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The UKFibromyalgia Forums • View topic - Prof Davies.



Prof Davies.

Anything to do with the NHS or Private Healthcare.

Moderators: perseus, *Lisa*, FluppyPuffy

Prof Davies.

Postby Harley » Mon Nov 23, 2009 12:47 pm

I see his Prof Davies mentioned a lot on various sites and I'v seen what he charges but I'm just a little confused as to what it is that he offers that is different? :?

I know the fee's are quiet high for someone like myself who's not working at the minuit and I just wondered what you get for your money?

If he has some new idea's on managing FMS why isn't the rest of the medical profession following suit??? :?


If someone could enlighten me I would be very greatful. :)
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Re: Prof Davies.

Postby LinzWorld » Mon Nov 23, 2009 2:59 pm

It depends on whether your doctor has a very good up-to-date understanding of Fibro & its treatment options or not. Prof Davies only uses evidence based treatment approaches so the information is out there for anyone to use. Not many doctors spend time & money on keeping up to date with Fibro specific research (Prof Davies has a clinic manager who reviews the research for him).

If you see him privately (for which he is cheaper than most private consultants and even offers discounts for people on benefits) then, as well as diagnosing and making medication suggestions, he can also offer trigger point injections (which some pain clinics do, but they can be hard to get) and modified Myers cocktails. These contain vitamins, minerals and lidocaine. Some pain clinis will do IV lidocaine (as opposed to intramuscular), but it's a bit risky & therefore expensive so it's also hard to access on the NHS. It's also impossible to get injections of vitamins & minerals on the NHS, even if you have a suspected deficiency.

Personally, he saved me. I have been fortunate to have learnt a lot about Fibro and to have a good healthcare team now, but I went from disabled when I first started seeing Prof Davies to back on my feet & able to work and live life.
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Re: Prof Davies.

Postby *Lisa* » Mon Nov 23, 2009 3:04 pm

I'll chat to you via PM/facebook as my opinions are different!
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: Prof Davies.

Postby Harley » Mon Nov 23, 2009 3:24 pm

Thanks Linz,
So in a word if my GP is brilliant,which she is you'd say that the Prof doesn't really offer anything radically "new" as far as FMS treatments go and it'd be better to keep my dosh in my pocket? :?

I'm not having a go at the bloke because I don't know him and if he helps people that is a good thing, it's just from all the hype I'v read around the net I thought he was offering something "different". :?

Lisa, thank you . :)
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Re: Prof Davies.

Postby LinzWorld » Mon Nov 23, 2009 6:20 pm

For many people, evidence based medicine treatments and a doctor that understands Fibro is "different". I saw 6 consultants before seeing Prof Davies and still didn't have the help I needed to control my Fibro.
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Re: Prof Davies.

Postby Harley » Mon Nov 23, 2009 8:13 pm

By "different" I meant something that well read doctors did'nt know about. From what Iv read I just thought he did things other doctors don't do, didn't realise he was just more well informed on the subject of FM than some "specialists" who should be retrained.

I suppose it just shows what a disorganized state the NHS is in really, if some have to pay through the nose for what others get for free,it's a disgrace. :?

Perhaps they need to make a National Standardized Health Service so everyone gets an equal share of the pie, we can live and dream I suppose. :)
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Re: Prof Davies.

Postby LinzWorld » Tue Nov 24, 2009 5:43 pm

You can see him on the NHS too. He runs the NHS Fm Clinic at Guy's Hospital. Waiting lists are long as they take in patients from all over the UK and although Prof is trying to build up a team there, it seems that as soon as another consultant is traine dup they move on and he has to start again!
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Re: Prof Davies.

Postby Brens » Tue Nov 24, 2009 11:35 pm

I see Prof Davies on the NHS and didn't wait very long for my first appointment,give it a go,lets face it we are in it for the long haul and waiting a few months now wont make so much difference in the scheme of things.
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Re: Prof Davies.

Postby smiler22 » Wed Nov 25, 2009 8:19 pm

im sorry to have t say this but many of us dont have the chance to get to prof davies. as we live too far away. and the cost and pain that we would be in to get there would cane us. especially being on benfits....... the pain would mean i would more tahan likely end up in bed for days after to travel that far. so for me i am very glad for having the help i am getting from the nhs locally. whether that means i have to be longer in getting the said help........... i have an illness that mean we have pain twenty four seven and we have to get used to taking different meds and other treatments that we can get in our own areas of the country. im am glad that the nhs is nocticing and realising that fm exists.......... i know that prof davies obviously gives people a chance to get lidnocane injections etc. but hopefully we will eventually get this elsewhere within the uk.

but as you said he doesnt reallly offer anymore than you can get anywhere else in the country that is knowledge based an davailable to read etc.
this is just my opinion and im down at the moment so i may have said something i would not usually have answered .
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Re: Prof Davies.

