Latest Drs visit !!!!!

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Latest Drs visit !!!!!

Postby Wacky Racky » Sat Feb 13, 2010 6:11 pm

18 months ago went on holiday came back with a virus, had lots of blood tests and xrays since and now feel worse than when i had the virus, under a rehumy at hospital who as been treating me with arthritus medication,(all tests are fine and show no inflamation ) after last rehumy visit he took me of arcoxia after i was very blunt with him and made him listen to me and then he put me on Nambumetone which hasn't agreed with me and made me feel sick and given me diareahea, I went to the GPs yesterday but saw a different one.....

She said I shouldnt keep taking the tablets and that aches and pains in muscles come into 3 catagories

1. Osteoarthritus
2. Rehumotoid Artritus
3. cfs,me, fibro

The first 2 I have been tested for and shows its not them and the third will clear up and that i shouldn't be sat about i should be pushing myself to do more and get on with life, as if i was a lazy cow sat on my arse all day, i work every week no matter how i am feeling, i told her this and then she said good it will clear up :? and cos i have a bit of cold everything will seem worse

I didnt go cos i had cold, i could hardly speak cos my voice had gone but i wouldnt have wasted a drs time for a cold.

Then she looked back at blood tests what i had some time last year and told me that i was borderline enemic and she is going to do more blood tests to check that has not got any worse through losing blood during periods, that could be causing dizziness :?

Didnt mention dizziness, that was last time i went to drs i mentioned that, which was just after christmas. :banghead:

I really do wonder where their listening skills are and what are they getting paid for,.

Went to drs for the tablets that wasnt agreing with me and came away after a lecture bout being lazy and gotta go back for blood tests :roll: I have to laugh about this drs visit, and think that we should make a tv show of comedy sketches about drs visits, it would make comedy gold :tongueout:
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Re: Latest Drs visit !!!!!

Postby Miss sleepy » Sat Feb 13, 2010 6:19 pm

sigh... sad but true hey that with GP's its complete luck of the draw
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Re: Latest Drs visit !!!!!

Postby velvet » Sat Feb 13, 2010 7:04 pm

for goodness sake please make sure you avoid that one in future - fibro does not just go away on its own and going out exercising and pushing yourself makes it worse not better. gggrrrrrrrr. not putting things well cause foggy but bad bad doctor
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Re: Latest Drs visit !!!!!

Postby LinzWorld » Sun Feb 14, 2010 12:09 pm

Um wow. :shock:

RA and OA aren't even in the muscles. And what about Polymyalgia, myofascial trigger points, neuropathic pain.........

She really needs a rheumatology refresher!
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Re: Latest Drs visit !!!!!

Postby polldoll » Sun Feb 14, 2010 3:01 pm

Hi know how you feel. My doctors has cut my meds by half with a view to getting me off them altogether. So shocked did not know what to say. Have come home thought about it, I have booked a second visit, I am going to tell him I am not happy with the way things are and insist he refers me to the Pain team at my local hospital where I work. I am not taking this lying down or standing up come to that :nono:
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Re: Latest Drs visit !!!!!

Postby lsl » Mon Feb 15, 2010 8:35 am

hi
it seems you have had a bad time of it, getting a good dr can make all the difference,mine told me to stop eating cakes and sweet thing as this will cause me to feel low, i replied i dont eat them :dunno: , so at that point i left and made another appointment witha different dr who was very good but harsh, she advised i was like a 92 year old, i then replied thank you at least you can see i have something wrong, all in all it took 2 years to get the result of fms, all i can say is dont let them push you around, it drove me crazy thinking it was all in my head, keep on making appointments and tell them you dont think they are taking you seriously..... hope this helps alittle
i would go on but i would end up on my soap box......

if i can help in any other way just ask...
remember its happening to you, not the dr, be polite and fight your corner

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Re: Latest Drs visit !!!!!

Postby Wacky Racky » Fri Feb 19, 2010 1:25 pm

You will love this one !!!!!

Drs phoned home yesterday wgile i was at work, so hubby phoned me at work to tell me to phone drs, phoned drs and was told that my iron was very low and needed to make an appointment to see a dr urgently, the dr that requested the last blood test results didnt have any apointments but the dr i usually do see did.

Had an early appointment, so had to get up early after working yesterday i could have really done with staying in bed, set off to the drs and it started to snow, when i got into see the dr he asked me why i had the blood tests done, apperently the blood test ages ago that i was borderline for anemia was point 1 percent below the recomended place where it should be, so that was nothing to worry about in the first place and then the dr showed me all my blood test results going back a while and the results for this blood test is the highest iron level and hemoglobin that any of my results have been.

