Unsympathetic CPN

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Unsympathetic CPN

Postby pinkfairygirl » Thu Jan 28, 2010 12:17 am

At first my CPN (Community Psyciatric Nurse) was great but recently she is being horrible, she was completely unsympathetic when I told her about my recent diagnoses of FM. She doesn't understand physical illness and the isolation it brings, she keeps telling me I should try harder to go out and mix with people. My god it's bad enough having BPD (Borderline Personality Disorder) without having CFS and/or FM as well, I suffer from severe depression so that makes me not want to go out alone with out the physical illness too.

I feel like slapping her and right this moment I feel like I hate her which is a shame because up until just before Xmas we were getting along great, now I'm seriously thinking I should ask for a new CPN but they probably won't understand either. Another thing is she wants to try and tell my GP what to perscribe for my CFS and/or FM, she said to me that she was going to phone my GP and tell her she shouldn't be perscribing Amitriptyline and Co-Codamol, I phoned my GP before my CPN got the chance to phone her and warned her that she would be getting this phone call, my GP is exellent, very understanding and she agreed with me that it is non of my CPN's business what is perscribed for my physical health.

Personally I think she has ideas above her station, just because she has worked as a psyciatric nurse for over 25 years doesn't mean she knows more then a doctor. Should I ditch her do you think? She sounded pretty angry today when she phoned me to make another appointment with me so I think my GP may have put her in her place.

Edited to put in paragraphs to make it easier to read. Gill.
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Re: Unsympathetic CPN

Postby Mr.A » Thu Jan 28, 2010 12:54 am

Sounds to me like you don't like her either 8)

I think she flipped as soon as you got your FM diagnosis because they're is massive stigma surrounding FM/ME/CFS/CFIDS, and she ain't a believer.

This is exactly why I hate the label.

Best of luck with your new psyche-jockey if you get one :lol: , or you could always try to educate the current one.
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Re: Unsympathetic CPN

Postby velvet » Thu Jan 28, 2010 1:35 pm

see my post in the private members area - why dont these people realise the problems they can cause thinking FM isnt a real problem.
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Re: Unsympathetic CPN

Postby pinkfairygirl » Thu Jan 28, 2010 5:06 pm

I just read your post velvet and have replied, what this CPN you saw said is typical of the sort of thing CPN's say. I thank god that my GP believes I have physical health problems and when she refered me to Dr Bansal the CFS specialist he believed me too.
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Re: Unsympathetic CPN

Postby gillshutt » Fri Jan 29, 2010 7:28 am

Sounds to me like you need to find some info to print off and give her. She needs to know how much pain you can be in and also that FM can cause anxiety which makes it harder for people to get out and meet people.

Maybe sit her down and ask her exactly what she thinks FM is (not that it's in her remit to have anything to do with it but her answer may help you decide what to do) If she says she thinks it's 'all in your head' then explain to her that that is what people used to think in the 'old days' (that should make her feel a little smaller :lol: ) say that it is now thought to be a CNS problem with an imbalance of brain chemicals.

One of them is seratonin, which is why people used to think it was down to depression, but that increasing your seratonin won't make it better, it can help a bit but not fix it, and anyway other chemicals our out of wack like Substance P which means you are on constant alert, your fight or flight mechanism is stuck on and this causes other problems like anxiety etc.

If she can't accept this and won't agree to disagree and shut up about it then get rid. IMO
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Re: Unsympathetic CPN

Postby velvet » Fri Jan 29, 2010 2:04 pm

excellant advice gillshut
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Re: Unsympathetic CPN

Postby pinkfairygirl » Fri Jan 29, 2010 2:29 pm

gillshutt wrote:Sounds to me like you need to find some info to print off and give her. She needs to know how much pain you can be in and also that FM can cause anxiety which makes it harder for people to get out and meet people.

Maybe sit her down and ask her exactly what she thinks FM is (not that it's in her remit to have anything to do with it but her answer may help you decide what to do) If she says she thinks it's 'all in your head' then explain to her that that is what people used to think in the 'old days' (that should make her feel a little smaller :lol: ) say that it is now thought to be a CNS problem with an imbalance of brain chemicals.

One of them is seratonin, which is why people used to think it was down to depression, but that increasing your seratonin won't make it better, it can help a bit but not fix it, and anyway other chemicals our out of wack like Substance P which means you are on constant alert, your fight or flight mechanism is stuck on and this causes other problems like anxiety etc.

If she can't accept this and won't agree to disagree and shut up about it then get rid. IMO


Thanks this is great advice, I will take it up.
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Re: Unsympathetic CPN

Postby pinkfairygirl » Tue Feb 23, 2010 11:30 pm

An update: My CPN finally admitted she thinks what I'm suffering from is depression and a bit of "yuppie flu". I'm so angry and lost right now I don't know what to do, she has got it totally wrong, I am worried because she seems to be able to turn people against me, my GP and I had a good relationship up until recently and then this CPN has spoken to her and she has now basicly turned against me, but the thing that scares me the most is that some time ago I signed an agreement that she could contact anyone from the NHS on my behalf, now she wants to get all my specialists in a room together and have a meeting, I'm sooooo frighten that she'll convince them it's all psychological when I know it's not. All I can think of doing is writing a letter withdrawing my concent but this might not work, what the hell should I do?
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Re: Unsympathetic CPN

Postby velvet » Wed Feb 24, 2010 12:04 pm

if i were you i would contact your specialists and tell them your concerns - and if they say, as i suspect they will, that she doesnt know what she is talking about and they physical problems are real then let her get them together in a room - she is a nurse at the end of it not a doctor and will come out of said meeting a damn sight less cocky than she went in.

say to your specialists OK i know i have this mental issue for which i am under the care of the community psychiatric nurse (say the words not CPN ) but now she is telling me that all my problems are due to that and mental issues and that i dont really have fibromyalgia and whatever else (sorry forgotten if you have put it on here) so i dont really need to see all you specialist doctors. i think she has got my GP thinking this as well and just wanted to know if i still need to see you. then sit back and watch her get her ass put in a sling - doctors dont like patients being told they are not needed by nurses :twisted: .

you could also try contacting her superior and telling them the same thing - that she is telling you all your problems are mental not physical and ask if she is qualified and allowed to do this.
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Re: Unsympathetic CPN

Postby pinkfairygirl » Wed Feb 24, 2010 2:01 pm

velvet wrote:
you could also try contacting her superior and telling them the same thing - that she is telling you all your problems are mental not physical and ask if she is qualified and allowed to do this.


That has given me a brilliant idea, thank you.
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Re: Unsympathetic CPN

Postby flyingscotsman » Fri Mar 05, 2010 11:42 pm

I am/was a psychiatric nurse.. I have never heard of such behaviour from a CPN .. Normally they are very supportive.. I was retired last year due to FM .. I have worked with all ages and with all health problems .. I always listened to what the patient had to say ... Just because they have a mental health problem does not mean they dont know how they feel ... and nine times out of ten the patient usually knew what was best for them..

When I was given my diagnosis from the consultant she asked me to try coming off my pain killers Cocodamol and Tramadol .. This was about 6 months ago ... I had a visit to my GP yesterday and I mentioned this to her ... I told her I did try it for a few days but could not cope at all ... The GP told me to stay with my meds ... I also mentioned to her about this website .. She actually told me I would probably get more help here than I would from any GP and she would be happy to try anything that was going to improve my life ..

Hopw you get sorted soon ... John
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