?

Postby shazq » Mon Jul 06, 2009 7:05 pm

Sorry i have not heard of an in-patient treatment.

I go on a course of living with pain at my local hospital, that runs for 8 weeks.

Maybe someone else might have heard of one.
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Re: London Hospital Inpatient Treatment?

Postby Withane » Tue Jul 07, 2009 7:55 am

Hi Shaz

The course that you are on sounds interesting, :roll: do you have any more details about that? Does it help?

TC Eh?

Withane xx
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Re: London Hospital Inpatient Treatment?

Postby shazq » Tue Jul 07, 2009 9:58 am

HI
Yes it is interesting, my Rheumy put me forward for it, they run the course every 8 weeks.
Each visit we talk about different things.
I have a thread up :- living with pain course, i put a list of what we will cover each week.

It is good to meet other people who are going through the same as you.

Last week and tomorrow we are in the gym, they show you just gentle exercises and tomorrow it will be stretches.But they don't force you to do it, they show you how to use equipment then you have a go if you want to.

We are learning how to pace ourselves, just do little bits at a time.

To be honest with you i really did not want to go, i thought they would tell us it is all in our heads.....HOW wrong was i, they have told us how to accept it, and it is a chronic condition.
It is run by a Physio and a Psychologist.
They are both really nice, any problems we are having they will stop and answer your questions.
I have even made friends, which is a big bonus.

Maybe go have a word with your GP/Rheumy and find out if they run that type of course in your area.
Good luck. keep us updated.
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Re: London Hospital Inpatient Treatment?

Postby LinzWorld » Sun Jul 26, 2009 6:48 am

It is the INPUT course at St Thomas'. Some of the consultants are not very knowledgeable about Fibro but the physiotherapists and psychologists seem to make an effort to educate themselves about the condition.

It is non-medication focused though and isn't Fibro specific, so don't expect a fully rounded course there. But for non-medication pain management techniques and strategies, some people find it great.
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Re: London Hospital Inpatient Treatment?

Postby GeminiGirl » Thu Aug 06, 2009 11:26 am

Hi Linz,

Thanks for that.How do you get on the INPUT course?
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Re: London Hospital Inpatient Treatment?

Postby LinzWorld » Fri Aug 28, 2009 12:05 pm

Referral from your GP I belive. For clarification, INPUT is the in-patient pain management course - it is not a specialist Fibro course.
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Re: London Hospital Inpatient Treatment?

Postby GeminiGirl » Tue Sep 01, 2009 8:41 pm

Thanks Linzworld.

Thinking of asking my GP to refer me to this course - have many others been on the INPUT course and if so waht did you think of it?
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Re: London Hospital Inpatient Treatment?

Postby smiler22 » Wed Sep 02, 2009 12:56 am

sorry gemini would be to far for me to travel so would probably need four weeks there to recouperate nefore starting the in treatment so i have t tried it. but im sure someoneon here may have or know of someone who has. xx
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Re: London Hospital Inpatient Treatment?

Postby winterguardmumma » Tue Feb 16, 2010 6:36 pm

Hi,
Is this the Royal London by any chance?

If so i was a patient there and worked there for many years. I'm now a patient at Guys and Tommys and i think they are so much better. :D
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Re: London Hospital Inpatient Treatment?

Postby Mr.A » Fri Feb 19, 2010 12:54 pm

Withane wrote:[*] Thinking/Beliefs - need to change my beliefs about FM and the symptoms. Consultant also has recommended I access CBT (Hence referral back to my GP who may have some budget for this)


I very curious Withane, what are your current beliefs on Fibro and the symptoms?
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Re: London Hospital Inpatient Treatment?

Postby Withane » Mon Feb 22, 2010 10:49 am

Hi Mr A

Don't think I hold any odd beliefs about Fibro or it's symptoms..

FM for me is managing pain, fatigue, unrefreshing sleep, memory problems (fog), depression, extremes of cold (or hot!), pins and needles, numbness, mobility problems, low energy reserves, poor attention span and then all the associated side effects of drugs....

Deep joy!!

I believe FM is manageable - it's just how? When stress is added to the mix - management becomes MORE difficult.

Have you been to hospital in London?

Withane
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