dx unstable mind

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dx unstable mind

Postby samew » Fri Sep 11, 2009 7:51 pm

Hi

Got to see my gp today, after rhuemy wouldnt offer any treatment. I tried to explain that i was finding it incresingly difficult to continue in this pain and often felt suicidal, to reitterate how desperate i was i told him that unless they could find meds to relieve my symptoms i would end up in Switzerland for assisted suicide, he got angry and threatened to section me under the mental health act, what a nasty man! kept clock watching the whole time and eventually sent me packing with Tramadol, keeping my fingers crossed cos i would love to be on this earth long term to see my grandchildren grow up but there is only so much pain a girl can take :shock:
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Re: dx unstable mind

Postby velvet » Fri Sep 11, 2009 8:20 pm

1) CHANGE GP NOW

2) complain to the practice manager

3) ask for referal to rheumy or neurologist willing to diagnose and treat fibro.

other than gentle hugs and i am so sorry you have had to find such wallies (ok i wanted to use a different word but the mods wouldnt like it)
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Re: dx unstable mind

Postby shazq » Fri Sep 11, 2009 9:03 pm

Sorry to hear that.

Did the Rheumy say why they would not treat you?

I would ask your GP to send you to a different Rheumy if you are not happy with that one.

Ask your GP for stronger meds if Tramadol does not work for you.

Good luck, hope you get it sorted.
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Re: dx unstable mind

Postby gillshutt » Sat Sep 12, 2009 7:09 am

velvet wrote:1) CHANGE GP NOW

2) complain to the practice manager

3) ask for referal to rheumy or neurologist willing to diagnose and treat fibro.

other than gentle hugs and i am so sorry you have had to find such wallies (ok i wanted to use a different word but the mods wouldnt like it)


I couldn't agree more this man shouldn't be in practice :evil: :evil:
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Re: dx unstable mind

Postby LinzWorld » Sat Sep 12, 2009 1:38 pm

To be fair, going in and saying you'll go to Dignitas was not the way to get them to help. If you are really suicidal, they won't give you many meds in case you take them all at once! And if you're really suicidal, then sectioning you is a legitamate option.

Can you ask for a referral to a Fibro specialist, rather than a general rheumy?
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Re: dx unstable mind

Postby samew » Sun Sep 13, 2009 12:15 pm

Hi

Thanks for the positive comments, in fairness to the member who had another take on it, cant you see that i am at my wits end and this was to try and make them see how i feel about my life, sectioning me will not change my mind, i have a right as a human being to choose my own destiny that does not make me mad.

Sam
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Re: dx unstable mind

Postby dollydaydream » Sun Sep 13, 2009 2:09 pm

IMO Linz has a valid point. I understand you are at your wits end, but you then re-itereated that you have a right to that choice. I do not condone the doctors anger with you, but neither do I think that sending you off with a load of tramadol is appropriate either, given your statement and subsequent restatement.

I do understand where you are coming from, and I have myself admitted that if it would get me out of going back to work at that boody awful place I work at, I would cheerfully arrange to have an accident with a carving knife and a chopping block. Hopefully nothing fatal, but significant enough to stop me going back a while longer.

Have I ever thought I would be better if I ended it all, yes - but, I know it is something I would never do. I may be better off dead and out of this misery, but my children would be traumatised, possibly for life, that mummy chose to put an end to the time with them for her own interest. I couldn't possibly even entertain putting them through the guilt, anxiety and depression for the rest of their lives. The only benefit I get from this illness is that I am at home, seeing them when they come home from school, hearing about that xxx did to xxxx, how it was resolved, and helping them with the little things I can help them with - just listening to them.

My best friend, still mourns the loss of her father, when she was 10 from cancer. I moan about my parents, but at least I have them to moan about. How she would be if he, and her mother who later died of cancer, had chosen not to fight to spend whatever time thy had left with her, I don't know.

I may be humiliated, embarrassed, and totally uncomfortable about being pushed around in my wheelchair by my children. But if it gets me a day out with them, that they will remember and tell their children about - pushing mother round the renaissance fair etc, then it is done, my children are worth it.

Please don't think tht we don't understand. We do. But we also know that it is not the answer. You do seem to be having a terrible time of it, so I am sending you a hug :hugs:
Sending you love and light

Sarah xxx
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Re: dx unstable mind

Postby velvet » Sun Sep 13, 2009 2:57 pm

from what i have read here samew is NOT saying they want to commit suidicide they are saying that they feel the lack of care treatment and support they are getting from their various medical attendants is making them feel pushed towards suicide as the only option and that is NOT what they want.

to me they are saying "look i am being pushed to a place i do not want to be, please stop pushing and help me"

anyone reading this forum KNOWS that there are treatments and therapies out there that can make this horrid condition not so much bearable as acceptable. can you imagine (or those that have been there can you remember) going repeatedly to your doctor with pain and recieving nothing to stop the pain, having a specialist say nope not going to do a thing.

it is something like being swept down a river that ends in a waterfall calling out to rescue teams and having them take no action - you dont want to be swept over the fall but can see no other way.

those of us with experience of this river need to tell the tricks for getting out of it without the rescue teams, or the tricks for finding a rescue team that does take action not stand here and tell the person that being swept over the fall isnt acceptable.
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Re: dx unstable mind

Postby princess » Sun Sep 13, 2009 3:51 pm

I have never felt suicidal with this illness but i have had two bouts of deep depression with it - but i changed Dr and what a difference i was taken, tested and sorted, well sorted i mean i got meds that worked.
So change GPs dont waste your time and his time if he wont help - look for someone else.
Write letters to the GPS near to you and see if any are sympathetic to ME/Fibro!!!
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Re: dx unstable mind

Postby dollydaydream » Sun Sep 13, 2009 5:06 pm

Well, actually the OP did say
I tried to explain that i was finding it incresingly difficult to continue in this pain and often felt suicidal,
and then backed it up by saying
sectioning me will not change my mind, i have a right as a human being to choose my own destiny that does not make me mad.


