TERM

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TERM

Postby Ragdoll » Fri Sep 11, 2009 8:07 am

Do doctors here in the UK work with the TERM Model (The Extended Reattribution and Management Model) part of the developmentteam was Linda Gask from the University of Manchester?

I wont say more right now,but I would be interested to hear what is going on here?

:grouphug:

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Re: TERM

Postby Ragdoll » Fri Sep 11, 2009 10:26 am

Just to give an idea here is a link which explains the TERM Model and the differences between the english model and the danish model.

https://www.sundhed.dk/Fil.ashx?id=2700 ... _model.pdf

The basic idea is that all physical symptoms without medical cause must be somatic (psycological).
This model of treatment have prevented many patients in Denmark, patient with Fibromyalgia, CFF, etc. in getting appropriate treatment, and patients of these usually have a lot of trouble being recognized by their doctors as being ill.

If you read the document you will see how Danish GPs are encouraged to treat their patients.

:grouphug:

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Re: TERM

Postby gillshutt » Fri Sep 11, 2009 10:47 am

From what I can gather, the model has been extended to include non-psychological illnesses. I know there's a report on it being used for ME. It's not being used to improve the way gp's treat patients with unexplained illnesses.
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Re: TERM

Postby dollydaydream » Fri Sep 11, 2009 12:08 pm

That sort of thing really gets my goat. It's classifications like 'we don't know what it is , so you must be imagining it' which not only prevent patients accessing treatment, but it also deters investment in research and development.

No doubt if this was the model used, the raised levels of Substance P would never even have been looked for.

I had clinical depression following the traumatic birth of my daughter. I knew there was something wrong, so did my family, but the gp recomended i was sterilised. My daughter was born in Feb, I saw the gynae in July. She bumped people off her list and admitted me for an emergency d&c the next morning as I still had placenta inside me. It was only the Gp fobbing me off with anti-biotics, anti-fungals, anti-amoebacides, anti-helmitics et al , that I didn't die. The letter he sent to the gynae was that I was an ideal candidate for sterilisation as I was pulling my family into my fantasies about my ill health. The gynae was livid. Physical symptoms can be explained if you look hard enough and have the knowledge.

THe problem is that doctors have little time and a blind spot with their ego. They don't like admitting that they 'do not know' and instead you usually get told that you 'have a virus'. I hope to god this model never becomes NHS policy. Once you have been given a label, it's hard to shake it off. What on earth happens when people in mental health institutions, or even with learning needs, do when they get seriously ill, really bothers me.
Sending you love and light

Sarah xxx
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Re: TERM

Postby smiler22 » Fri Sep 11, 2009 4:53 pm

ive never heard of term but it sounds horrific. like you said what happens for someone who has learning difficulties. well hopefully most of them have good families that will kep pushing for treatment etc. lets hope so.

i also had an incident in hospital. i had a big op on my arm and had to stay overnight. i hadnt got a diagnosis then of fibro. but had prewarned them that i couldnt lay down for long or sit stand for long as due to chronic pain and fatigue and the possible chance of having fm......
well the day time couldnt of been more lovely. but when it came to night and change of staff. i couldnt believe it. i couldnt sleep because of the pain i was in with baody and op. had a lady crying opposite me who needed to ask for diazepam for anxiety which she was prescribed. anyway i asked for more painkillers, as it was four hours after the last lot. to be told i couldnt have anymore till morning as i should be asleep and when i asked for something to help me sleep. they said well after 12midnight we are not allowed to give out sleeping tablets. (this was 11.50pm......) which i pointed out. but they said by the time they had it signed for it would be over the time. i explained again that i was in agony and just wanted to sleep.
when the nurses went out of the bay i overheard one say to another, well they are both doing this for attention. i was furious but kept my calm as the othe rpatients by this time had fallen asleep. so i didnt get to sleep until 6am, in whcih they came round at 7am to take myvitals and give me breakfast. when it was time that i eventually got discharged i said to the day nurse well it proves i didnt do this for attention did i. an di told her what had happened overnight and she was disgusted.........
so it just shows that if people dont believe you reallyhave this fm or other, the way they treat you that you are either attention seeking or its in your head. :banghead:
live life to the full as life is what you make itxx
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Re: TERM

Postby Ragdoll » Fri Sep 11, 2009 5:42 pm

Yes the TERM Model was sent to us directly from hell, I am sure. The Danish version, was furthered on the British model by a Danish Psychiatrist named Per Fink. However as it is now becoming more and more evident that Fibro has organic causes, and it is only a matter of time before a bloodtest, the APA Assay test, can be used for diagnosing Fibro. He has now started talking about a new illness, BDD (Bodily Distress Disorder) "....as it is called by scientists abroad" (qoute Per Fink).
I looked into this BDD, and loe and behold, first of all I could only find Danish pages referring to it, and furthermore the engineer behind it was no other than Per Fink.
The man is out to create a name for himself in medical history, determined that unexplained symptoms must be of emotional origin. He wants this so badly that he does not care who he hurts in the process.
ANd he continues to add to the prejucedice held by many, inclusive medical staff, that Fibro is an 'all in your head' condition.

How do GPs and specialists in Britain generally view Fibromyalgia. I am asking as I will probably be moving to England in about 18 month time.

:grouphug:

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Re: TERM

Postby velvet » Fri Sep 11, 2009 5:52 pm

from what i personally have seen there is a huge variation in how GPs and specialists see FM. i have had everything from GPs between "the best thing you can do is go straight back to work" and the doc i have now who believes in FM, in an organic cause, and whilst acknowledging he is not an expert happily uses resources i provide him and with whom i manage the condition in partnership.

i have only seen one expert who diagnosed me but i have heard of a small number of specialists who are totally brilliant and an unfortunetly slightly larger number who still take the "its all in the head" approach with most falling somewhere in the middle and treating it as best they can.

i think the biggest step forward in this country would be introduction of standard multi discapline teams for FM so care would be shared amongst doctors, specialist nurses, physios etc as standard.
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Re: TERM

Postby gillshutt » Sat Sep 12, 2009 7:13 am

Maybe we should come up with some names for per Fink if he's so up on making things up :evil:

I suggest, if he's so up on what we are talking about over here, he looks up the word 'fink' in English... http://www.thefreedictionary.com/fink
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Re: TERM

Postby Ragdoll » Sat Sep 12, 2009 10:43 am

LMAO @ Gillshutt :clap:

Well I supposed I wanted to write about this, as GPs all over Denmark has been trained in this, which means that a lot of Fibro sufferers as well as others are being fobbed off in the healthcare system.

If a doctor starts talking about that you have BDD (bodily distress disorder), be sure he does not take your symptoms seriously, and he is telleing you it is all in your head. Then he has defenately been to a seminar in TERM, and you might as well change your doctor right away, as the more you try to convince him that your symptoms are real, the more he will think its in your head.

I look forward to the APA Assay test becoming widely available.
http://www.autoimmune.com/APASciSum.pdf

Hope you all have a good weekend

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