Relief then Gutted....?

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Re: Relief then Gutted....?

Postby mina666 » Wed May 05, 2010 11:19 pm

Mr.A wrote:All I was given was the word, not even a leaflet. I had to do all my own research.
I also was not told about the affects FM would do to my body & mind i felt so alone,and am gratefull to have contacted this web site &know i am not alone and losing the plot :D :wave:
hi,my name is mina i have lived with FM for 8yrs.i have just moved from manchester to ayrshire,i recently spoke to a lady who also has FM,she told me about this web site which i joined today and look forward to chatting to other sufferers.
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Re: Relief then Gutted....?

Postby junebenton07 » Sun May 09, 2010 12:50 am

Hi all,

I too was told i had fibro at our local hospital, no answers on what to expect a ways down the road, i was given the name of my illness, then was told to go away and look it up on the internet.

I felt very scared and alone, anxious about what the future held for me, here i was 50yrs old and i felt my life was over, i expect a lot of us have felt that way at one time or another.

I can say with my hand on my heart, that you guys on here have been "my GP"!!. Everything i have experienced with my fibro has been explained by someone on here, thankyou each and everyone of you.

I now feel able to go ahead with my life, and deal with my fibro one day at a time, i will not give in to this fibro!!.

Best wishes to everyone,

:grouphug: :grouphug: June xxx
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Re: Relief then Gutted....?

Postby little_mima » Thu May 13, 2010 5:17 pm

Aw, I felt like I was the only one who just got handed a leaflet! In a strange and twisted way, it's good to know I'm not, but at the same time, I'd rather that wasn't the case.
At my first rheumie appointment I was 'hmmmed' at and told there was nothing wrong. I had to keep bugging my GP who seems to be the only person that listens and referred me back 10 months later. I got bored of waiting and went privately, which was where I got handed the leaflet. I got the NHS appt through a couple of months later and was still told there was nothing wrong :roll: even though I've got loads of symptoms of lupus as well as FM.
Needless to say I'm seeing a different rheumie, if I ever get to see him. At least 8 months for an appt.
What gets me is how the rheumies seem to brush it off, like it's no big deal. My NHS one went on for ages about how she'll do her best to try and get me well enough to go back to uni, and then she discharges me without doing much. Yea, she gave me vasodilators for my Raynaud's and told me that I'm photosensitive, but that's it.
Aaaaaaaaand end rant
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