Norfolk?

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Norfolk?

Postby RowanWolf » Mon Feb 22, 2010 4:29 pm

I'm looking for any decent services, Specialists etc in Norfolk or close if anyone has any experiences please let me know.
I've seen professor Scott in Norwich but he was not much help. Travelling is a big problem for me, I cannot afford taxi's that far, public transport drains me before I even get there and any lifts I might be able to get are dependant on when I would need them.
However I am trying to find more help.
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Re: Norfolk?

Postby smiler22 » Tue Feb 23, 2010 12:11 am

i am unable to help with norfolk howver have you looked on the dirct gov website to see if you can find out hospitals or lcinic thta way. also if you need to get to hospital or clinic you may be able to ask for transport help from your gp. as there is a volunteer car service in most towns and citys. i dont think you have to pay so it is worth lookin to. they pick you up and then stay with you at hospiatl until you need to go home.
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Re: Norfolk?

Postby RowanWolf » Tue Feb 23, 2010 1:18 am

Well, I'm hoping that someone might be in the area with experiences.
I don't suffer from insanity...I enjoy every minute of it.

That which doesn't kill me...had better run pretty damn fast.
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Re: Norfolk?

Postby LinzWorld » Thu Feb 25, 2010 1:43 pm

Sorry, no, I don't know of anyone in East Anglia. You could try contacting groups in your area, but the likelihood is that you would have to travel.
I run FibroAction, a small national charity raising awareness of Fibromyalgia Syndrome. I am not a qualified healthcare professional. If you would like medical references for any facts quoted, just PM me.
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Re: Norfolk?

Postby groovy_chick » Thu Feb 25, 2010 9:17 pm

RowanWolf wrote:Well, I'm hoping that someone might be in the area with experiences.


:hugs: good luck hun cause there is nothing here :( apart from a support group. At least you have seen Prof, I haven't even got that far :evil: but then my GP always poopood the idea of fibro anyway although my physio was the one who suggested it first :dunno: .
Sarcasm aside, I think it also depends which part of Norfolk you are in as some people manage to be seen in Cambridgeshire or Lincolnshire or I have heard JPH is ok for ME suferrers.
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Re: Norfolk?

Postby RowanWolf » Thu Feb 25, 2010 10:27 pm

I've heard it might be worth travelling to Cambridge..I'm in North Norfolk not too far from Norwich.
I don't suffer from insanity...I enjoy every minute of it.

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Re: Norfolk?

Postby swampiesue » Wed Mar 10, 2010 2:25 pm

Hi I am in Norfolk, I have not seen a Rhumatologist, However my GP and neuro consultant are pretty sure I have fibro.. My friend who visits the rhumatology clinic at the Norfolk & Norwich Hospitals, tells me there are Fibomyalgia posters on the wall... so I assume they do take it seriously..However I find Norfolk is very unforthcoming with any illness as they don't have the funds...

Good Luck, please let us know if you have any luck.. please excuse the spelling as I am not at all with it today ....
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Re: Norfolk?

Postby nixie33 » Tue Mar 30, 2010 5:00 pm

Hi I'm in the north norfolk area and saw Dr Gaffney about 2 years ago when he diagnosed me, since then he and his team have sent me onto pain management and there I see Dr Sidery who has been really helpful although when it comes to your gp taking their advice on what pain management they give you it does become difficult( my gp didn't like the recommendation of giving me methadone) I now take ketamine and am gonna be starting pain relieving patches soon.
I haven't found any support groups other than one that wants to charge me a tenner a year to join it and even then I cannot go to meetings as can't drive due to fits although they are on the phone for a chat if I need one.
If you want to contact me as we live in the same sort of area you can pm me.
Take care.
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Re: Norfolk?

Postby smiler22 » Wed Mar 31, 2010 1:04 am

http://www.nhs.uk/conditions/Fibromyalg ... ction.aspx

the above website is an nhs one i hav efound and when ipened if you type in norfolk in the box on the right hand side it brings up places like hospitals etc that do fibro.

hope this helps. also if you type in fibromyalgia in to google it usually brings up a site for fibro uk and if you go onto that it should give you a list of contacts for help lines around the uk. if you pick the one that covers your area and get in touch with them thye should be able to help you. also if you gte stuck. try writin to the fibromyalgia association. they will send you help guides and list of contacts if you ask them .
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Re: Norfolk?

Postby smiler22 » Wed Mar 31, 2010 1:11 am

hi th ewebsite for the fm association is http://www.fibromyalgia-associationuk.org

on there when it opens on the left hand menu it says contacts. press on that an dthenon the next page it says local contacts and regional coordinators in the middle listyof the oage. click on that and it will bring up a list of all the local contact people for all over england. like christine brown for midlans etc. when you click on the persons name next to your area it will bring up a page where you can ask them questions and also send them an email. this is how i did it. an dfound it very helpful. there is lots of info on there etc. and people you can email to get answers and help.
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Re: Norfolk?

Postby pained mummy » Wed Sep 28, 2011 1:02 am

Hi there...im in GY & have to travel to Addenbrookes in Cambridge....its a 2 & a half hour drive...but i refuse to change & put up with the twice yearly journey as my rheumotologist is fab...he is very understanding, im being admitted on Monday next week for 2 weeks hydro/physio & occupational therapy....im allowed home at the weekend from Fri pm to Mon midday, so i can be with my family for that short time before i go back in again....he diagnosed me in 2007 & i was living in BSE, Suffolk at the time & that was the nearest hospital with the shortest waiting time, since moving back to GY i have decided to stay with his care, as he knows me!! x
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