Postby LinzWorld » Wed Nov 25, 2009 8:28 pm

No, absolutely. He's not doing anything weird or wacky, so if you have a good doctor that's prepared to do research and work with you, you're probably better off sticking with them instead of trekking hundreds of miles to see Prof Davies. If, however, your GP is not confident enough to manage your Fibro on their own and you can't find a good local consultant, even just one visit to see him can be useful (as it would be with any good consultant) as you can get medication suggestions that your GP can then provide!
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Re: Prof Davies.

Postby LuvCats » Wed Nov 25, 2009 10:52 pm

Hi Smiler22 I'm so glad to hear that the nhs are recognising it where you live but that's definetely not the case where I live or indeed where some other people live.
That's why I've booked a private appointment to see the Prof'.
I know the journey will be bad for me and I'm spending my DLA money to pay the fee but quite frankly it'll well worth it if I can get a descent management plan for my condition.
I'm like Linzworld, in that I've got little help or understanding of this condition in the NHS, let alone a descent treatment plan to manage my condition.
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Re: Prof Davies.

Postby smiler22 » Thu Nov 26, 2009 12:56 am

thats is fine if thats what you want to do. what i was meaning is. i havent got my fibro under control yet. but i have been offered accupuncture, shiatsu etc as you most probably would be with prof davies. as one of the posts above stated. prof davies doesnt offer anything different to what is already readily available knowledge. so for me the nhs is the one i would go for. i havent the finances or the chance to not suffer for days after . to go that far to see prof davies. if im not gonna gain anything different to what i could get in my local area.. i had to travel to the rheuno who diagnose me.around 30mile. one way.

if prof davies could give something that is said to def work in helping to combat the fight against fibro. and it wasnt readily avaible. on the nhs. anywhere closer to me than london. then yes given the chance if i had the money etc and could travel then i would go that bit further. as i already do for my arm specialist. there is noone near me who can deal with it so i have to go on 140 round mile trip to see the specailst for that. i have a rare arm so the only people who know about it and specialise it are at the other end of a very tiring journey. that last year i had to make 15 journeys to. so yes i do travel if i know that the other end offers something i cant get nearer home...

as harley said .[quote="Harley"]By "different" I meant something that well read doctors did'nt know about. From what Iv read I just thought he did things other doctors don't do, didn't realise he was just more well informed on the subject of FM than some "specialists" who should be retrained.

i was lucky the pain clinic are well knowledgeable about fibro and know what is out there in order to help. and i know some people dont have this. my gp is still learning i feel.

so for someone who is in that boat that they havent got the help etc then that is up to them if they have the money and want to go to prof davies. etc........ i was just stating my own personall experience. and reason why i dont find prof davies valiable for me to go.
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Re: Prof Davies.

Postby LuvCats » Thu Nov 26, 2009 7:44 am

Prof' Davies does do something "different"; myers cocktail which I'm hoping to get.
I'm glad that you are finding NHS services satisfactory but unfortunately I'm not and that is why I'm going private.
I can barely afford to go private either but it's a very small price to pay if I can consult with a knowledgeable experienced professional who can guide me in a good treatment plan.
I will comment again after I've had my consultation but I have to live in hope that I can get my condition under control and I am willing to take the risk that the journey will be bad for me in the short term.
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Re: Prof Davies.

Postby LinzWorld » Thu Nov 26, 2009 8:17 am

The Myers do help a lot of people. :) I find they're a great part of my flare plan - if I flare for a week or more I get one and it almost always nixes it.

LuvCats - make sure you're prepared for your appointment so you can get the most out of it. Prof's appointments tend to be quite quick, especially if you don't have questions to ask, so make sure you all prepared and have a list of questions (inc. what to ask if/when he suggests a medication) so you don't find yourself outside and then go "Doh!". :)
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Re: Prof Davies.

Postby LuvCats » Thu Nov 26, 2009 8:20 am

Thanks Linz, I'll do that.
What with the journey to Bristol and the brain fog I think it's a good idea. :lol:
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