Excellent Fibromyalgia Treatment Centres on NHS

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Re: Excellent Fibromyalgia Treatment Centres on NHS

Postby LinzWorld » Mon Sep 14, 2009 10:32 am

London will be the closest as far as I know.
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Re: Excellent Fibromyalgia Treatment Centres on NHS

Postby gill » Wed Sep 16, 2009 4:51 pm

Do some health authorities offer more than others for fibro?or do you have to ask for more?As in Leicestershire and Derbyshire all ive been offered is prescription medication,and an attitude of youve got to live with it.
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Re: Excellent Fibromyalgia Treatment Centres on NHS

Postby rosie66 » Wed Sep 16, 2009 4:56 pm

:wave: carolH, if you hear of one give me a shout,i'll come with you,i live near you :mrgreen:
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Re: Excellent Fibromyalgia Treatment Centres on NHS

Postby LinzWorld » Thu Sep 17, 2009 8:50 am

Yes, coverage varies. And accessing services that are there is patchy even within one PCT - it can depend not only on your GP, but how you present to your GP!
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Re: Excellent Fibromyalgia Treatment Centres on NHS

Postby LuvCats » Sat Oct 24, 2009 8:04 am

I'm finding the services where I live appalling.
Has anyone been referred by their gp to see Professor Davies at Guys and St thomas for his nhs inpatient programme and if so was it successful for you?
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Re: Excellent Fibromyalgia Treatment Centres on NHS

Postby LinzWorld » Sat Oct 24, 2009 5:23 pm

Prof Davies does not have an inpatient program. His FM Clinic is at Guys Hospital.

The INPUT course is at St Thomas' and is for general pain management, not specifically for Fibro. It can be very helpful but they don't have a great understanding of Fibro and are rather anti-medications, so it's not for everyone.
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Re: Excellent Fibromyalgia Treatment Centres on NHS

Postby smiler22 » Sat Oct 24, 2009 7:13 pm

i was given hydro on the nhs. and i had ten week course. however then they said i could go for a further 20 weeks at a cost of i think it was 20 pound. but i declined this as it was cheeper to go to my local pool for longer than the usual half hour i got a t hospital. as i could go for as long as i wanted and had a better chance of parking at my locacl.i now go to hte local and still do the exercises i was taught at the hospital. i have also had physio, and now gonna have accupuncture for 4 weeks starting next week and then shiatsu again both on the nhs. starting in jan 2010.
live life to the full as life is what you make itxx
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Re: Excellent Fibromyalgia Treatment Centres on NHS

Postby shazq » Sun Oct 25, 2009 11:02 am

Good luck with it all smiler, hope it continues to help you. :hugs:
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Fibromyalgia Awareness Day May 12TH.
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Re: Excellent Fibromyalgia Treatment Centres on NHS

Postby LinzWorld » Sun Oct 25, 2009 1:04 pm

Hi Smiler, that's great. Hydrotherapy on the NHS is supposed to be a starter where you get taught exercises so that you can go and do them elsewhere. A pain consultant I know gets really frustrated with patients who say "Hydrotherapy helped but I only got 6 sessions" as you're supposed to go on with it yourself, as you have been doing. :)
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Re: Excellent Fibromyalgia Treatment Centres on NHS

Postby fibro 78 » Wed Jun 30, 2010 8:14 pm

is there any in west sussex .
i am a 32 yr old women who is engaged to a wonderful man and i have 4 beautiful children 3 girls and 1 boy.
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Re: Excellent Fibromyalgia Treatment Centres on NHS

Postby smiler22 » Wed Jun 30, 2010 11:30 pm

well the accupuncture didnt work gave me a big flare up so they stopped it. have now been put on gabapentin. started very low dose as i have stated under thetopic headed gabapentin. in a nother post. i am now on 1200mg a day and they still not helping. so am on waiting list to see pain doctor in october.??????? yep atthe time that ws 6months away. yep i felt like saying gee thanks just aniother six months of waiting in pain. xx
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