I took this to mean that she had considered this option. So, by her reply, did Linzworld. To be frank I take this sort of statement very seriously. I do not see it as a hysterical rant that she didn't really mean. That way lies the path of being dismissed by people as an attention seeker, which I am sure this woman is not. In civilised worlds, the infliction of pain and sleep deprivation is considered torture.

Do you know the OP? Are you convinced that this was all just for effect to dramatise a point? I find that abit rude to be honest, and kinda does the OP a mis-service and belittles the pain and torture she is suffering.

Yes I would certainly be seeking out a Gp who was a little more clued up and sympathetic, but she is entitled to her opinion, and I am entitled to believe that she, along with many others, myself included, have flirted with this idea in our darkest days of pain and depression.
Sending you love and light

Sarah xxx
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Re: dx unstable mind

Postby samew » Sun Sep 13, 2009 6:17 pm

Thankyou for responding everyone, it is comforting to see some of you understand i am at my wits end, i may not be a great communicator of the written word, which may have led to confusion, but let me assure you i am of stable mind, i was unfortunate to have sunk into deep depression ten years ago and was sectioned then, (for entirely different reasons) i can assure you it is not something i wish to repeat, so even voicing my opinions goes to show how desperate i feel. May i also say that when deeply depressed you dont think straight, i had three children of teenage years that were put through hell, this is something i had no control over as i was not of rational mind.

I hope i have not offended anyone and i will be seeking help from another gp and rhuemy.

Thanks for the hugs they are most welcome :?
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Re: dx unstable mind

Postby shazq » Sun Sep 13, 2009 7:46 pm

I hope you find a new GP more understanding.

Good luck. :hugs: :hugs:
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Re: dx unstable mind

Postby velvet » Sun Sep 13, 2009 7:47 pm

ok this is getting a bit heated - however please let me clear one thing up - i would never ever think of a person talking about suicide as being hysterical, dramatic, attention seeking, or in other way not serious.

there are points on the road to suicide - the point at which someone is able to say they feel suidicidal is the point at which whilst they see no other option they WANT to be shown a different option - not attention seeking, nor would i insult anyone by calling it a "cry for help" - but a needing of an alternate answer.

the point i was trying to make earlier was that at this point having people say the doctor was right to not allow meds, to seek sectioning, should not have done painkillers is the opposite of helpful. this poster has a reason for feeling as she does and a sudden knee jerk panic about her feeling followed by concentration on changing that feeling is NOT the way to go.

she feels this way because she is not recieving support and treatment for the fibro thus to change the feelings change the reason - treat and support the fibro and that will deal with the suicidal feelings whereas if she is sectioned and has her mind fuzzed trying to remove the suicidal bit without dealing with the fibro is not going to achieve anything.
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Re: dx unstable mind

Postby dollydaydream » Sun Sep 13, 2009 11:59 pm

the point at which someone is able to say they feel suidicidal is the point at which whilst they see no other option they WANT to be shown a different option - not attention seeking, nor would i insult anyone by calling it a "cry for help" - but a needing of an alternate answer.


I agree, that's why I said it wasn't the answer. It wasn't a knee jerk reaction. The Op sounded at her wits end and I was very concerned that it is a long time till GP's are available on Monday, she has an unspecified amount of tramadol and has stated that she felt she couldn't go on. What is one supposed to say. 'I know, I feel like that too' As I said, I have flirted with these feelings and I know that it is not the answer. Not for the sufferer, and not for the family.

I believe the OP said that it was the Rheumy who had refused meds, not the GP. This is quite standard as most Rheumy's send a letter of diagnosis, with recommendations for medication and treatment, for the GP to manage.

I actually said that I thought that giving a patient a load of strong meds wouldn't be appropriate, not that denying meds is appropriate. There is a distinct difference. If the doctor was minded to, he could have given a small script for the painkillers and arranged a double appointment to discuss options, care etc.

I believe in a wholistic approach - meds, physio, OT supports in the home, counselling et al. Treating the symptoms, is not necc achievable. Sometimes all you can do is grin and bear it. Most meds will not deal with low self esteem, feelings of letting the family down, anger, and the whole host of other psychological issues that arise when you have been, or are being, tortured with pain, fatigue, IBS, depression........... Yes, anti depressants help, but CBT and counselling are longer term solutions that help the sufferer AND their family.

Lastly, I made no mention of supporting the sectioning at all. I happen to believe that the best place for any person, not attached to a ventilator, is in the comfort and familiarity of their home.

Please can we draw a line under this now. We both want to help the OP, and we have different ways of doing it. It was great hearing your point of view and take on the issues. I'm going to sign off now and attempt to climb the wooden hill to bedfordshire - wish me luck! Sending all posters a group hug xxxx :grouphug:
Sending you love and light

Sarah xxx
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Re: dx unstable mind

Postby LinzWorld » Mon Sep 14, 2009 10:29 am

I fully understand that Fibro can put you at your wits end.

However, no matter how hard it is, going to a doctor and threatening suicide will never be the way to a, get taken seriously or b, get better treatment.

Learning how to talk to doctors is extremely difficult but it's necessary to get the treatment you need. Staying calm and explaining that you are in severe pain and cannot cope (sometime shaving someone with you to back you up is helpful) will always be more effective than threatening to go to Dignitas if they don't give you painkillers.
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