Help OT not listening!!!!!

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Help OT not listening!!!!!

Postby Purr » Thu Apr 01, 2010 3:39 pm

Hiya,

I have had to call my OT and ask her to come out (she due to come out anyway) as I am needing some grab rails in the shower. She asked how things were going and I told her everything, how I stuggle every day with everything but I do try and do some things around the house even if its just whashing the coffee cups, folding a few clothes, dusting (wheelchair level) at least I have done something and I feel good when I have done these things. It might seem miniscule things to some people but they are all big things for me, every movement I make I am in extream pain and tears running down my face some times but after, I feel great. I have managed to complete my task! but OT thinks otherwise, she says people with FM have to keep moving and not sit still for ANY length ot time, we have to exercise 3-4 times everyday for at least half and hour. :banghead: :banghead: :banghead:

Does she not understand how sore we are!!

She is coming to my house on Monday. What do I say to her?

P
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Re: Help OT not listening!!!!!

Postby Mr.A » Fri Apr 02, 2010 9:08 am

Is that an Occupational Therapist?
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Re: Help OT not listening!!!!!

Postby Miss sleepy » Fri Apr 02, 2010 10:39 am

Humm. While I agree that some gentle activity each day is beneficial, an hours activity a few times a day would be excruciating!!! Can you ask to see a different OT?

I'm meeting mine on 19th April so will let you know if she says anything different. I'm lucky I have membership to the spa 8 minutes down the road with a jacuzzi that's big enough to swim in so I can manage some swimming in there before retreating to the thermal suit. Would really recommend it to anyone if there is a hot pool nearby
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Re: Help OT not listening!!!!!

Postby shazq » Fri Apr 02, 2010 6:24 pm

Hi
some exercise can help keep the joints moving but not 3 or 4 times a day.

I went to a pain course and had a physio with us, she showed us a few things we could do and told us to only do it if we felt ok to do it.
The physio dept had some of those bouncy gym balls you sit on, you can just gently bob up and down and rock side to side, they are good and fun to use, be careful not to bob up and down to quickly as you might fall off, just gentle moves.

The NHS website will give you info on exercise with fibro, print some info off and ask this OT to read it.
If she will not provide aids to help you go see your GP or your council.
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Re: Help OT not listening!!!!!

Postby gillshutt » Sat Apr 03, 2010 6:49 am

I think the main problem here is that some health professionals take 'excercise' to mean things like jogging or going to the gym or pool when in fact for FMers it means little and often stuff they can manage like walking upstairs or down to the end of the road and back (if it's only a few houses long that is)

In your case it sounds as though you are doing all you can anyway... maybe just tell her you'll try, and leave it at that. It's what I used to tell the physio wen I had it... every week she'd give me exercises to do and I'd go back and explain I'd been in agony for a week because of it. Eventually she said all she could do was try and help with things like clothes folding so it caused the least amount of pain, I stopped going in the end as it was wasting her time and mine.
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Re: Help OT not listening!!!!!

Postby Mr.A » Sat Apr 03, 2010 5:15 pm

Osteotherapist?
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Re: Help OT not listening!!!!!

Postby shazq » Sat Apr 03, 2010 6:18 pm

Mr.A wrote:Osteotherapist?

yes.
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Re: Help OT not listening!!!!!

Postby Purr » Tue Apr 06, 2010 11:09 pm

Hi,

Well my Occupational Theripist came out yesterday. Came up with 1 thing---Move house!!! Yes thats not a problem, there are lots of 3bed disabled houses just for me to chose from.

I give up asking for help,its just like :banghead:

P x
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Re: Help OT not listening!!!!!

Postby smiler22 » Wed Apr 07, 2010 10:03 pm

ot can be very helpful if you get the ones that actually understand your illness but otherwise like a lot of professionals unless they actually have it themselves or know someone in family with it they are useless. they should listen to us. we are the ones living with it.

i went to see an orthopeadic specialist and he told me to loose weight and exercise but do minimal exercise daily as i would cause myself more harm.

he suggested two minutes of light exercise twice a day. as i have a very weak lower back with other things with the fibro.
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