Pain clinic cancellation?

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Pain clinic cancellation?

Postby manic123 » Fri Jul 30, 2010 11:34 am

I have been with my Pain clinic for about 2.5 years now and had a few injections over the years (3 facet & 1 SI Joint each time), the injections were no longer working so they wanted to try acupuncture. I went 14 Jul for my first treatment and was told that they would be in touch to set up a weekly acupuncture appt for a few weeks. I received my new appt yesterday and then this morning I get a cancellation letter from the pain clinic saying that:

'following a review of your referral to Pain management clinic your appt has been cancelled...Please arrange to see your GP to discuss the outcome of this decision and any necessary action required'

:dunno: Anyone ever had this happen? I have fibro, back injury, depression anxiety..and ocd, which the latter has me obsessing trying to think what this is about, I cannot see my doctor until at least Monday now :banghead:
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Re: Pain clinic cancellation?

Postby denys » Fri Jul 30, 2010 11:40 am

Hi manic, can you ring them and ask why they have made that decision and explain that you are very anxious and cant see your P till next week ??? :hugs: :hugs: :hugs:
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Re: Pain clinic cancellation?

Postby hamstergirl » Fri Jul 30, 2010 11:46 am

Hi

I've just spent ages replying to this and it disappeared - :pcsmash: :pcsmash: :pcsmash:

Anyway keeping it brief now i haven't had a cancellation but i'm not finding my pain clinic being very cooperative and helpful.

Told me nothing more they can do for me. asked to try hydrotherapy, acupunture or physio but told none will be suitable for my kind of pain. I said how does she know, because i don't until i've tried it.

anyway she said to to my gp if i need to but after i was persistent she said she will make me an appointment but will be for approx 2 months time because of waiting list.

Lorraine
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Re: Pain clinic cancellation?

Postby manic123 » Fri Jul 30, 2010 11:54 am

I have no number for the pain clinic, just the appointment services number, but I really doubt they would say anything over the phone. I think they time these things like at to cause stress, my local gp is about the same if I don't ring at 8:30 am I cannot see anyone.

It's weird that we were just starting acupuncture and I was hoping it would help as I tried it years ago but could not afford to keep doing it. My left leg/ankle is my bad side but for the last few months shooting pains down my right leg are really bothering me...from past experience (last 10 years) I know not to expect anything promising...as once you get hopes up that things are starting to go right, there is aways a 'professional' to tell you it's all in your head :dunno:
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Re: Pain clinic cancellation?

Postby budda » Fri Jul 30, 2010 11:58 am

I was at my GP yesterday, putting me forward for pain clinic, hope i dont have to wait long, getting more light headed and had pains in my head for four days this week, two months is a long time to wait, when you are in so much pain, why dont they have more workers.
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Re: Pain clinic cancellation?

Postby hamstergirl » Fri Jul 30, 2010 11:59 am

Hi

Could you ring your appointment number and ask if they could get someone to ring you as to why your appointments have stopped. You need to tell them it is not very nice to get a letter cancelling without an explanation.

Good Luck

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Re: Pain clinic cancellation?

Postby manic123 » Wed Aug 04, 2010 11:17 am

Not much of an update as of yet, but I went to my GP and she was as surprised as I was about the letter. She is trying to chase the answers down as no one has notified her about it.

The only thing she could think of was that I missed an appointment but that is not the case as my appointment letter arrived the day before this letter and this letter told me NOT to attend the appt they had just arrranged for the 11th Aug 2010.

So once I get answers I will further update :dunno:
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Re: Pain clinic cancellation?

Postby manic123 » Tue Aug 10, 2010 11:35 am

Resolved....

My GP phoned this morning and said that the Pain Clinic had no idea why my appointment had been canceled. So now they have set me a new appt for 25th.
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Re: Pain clinic cancellation?

Postby loubie » Tue Aug 10, 2010 1:45 pm

being a pain clinic and treating fibro
they should no that stress makes us worse :roll:
what is the matter with these people :roll:
thought it was us that's supposed to be :crazy: :lol: :lol:
hope it works for you :hugs:
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Re: Pain clinic cancellation?

Postby manic123 » Tue Aug 10, 2010 3:29 pm

Tell me about it lol, it kept going around and around in my head trying to make sense as to why they would kick me out. They apparently tried to say the appointment was cancelled due to the nurse thatdoes acupuncture being on holiday....in reality I think someone made a mistake and is now trying to cover their backside as the letter was not worded inthe 'we need to re schedule your appointment....it was 'due to a Reveiw of your case....

