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The UKFibromyalgia Forums • View topic - Interesting Neuro appointment today.



Interesting Neuro appointment today.

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Interesting Neuro appointment today.

Postby Elsbeth » Thu Dec 31, 2009 2:42 pm

ll.

I had my follow up appointment today with my neuro after having had my MRi a few months back.

It appears I have some signs of MS as expected, my GP said my results showed spots on the brain that indicated MS but the neuro says he wants to do more tests first.

I have to go back in Jan and have a lumba-puncture to check the fluid and this will confirm that, but he says there is definate damage to my Central Nervous System and that it is likey that this is has come from my Psoriasis and Osteo Arthritis as these are Auto Immune Diseases! I had no idea. He said that while it isn't rare to have 2 AI diseases, it isn't THAT common. He said that people with Psoriasis normally get Psoritic arthritis but this was ruled out 7 years ago.
He also mentioned my going in and having IV steriod treatment.

I am a little shocked in all honesty. All this was totally NOT what I was expecting, especially after being told by the last neuro there was nothing wrong with me neurologically.
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Re: Interesting Neuro appointment today.

Postby nanatigtig » Thu Dec 31, 2009 3:00 pm

It is always a shock to recieve that kind of news, but at least you know just what you are up against.

Take care

Much love and :hugs:
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Re: Interesting Neuro appointment today.

Postby ladymanvers » Thu Dec 31, 2009 3:18 pm

I read in some research that brain lesions can show in fibro and lupus not only MS. Also I have psoriasis (2% of population I believe) and psoriactic arthritis was ruled out in me too. How many of us have psoriasis I wonder, have seen other people mention this? Perhaps I'll start a thread and ask...try not to worry, might not be MS...
love Ju.xx :blowkiss:
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Re: Interesting Neuro appointment today.

Postby Elsbeth » Thu Dec 31, 2009 4:15 pm

If I am honest I would be almost relieved if it was. At least MS is recognised and much more treatable.
None of what is being caused by the auto immune can be stunted really, it is just one of them things, at least with MS the drugs can prolong the enevitable.
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Re: Interesting Neuro appointment today.

Postby shazq » Thu Dec 31, 2009 4:55 pm

Good luck with your tests. :hugs:
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Re: Interesting Neuro appointment today.

Postby gillshutt » Fri Jan 01, 2010 10:37 am

Good luck with the tests. I've had a lumbar puncture and, while it isn't nice, it's not as bad as I thought it was going to be.

If it is MS you will have a lot better luck with treatment and things like claiming DLA etc. As you say it is a lot better recognised. I have finally had MS ruled out by a neuro although my symptoms are very similar. I got to see the Welsh MS neuro specialist so I can now put my mind at ease about having it although it doesn't make the symptoms go away :?
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Re: Interesting Neuro appointment today.

Postby Elsbeth » Fri Jan 01, 2010 6:22 pm

I already have DLA so am not so worried about that, but I agree with you on the treatment side of it.
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