The dr did apologise for what i had been told on the phone and then went on to tell me that they have had staffing problems, training new reception staff and nurses off sick and one nurse died. At this point i thought i could still be tucked up in my warm bed in pjs and fluffy socks.

My faith in the NHS is restored then cos its just cos of staffing problems that i had to rush to the drs and no one listens and still no diagnosis or even any pain killers that work :banghead:

So dizziness and wobbling over like a drunken person is not down to low iron levels :woot:


I couldnt make this up, it is that far fetched :?
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Re: Latest Drs visit !!!!!

Postby KateXXXXXX » Sat Feb 20, 2010 7:57 pm

velvet wrote: going out exercising and pushing yourself makes it worse not better.


Not strictly true. The RIGHT exercise at the correct level, slowly increased as you get fitter, can be very beneficial. It won't damage you, and it rarely triggers a flare if you do low impact exercise frequently. Baby steps, but yes, getting generally fitter and more toned helps the fibro and helps you sleep better.

Many people are afraid of exercise because it hurts. What you need to learn is how to distinguish between the perfectly natural aches of exercising unfit muscles for the first time in ages, and a flare. And START GENTLY!

I have not been swimming or walking regularly for several months, partly due to a severe flare triggered by the pig disease jab (we were all jabbed because DH is a Type 1 Diabetic, so vulnerable), partly due to other health issues, and partly due to the weather. USUALLY I swim three times a week, doing a mile in an hour each time. I also try to take a 2-3 mile walk a couple of times a week. When up to my proper fitness levels my pain and flares are far less. I am REALLY feeling the lack of exercise at the moment. We do not all react to things the same way, and each person needs to work out the exercise regime that suits them. The pain management course I did about 3 years ago taught me a lot about pain management and exercise, and the value of finding an exercise regime that fits both your lifestyle and your fitness needs and pain patterns.

I find that even when I start a swimming session feeling dreadful,I feel better by the end if it, and I really feel the benefits over the following few days.

I hope to start again this week,. I certainly won't be aiming for the full mile, or even the full hour to start with! I hope to build back up to this over the next two or three months. The trick for me was to find a warm leisure pool to start with, and just paddle up and down until I was ready for the next stage... Now it tends to be goggles on, nose clip on, head down and go for it! I find it also helps to have a swimming buddy or two. I go with a friend and we drag the Giant Mutant Ninja Teenager with us. (Hehehehehe... He started swimming like a brick, then got as fast as me. Now he can do a length underwater faster than I can on the surface, and a surface length at twice my speed! Like watching a pink porpoise!)

Don't rule out exercise. Just find the right type of low impact exercise for you, start at the right level (and, like me, that might start as 5-10 minutes of stretching per day), and do at least that even on the worst of days. And get some advice about what might suit you. Doctors are not usually the correct people for this, but the pain management folk and physiotherapists can be a very good starting point.
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Re: Latest Drs visit !!!!!

Postby smiler22 » Sat Feb 20, 2010 8:52 pm

i have found that i cant go to the gym as i collapse. however if i go to the swimming pool i can swim and it helps to be in the water but i am knackered when i get out, and i struggle to walk properly the next day. i only do what i hav ebeen advised to do by physio, and it is not that long. so when you say the right amount of exercise is good for you . then yes it is and maybe for some people but :
for someone like me any exercise even five minutes is too much and i suffer. but obvioulsy i do still try to do some as obvioulsy i dont want my muscles to seize up altogether.
the orthopeadic specialist told me to exercise but to only do one or two steps daily as i will end up damaging myself more. and if i do hurt when i do little exercise this may do me damage anyway. even if it helps in other ways.
so in some case exercise may not be advisbale in the way you said about increasing it time after time day by day. as i cant increase it. been told by gp, phyiso and specialist. to keep the exercise at the same level.
live life to the full as life is what you make itxx
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Re: Latest Drs visit !!!!!

Postby LinzWorld » Sun Feb 21, 2010 7:30 pm

Please do note that the previous post but one was about Fibro.

If you have other medical problems and get given specific advice by medical professionals, then of course, follow it. That doesn't mean that that advice is applicable to other people with Fibro and not the other medical problem.
I run FibroAction, a small national charity raising awareness of Fibromyalgia Syndrome. I am not a qualified healthcare professional. If you would like medical references for any facts quoted, just PM me.
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