Second opinion?

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Second opinion?

Postby Sophiex » Tue Sep 08, 2009 2:19 pm

My symptoms only really started about 4 months ago. I saw my GP last month who said it sounds like Fibromyalgia and referred me to a rheumatologist. I have private cover, so it was quicker that way. The rhematologist was a very nice man but blabbed on and on for an HOUR appt without really saying anything. I got a letter saying he suggests swimming to improve general fitness. There's nothing wrong with my fitness and it wasn't even discussed in the appt! Besides, I used to be very active - going to the gym, regular ballet and other dance classes. He told my GP that I needed treatment for a fungal nail infection before I can go swimming. I knew it wasn't that because I've seen 2 chiropodists who've said it's due to trauma and a previous history of malnutrition. I've since had 2 appts with 2 different appts who agree! :evil: He also said I shouldn't have hydrotherapy because it's in a hospital-based environment and it's inappropriate. However, my physio (I've been having physio because of an ankle injury) recommends hydro but I can't get covered privately because of what the dr wrote in the letter. Obviously, as my pain developed, I told my physio and she's been treating my pain and has given me stretching exercises. The rheumatologist completely brushed off my injury as if it was nothing but it was a bad injury - torn ligaments, ankle dislocation, I've seen an orthapaedic surgeon and had cortisone injections, I still wear a brace 15 months later etc etc. I didn't appreciate being made to feel like a hypochonrdiac. The only thing he did say was that I have hypermobility syndrome but I'm not even sure I do! My physio agrees I have some elements of it but I don't think it's the cause of my pain. Is it worth getting a second opinion? :dunno:
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Re: Second opinion?

Postby LinzWorld » Tue Sep 08, 2009 2:22 pm

Yes, definitely. Hopefully your insurance will cover you for that?

Prof Grahame is probably the top HMS guy. There's details on hypermobility.org. Hypermobility is a risk factor for getting Fibro and Hypermobility Syndrome can be an ongoing contributory factor.

Prof Davies is probably the best doctor to see for a second opinion on the Fibro.
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Re: Second opinion?

Postby Sophiex » Tue Sep 08, 2009 4:01 pm

Thank you very much for that info. :)

If I'm honest, I feel like a total hypochondriac. :oops: My hypermobility (if I do have it at all......) is mild and I already have been told I have Fibro by my GP, so is worth having it confirmed again? Sorry, I'm just feeling like a drama queen. :?
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Re: Second opinion?

Postby LinzWorld » Tue Sep 08, 2009 4:12 pm

I would talk to your GP. The fact they they referred you in the first place suggests that they would like some advice and support on your healthcare from someone more specialised. If the rheumy you saw didn't provide this, your GP is probably still wanting some advice. They may not be aware that although rheumatologists typically know how to diagnose Fibro, you are likely to need to someone more specialised for treatment advice.

Where in the UK are you?
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Re: Second opinion?

Postby Sophiex » Tue Sep 08, 2009 6:31 pm

Thanks for your posts. I'm in Hertfordshire.
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Re: Second opinion?

Postby *Lisa* » Tue Sep 08, 2009 9:14 pm

:wave:

Im in Herts, North Herts if i can help just let me know :wink:
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: Second opinion?

Postby LinzWorld » Wed Sep 09, 2009 11:17 am

So LOndon would be possiblke then I assume?

Actually Prof Grahame is based in Herts...can't remember where atm though. Having a fog day!
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