Yay for my GP

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Yay for my GP

Postby lauramath » Mon Sep 14, 2009 9:44 am

Today I met with my GP for the second time ever. The first time was to deal with my "spinal stenosis". I got another MRI and that was proven to not be the case...

I entered his office in tears. Apologized and explained that for 17 years I have been hearing that there is nothing wrong with me and also "maybe it is Fibromyalgia" followed by a shrug and no follow up. I have had my Fibro managed for the past two years through meds for my Stenosis, and now I just want answers. He agreed that looking at my history there simply isn't much more it can be at this point and said that he would right a letter to the rheumotoligist asking for confirmation and advice on medication. I am taking some medication from the U.S., so that will have to be switched to U.K. equivelants et al.

I was so happy he took me seriously. I am very very tired from this road!
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Re: Yay for my GP

Postby DaveD » Mon Sep 14, 2009 9:48 am

Excellent - really pleased for you , onwards and upwards my friend !

atvb

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Re: Yay for my GP

Postby LinzWorld » Mon Sep 14, 2009 10:31 am

That's great. :)

If the rheumy can't provide advice (and many know little about actually treating Fibro), then I would ask for a referral to a specialist clinic, even if it means travelling. If you're fully prepared and have a good GP, then one visit to a real specialist can provide enough medication & other treatment suggestions to get you on the path to effective treatment.
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Re: Yay for my GP

Postby shazq » Mon Sep 14, 2009 6:33 pm

Thats great news, hope you now get the treatment you should have been given already. :hugs:
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Re: Yay for my GP

Postby lauramath » Tue Sep 15, 2009 8:48 am

Yes, I am very interested in seeking the advice of a FM clinic. My GP will surely be receptive to this, and it is no trouble for me as I am quite close to London. I did not realize that there WAS an FM specialist, but thanks to this forum I know that now! You guys are awesome! :grouphug:
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Re: Yay for my GP

Postby LinzWorld » Tue Sep 15, 2009 11:05 am

Good luck! Hopefully you'll be able to be referred to the FM Clinic at Guy's.
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Re: Yay for my GP

Postby princess » Tue Sep 15, 2009 6:33 pm

Linzworld so i guess you are in the medical field with your statements? Sorry you have fibro too, it dosent discriminate female, male, dustman, dr, politician, royal - its a horrible illness and i hope they manage to get a cure for us soon.
But yes Rhumi Dr seems to be the way to go, as they are generally sensitive to our illness, and most diagnoses come via them.
I think as time goes by the Drs are getting to understand more and seem to be quite helpfull well at least at my surgery the OT and Health Visitors and Drs are more than helpful, but then im lucky they are not all interested in teh physical fibro - many still think fibro/ME is in the mind and thats sad as they are very wrong.
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Re: Yay for my GP

Postby LinzWorld » Wed Sep 16, 2009 9:16 am

I'm no doctor - I run FibroAction and have Fibro myself. I've just educated myself a hell of a lot and work with some of the top doctors around the world.
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Re: Yay for my GP

Postby princess » Wed Sep 16, 2009 6:17 pm

No i see on your profile you are a hort. student, i saw that after i had posted.
I know that you have worked on another site, also that you know a lot about fibro to effect that you are very involved, thats great you are so passionate and do such good work.
Only some people do not understand when you use the medical teminology on answers (no offence meant).
Myself i have had to read your posts a few times.
Its easy to get carried away with answers, i have done it myself, but there are people here who are waiting diagnoses or have just been diagnosed, and many who are gaining information and scared of what life may hold for them.
some are just plain scared, so maybe you could just keep it simpler, so everyone understands.
That would be wonderful - Thanks
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Re: Yay for my GP

Postby lauramath » Thu Sep 17, 2009 9:22 am

The facts and information Linz shares on the board are very important to me. I find that having a good grasp of the medical terminology and basic understanding of what FM is is IMPERATIVE in my ability to communicate with my physicians and family members.

Linz can be quite abrupt...but I am getting the idea that she is a "facts is the facts" sort of person, and does not intend to cause any hurt feelings, but is interested in making sure that misinformation and misunderstanding of FM does not pepper the board.

You can't please everybody all the time, but Linz is putting in time and effort to clarify the medical details. Doctors aren't going to simplify things for us, so it is our job to get up to speed on the scientific and medical jargon that applies to us.

We are all in this together, and we have a lot of learning and teaching ahead of us. We must be our strongest advocate, because no one cares as much about your health as you do.

I hope everyone has a lovely day :) I for one, think I will be in surgery having my gall bladder out, if I am lucky, it is just a kidney stone...but...oh well! Just another day!!! :crazy:

Laura
Last edited by lauramath on Thu Sep 17, 2009 12:00 pm, edited 1 time in total.
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Re: Yay for my GP

Postby LinzWorld » Thu Sep 17, 2009 11:17 am

Thanks Laura! :) Sorry if I get too technical at times. I'm often doing a running visit to the forums (like now) in between all my jobs (I have a part time job working for the Princess Royal Trust for Carers as well as all my voluntary work - my profile was really out of date!), so often I don't have much time to chat and just log on to see if I can help in any way. I've been there with Fibro, not knowing a thing about it and not having the information I needed, which is a big reason why I was involved in founding FibroAction.

I tried to sort out a glossary of terms for the FibroAction website to help people when reading research articles. If you find anything that's not in there, let me know and I'll add it!
http://www.fibroaction.org/Pages/Glossary.aspx
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Re: Yay for my GP

Postby princess » Thu Sep 17, 2009 8:04 pm

NO offence meant Linzworld!!!
I know you have a good heart and that is what matters ok.
I am simple spoken call a spade a spade - but well it takes all kinds to make a world and at the end of it we are all Jock Thompson's bairns and here to help others.
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