Positive experience

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Positive experience

Postby juliem » Thu Jul 30, 2009 12:28 pm

Thought I would just share my positive experience this morning. I was diagnosed a year ago but was feeling very overwhelmed. My GP sympathetic but not much use. Sent to local specialist rheumy. He checked me over agin and said he definitely agreed I had it. Was very matter of fact. He said he considered fibro to be as serious and dibillitating as rheumotoid arthritis. The battle is we do not look ill so the wider public just don't get it. Gave me a talk about accepting I was ill and asking for help when needed. He also really took on board my horror of medicine (grew up with pill popping dad-long story!) . Said I hadn't tried ami for long enough so said he would give quite detailed recommendations to my Dr. Thought CBH would be good.

Also said a previous diagnosis of OA a few years ago and an inflamed bursar was probably more likely fibro. Said I do have OA but believes I have had Fibro for a good few years.

Anyway not that he really said anything new just he talked to me as if I was a competent adult not an idiot. He did say that finding relief is hard but was positive. He will write a letter to my GP and send me a copy that then I can show my family.

So still in pain still tired but at least I know I am ill and it is not all in my mind.

Julie
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Re: Positive experience

Postby velvet » Thu Jul 30, 2009 12:48 pm

excellant news and glad to hear you had such a positive experience.
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Re: Positive experience

Postby shazq » Thu Jul 30, 2009 2:13 pm

Its good to know you have a good GP & Rheumy on your side.
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Re: Positive experience

Postby Angel777 » Wed Sep 02, 2009 3:41 pm

Had a good experience at new Gp patient appt with nurse. They recognise fibro as a chronic condition and insist on regular blood tests, and getting to know the Gp so he can help in times of need, I was told to make sure I ask for help when I flare as it is there , when I need care , it is there . I went apprehensive as in past experiences you usually get told you are overweight etc and then go on to explain you do absolutely everything you can, despite my expectation of the same , I really felt so supported.

So support is out there in pockets and I am really getting the feeling now after today ,that Fibro as a Central nervous system disease is gradually being recognised as such now and taken seriously, as I have moved house 400 miles and didn't expect this much support.
Diagnosed with FM 2007 /Also have Osteoarthritis which I have had for many years .
Looking to connect with fellow FM people near me as well as making friends and having support from this forum .
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Re: Positive experience

Postby *Lisa* » Wed Sep 02, 2009 5:07 pm

Great Julie :woot:

Nice to hear a positive story & am glad there is a kind and caring doctor out there...

I feel it makes such a huge difference to the way you live with FM if you have an understanding team of professionals behind you ....
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: Positive experience

Postby gillshutt » Wed Sep 02, 2009 7:25 pm

Nice one Julie, glad there are some good guys out there. :D
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