Waiting List for Rheumatology

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Waiting List for Rheumatology

Postby nattylou » Wed May 12, 2010 12:50 pm

Hi everyone,

I started having fibro symptoms about 9 months ago (I'm 25 years old). I have a very good GP (they do exist!) who referred me to a general physician at the hospital. I saw him 3 months later, and he suggested it could be FM (which I had already worked out by then!) and referred me to the rheumatology department. 6 months later, I am still waiting for the rheumy appointment, and have been told it could be another 7 months at least!! I can't believe how poor some of the NHS departments are. I've been to the hospital for other things, and have been able to get appointments fairly quickly. Why is rheumatology so behind? If there's a problem with staffing, you would think they would just employ a couple more consultants???

Anyway, I've decided to go privately. I know that all I will get is a diagnosis, and probably no further help, but I just really want to be able to say "I have fibormyalgia" rather than, "my muscles hurt and I get tired easily" which makes some people think you're just being lazy.

My GP has also referred me to a specialist who deals with things like ME & CFS for CBT, not sure what that's going to be like, but will give anything a try!!

Natasha x
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Re: Waiting List for Rheumatology

Postby LinzWorld » Wed May 12, 2010 4:29 pm

It varies from area to area. Also, some rheumatology clinics have one doctor who is interested in Fibro and other who aren't, so instead of being referred to whoever has an appointment first, you may find yourself being sent to the most popular doctor! Plus, as you have seen a hospital doctor, you probably aren't now a waiting time statistic for referral as you have already been seen - the 18 week target is for first seeing a hospital doctor after referral from your GP, not for every appointment.
I run FibroAction, a small national charity raising awareness of Fibromyalgia Syndrome. I am not a qualified healthcare professional. If you would like medical references for any facts quoted, just PM me.
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Re: Waiting List for Rheumatology

Postby nattylou » Thu May 13, 2010 10:12 pm

Interesting what you said about being referred to a doctor with an interest in fibro - I hadn't thought of that. But besides that, NHS Rheumatology here in south wales is in a terrible state. I am on a routine waiting list - which is fair enough - but I know that they are only just now seeing the URGENT referrals from last AUGUST!! Hope other areas of the UK are better than this.
Despite all this moaning, I am still grateful to have the NHS!! It may have its faults, but it is a lot better than many of the healthcare systems in poorer countries around the world.

xxx
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