Holidays with Fibromyalgia

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Holidays with Fibromyalgia

Postby Genie65 » Sat Sep 11, 2010 4:23 pm

holidays with fibromyalgia
Hi everyone,

I want to take off for a two week holiday in January to somewhere warm, as I find winter a very hard time, much more pain and also SAD. I wondered about the Canaries or Cyprus, but in both cases the flight is something like four and a half hours, and I cannot sit for so long. I am currently using a pain patch (opiod) and due to see Consultant at my local hospital's Pain Clinic, but is there any treatment that would give relief from very sore muscles, and the need to sit with my feet up because my ankles get very swollen if I sit in an upright position for more than about half an hour. My GP suggested "lots of massage in an upwards direction" for the ankles, but as Ihave arthritis I cannot get down to my ankles to do this - not to mention swollen and painful hands, fingers wrists neck etc.

Do I just have to accept that I can't travel now? I did make it down to Brighton, two hours in a car, with three breaks! but was quite exhausted by the time I arrived there (wasn't driving myself) Any experiences and tips would be much welcomed.
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Re: Holidays with Fibromyalgia

Postby loubie » Sun Sep 12, 2010 11:46 pm

hi :wave:
Cyprus is a longer flight than the canaries
i did fuerteventura & lanzarote last year 3 half hours
you can stand up in the isle for a wile if you need to
you could also try flight socks, they might help with the
swelling ? i went to Crete this year and had big fat feet and ankles
the hole time i was there, i must try and remember to buy some
flight socks myself! they might even work for traveling in the car ??
don't get all worried about going though, just take your time with
every thing and all will be OK.
book it and go an have a fab time :hugs:
loubie xx

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Re: Holidays with Fibromyalgia

Postby Elsbeth » Mon Sep 13, 2010 12:10 am

Hey

There is no reason you can't travel. You can have extra leg room seats, explain the disability and the airline will accomodate.

Myself and my partner went to Cuba in March and the flight was 10 hours. I made sure I got up and had a walk every hour, drank plenty and made sure I was medicated enough for the flight. It was fine. I too have arthritis and know what you mean, but the ankle exercises (full circles etc) do help when on the plane.


I am off to Spain in 2 weeks and I can't wait for the heat again.

As was said, book it and have fun.
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Re: Holidays with Fibromyalgia

Postby budda » Mon Sep 13, 2010 1:04 am

Hi there Genie, just back from spain, i took my pain killers on the plain with me and had my socks for traveling with, got up a few times and walked about, i to have arthritis in the knees, and i found the sun did me good, just dont rush it, take your time and enjoy yourself.
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Re: Holidays with Fibromyalgia

Postby Genie65 » Mon Sep 13, 2010 2:09 pm

Thanks for your advice Budda, you mention socks - are these special socks for circulation and to prevent DVTs? I have heard about massage boots but don't where to buy them, or even if they work.

Glad you made it to Spain, I too feel much better in the sun.
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Re: Holidays with Fibromyalgia

Postby Genie65 » Mon Sep 13, 2010 2:16 pm

Thank you to everyone who posted a reply about holidays, I am encouraged by your experiences and am now looking for suitable hotels etc. in the Canaries. Someone pointed out that Cyprus is a longer flight, so I've narrowed my search down to one area, I think Gran Canaria as I did go there many years ago in February and the weather was wonderful. Any other advice most welcome.
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Re: Holidays with Fibromyalgia

Postby denys » Mon Sep 13, 2010 3:59 pm

Wherever you decide to go I hope you have a wonderful time with lots of sun :hugs:
Denys

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Re: Holidays with Fibromyalgia

Postby loubie » Mon Sep 13, 2010 7:48 pm

gran can aria can be hilly so be careful when you book :hugs:
loubie xx

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Re: Holidays with Fibromyalgia

Postby budda » Wed Sep 15, 2010 12:26 am

Hi Genie, yes these are the socks for circulation, i bought mine in boots, glad to hear that you are going to go a holiday, the sun will do you good, hope that you have a great time and you can come back and tell us all the fun you had. :blowkiss:
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Re: Holidays with Fibromyalgia

Postby Genie65 » Fri Sep 17, 2010 6:09 pm

Thank you all so much, I do feel so much more positive - I have an appointment at the local hosplital Pain Clinic beginning of Nov., and I expect I shall be offered steroid injections undr X-Ray into the spine, plus caudal epidural. Just hope I can get that done before January comes in! Also going to rent a light box, to see if it helps with depression, my GP thought this a good idea. Trouble is not available on NHS - doesn't it cost, having fibro and other chronic conditions. I have spent all my lump sum pension trying to get better, but not it seems all I can do is try and control the pain, and learn how to deal with my feelings. Anyway these forums are so helpful, thanks again, if I had a magic wand I would wish good health for everyone here.
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Re: Holidays with Fibromyalgia

Postby LinzWorld » Wed Sep 22, 2010 8:05 am

I get specialist myofascial release massage and have found this has helped enormously with mobility and muscular issues. However this isn't usually available on the NHS.

Do be aware when flying with a disability that you can't sit in the seats behind emergency exits (usually those with more leg room).
I run FibroAction, a small national charity raising awareness of Fibromyalgia Syndrome. I am not a qualified healthcare professional. If you would like medical references for any facts quoted, just PM me.
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Re: Holidays with Fibromyalgia

Postby Genie65 » Wed Sep 22, 2010 11:56 am

I have heard about myofascial release, but where is this available? I would think that this is a specialist area, and needs to be undertaken by a qualified therapist. I think I might have to pay extra to travel 1st class, and use the old credit card! This will be the first holiday I have taken abroad since 1992, and in fact since then I have only managed five days in Brighton, found the car journey tiring and painful, but at 70 I feel I want to make the most of the time I have left! But perhaps I am being too ambitious, I will look at the far south of Spain to see if temperatures there are fairly wam in January.

Thanks for your help
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Re: Holidays with Fibromyalgia

Postby loubie » Wed Sep 22, 2010 7:05 pm

hi genie

we booked with thomson and flew on there own flight (thomson air)
have to say very good and had good leg room
just a thought for you :blowkiss:
loubie xx

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Re: Holidays with Fibromyalgia

Postby Genie65 » Wed Sep 22, 2010 8:38 pm

Thanks, will check out Thomson holidays, good to know you were happy with them.
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Re: Holidays with Fibromyalgia

Postby LinzWorld » Thu Sep 23, 2010 10:39 am

There are specialist myofascial release massage therapists all over the UK, but there are more in the south-east because that's where one of the best advanced massage schools for it is located. It's always worth checking with a therapist what experience they have with Fibro patients: my MFR therapist has seen loads of Fibro patients and says she does have to work differently with them, at least at first.
I run FibroAction, a small national charity raising awareness of Fibromyalgia Syndrome. I am not a qualified healthcare professional. If you would like medical references for any facts quoted, just PM me.
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