Neuro App Yesterday

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Neuro App Yesterday

Postby Littles » Fri Jul 30, 2010 11:18 am

I saw a neurologist for the first time yesterday, He was wonderful and for the first time in years I feel listened to.

He's getting me into hospital for a few days so I can get some testing done inc EMG (anyone had this test? please let me know what it's like) and MRI.

He's also getting me to see other specialists: CFS, specialised physio, I think he said joint specialist but I don't know what that means. I have already forgotten most of what he said what with fibrofog and information overload.

So it's just a case of sitting tight now to wait for the hospital addmission date and I'm going back to see him in 6 months.

I'm really thankful I got a good Dr, I hear so many horror stories from people about unsympathetic, uninterseted specialists.
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Re: Neuro App Yesterday

Postby denys » Fri Jul 30, 2010 11:34 am

Glad your getting something done for you Littles, good luck with the :hugs: :blowkiss: tests
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Re: Neuro App Yesterday

Postby hamstergirl » Fri Jul 30, 2010 11:35 am

Hi

Thats really good news for you. I hope they can come up with something that will help you then. :flowers:

I'm one of those that never had a sympathetic gp or consultant. Took 15 years for a diagnosis and then basically all i get 'Nothing i can do for you'.

If anyone knows of a sympathetic consultant in the Rotherham/Sheffield area please let me know.

Lorraine
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Re: Neuro App Yesterday

Postby fibofog » Fri Jul 30, 2010 12:48 pm

Hi
one of my consultants is a Neurologist and i had many tests including the Lumber Punture and the EMG. The EMG is uncomfortable but i wouldn't say painful,it makes your muscles contract and its a bit like a static shock,i had it on my arms and legs took about one hour,my results came back as damage to my nerve endings.The test is nothing to cause you any worry.
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Re: Neuro App Yesterday

Postby Littles » Sun Aug 01, 2010 8:49 pm

Thank you ladies :D

Fibrofog, was the nerve ending damage due to fibro? All i know somethings not right, i have a feeling like butterflies under my skin all over my body almost constantly, thats the only way i can explain it but i guess it's twitches basically, thats along with the cramps & spasms. Was yours similar?

He's already warned me there maybe nothing he can do but i need reassurance it's nothing more than fibro, that'll be enough for me.
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Re: Neuro App Yesterday

Postby Quackers » Thu Aug 12, 2010 2:32 pm

I had that test too as an outpatient and it is just as the previous person described just electrical pulses being passed through the body and nothing to worry about. Well apart from maybe accidentally kickiing the person doing the test as I did :oops:
Mine came back normal. I am soooo pleased that you have found someone a neurologist that is actually human :o Any I have been to have been really horrible :cry: Even one of my GPs said that they do tend have the worst bedside manners. Like you I too have electrical shocks, crawling in my skin, twitches, spasms as well as constant pain. I found that Tegretol has helped that a LOT. I was on Pregabalin and it helped too but for some strange reason they moved me on to Tegretol and it is just as good. Come 6 o'clock when I am due to take them my old legs start jumping and do so for a wee while until the pills kick in (pardon the pun) :lol:
So pleased you are getting so much help :flowers:
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Re: Neuro App Yesterday

Postby Littles » Mon Aug 16, 2010 2:29 pm

Thanks Quackers.

I had a call from admissions today & I'm booked in for next monday & I'll be in there until friday :yikes: I'd better pack a few books, my daughter is lending me her DS too.

I recieved a copy of the letter my neuro sent to the neurosciences ward & he's requested they talk to me about a specialised rehabilitation programme, what on earth is that?? :yikes:

It's all happening very fast which makes a change for the NHS
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Re: Neuro App Yesterday

Postby denys » Mon Aug 16, 2010 10:27 pm

Good luck Littles hope things get sorted for you :hugs: :hugs: :wave:

Some :flowers: and [chocolate] for your hospital stay :hugs:
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Re: Neuro App Yesterday

Postby loubie » Tue Aug 17, 2010 8:37 am

aw littles sorry bit late
hope all is going good for you
best of luck :hugs:
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