We all know everyone needs holidays but what would it be like if when your Specialist doctor went on holiday they dropped all their patients and referred them back to their GP. Lol it's just not logical.

Fingers crossed no more silly letters x
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Re: Pain clinic cancellation?

Postby Quackers » Thu Aug 12, 2010 2:17 pm

I was diagnosed 2 days ago and have been through hell and back in the last 4 years at least. In retrospect I too can trace Fibro back to my childhood and I was more or less diagnosed as a hypochondriac then.

My biggest fear was them not finding a diagnosis this time and it came true. For 4 long years I was treated with contempt by various neurologists( note the small 'n') and one Rheumatologist.
Pain management groups and clinics......... :twisted:

I attended a group and the feeling amongst the majority who attended was that we were getting bombarded with psychology, in other words it was all in our minds :roll: Hence the group which started with 20 ended up with 5 by the time I left. Because I 'discharged' myself from the group, even though I was not physically coping with being out of the house for up to 9 hours at a time, I was discharged from the pain clinic.

There is a bit of an argument here as to whether this was a 'secretarial error' or whether I was actually discharged. I was then referred to another pain group and at my interview I was told by the Psychologist that I was more than coping with my disablement and she did not see any point in me attending hers.

Now there is a clue there? If they feel you are not coping mentally then you will be accepted. She also was shocked to hear that my doctors had me down as clinically depressed and said she had never seen anyone less depressed than what I was! :tongueout: My GP has had this letter and I pointed this out to her and demanded that I have my medical records adjusted, I will wait and see but I will not hold my breath! They do not seem to see the difference between depression and frustration!

YES I DO burst into tears because doctors were treating me like something on the bottom of my shoe. Yes I DO get upset when one consultant says I have spinal problems yet others say there is nothing wrong. This may sound silly but the best thing that has happened to me is to be diagnosed with Fibro! It is NOT all in my head :tongueout:

All those pains I had as a child, more or less the same pains I am having now, were NOT me being the family hypochondriac and being a right little attention seeker, even back then I had an aversion to bright light and always have had. I learned to not talk about my pain and cope with it.

On asking what got me out of a previous episode of 'so called back pain' I said I attedended an Chiropacter (sp) and was very rudely told that maybe I should go back to him and bother him again. Tears again, oh she really is depressed, not the fact that a doctor in a pain clinic had shouted at me and have just 5 minutes earlier promised me he had believed I had pain. That was the same doctor in the same pain clinic who could not examine me because I was so sensitive to touch. The same doctor who when I presented him with a leaflet on Fibro from his own waiting room said that although I had all the symptoms he did not see the point of diagnosing me with Fibro because there was no cure and it was just a name! :banghead:

Now there are a LOT of illnesses that have no cure should the NHS just ignore them??? Oh dear :oops: I have ranted :oops:
Jumps, metaphorically speaking, off her soap box :oops: I am preaching to the converted here. But gees it was great to get it off my chest!!! :lol: :flowers: to all Fibro sufferers and those yet to be diagnosed, keep fighting as much as you can. I just thank God for my new GP who referred me for diagnosis and stood up to the other doctors in the practise who refused to. I also thank God that the refferal was to a Rheumatologist who understood and did not treat me as though I was making it all up.
:woot: :woot: to all those doctors who still care. There are still some out there.
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Re: Pain clinic cancellation?

Postby denys » Fri Aug 13, 2010 2:53 am

Hi Quackers, have broken your post up a bit as it was a little difficult to read (fibrofog sorry) :hugs: :wave:
Denys

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Re: Pain clinic cancellation?

Postby Quackers » Sat Aug 14, 2010 7:01 pm

Thanks Denys
I know exactly what you mean. I just hate injustice, always have done and as you can see this suject is one close to my heart. When I was small Mum used to say I would do well in politics. Always have been quick to jump on my soapbox when I see wrong being done.
I was so busy correcting typos and re-reading, Fibrofog, what I was typing I never thought about that :oops:
It took me so long to type the post and correct my errors that it never occurred to me about the length of my item. I find with Fibrofog that if I don't say/put things down right away I lose the thread.
Thanks once again :flowers:
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Re: Pain clinic cancellation?

Postby denys » Sat Aug 14, 2010 8:32 pm

Its fine Quackers, thats what us mods are here for and in doing it I read what you've written properly and dont miss anything :hugs: :blowkiss:
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