Rheumatologist Appointment

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Rheumatologist Appointment

Postby Ejacob » Tue Oct 12, 2010 8:45 pm

Hello.

I have my Rheum appointment on Thursday, ( i have yet to be diagnosed with anything) but i'm starting to get worried. The last few days have been good days for me, where i've had almost no pain at all. My hands aren't hurting as much as normal, i had slight pains in my arm this morning, the only real pain i have is in my legs.
I've been keeping a symptom diary, after being told that it was a good idea by a few people on here. But i'm worried the rheumatologist is just going to try and dismiss me by either saying there is nothing wrong with me or that i am obviously getting better, when i have had these periods before. I've had days where i'm perfectly fine, as if there was nothing wrong with me minus the swollen fingers and locked jaw, but then the next day i can be in complete agony.

I don't really know if there is any help anyone can give me on this topic, but as i said on my other topic, just writing this is a huge relief.


Thank you ,
Emily :) *hugs*
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Re: Rheumatologist Appointment

Postby stephanini » Tue Oct 12, 2010 8:51 pm

i was quite worried about my appointment too, for the same reasons, and i really didnt need to worry

i took a list of symptoms with me (a VERY long list) and she mainly just asked me questions, she did a quick feel of my back and chest, and although i wasnt in as much agony as usual, she seemed to diagnose me on what i said more than anything.

im sure you will be fine, your rheumy will know that you will have good and bad days etc...the best thing to do is just go with the flow and explain everything
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Re: Rheumatologist Appointment

Postby Ejacob » Tue Oct 12, 2010 8:59 pm

Thank you stephanini :) .
You've actually calmed my head down quite a lot! My body seems to like to feel fine on the day of appointments and then be a pain afterwards.
I'm glad your doctor pretty much diagnosed you on what you said, rather than the pain you were suffering at that time. I do hope mine will do the same, like you i have a massive list of symptoms and i have my mom and my boyfriend there to back me up on the fact i am in agony most days.

Thank you for your help :) .
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Re: Rheumatologist Appointment

Postby stephanini » Tue Oct 12, 2010 9:02 pm

no problem,,,make sure that you use your time wisely in the appointment...

my rheumy was very fast paced and to the point (maybe its just my fibro that makes me unable to cope), but it was easily diagnosed,

have you been told by someone that you may have fibro, or have you "self-diagnosed"?
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Re: Rheumatologist Appointment

Postby Ejacob » Tue Oct 12, 2010 9:14 pm

Thank you, i will do :) .

My doctor believes i might have it. Because my blood and urine tests were clear, there was no problems when she tested my nerves/reflexes or blood pressure. And then with the fact i was shaking so much with nerves during all my appointments, she said she thought it might be down to anxiety/depression problems and that i might have fibro. Then after looking it up, i noticed i had a lot more of the symptoms than my doctor knows about.
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Re: Rheumatologist Appointment

Postby denys » Wed Oct 13, 2010 1:53 am

Hi Emily try not to worry as Steph says, this condition is so difficult because of the variability within the symptoms and the changes in severity day to day. Take your list and if you start to panic, just say I've kept a symptom diary and here it is. They will be used to people worrying and if they are any good will cope with it. Good luck for Thursday and lets know how you get on :hugs: :hugs: :hugs: :hugs: :flowers:
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Re: Rheumatologist Appointment

Postby Ejacob » Wed Oct 13, 2010 8:40 pm

denys wrote:Hi Emily try not to worry as Steph says, this condition is so difficult because of the variability within the symptoms and the changes in severity day to day. Take your list and if you start to panic, just say I've kept a symptom diary and here it is. They will be used to people worrying and if they are any good will cope with it. Good luck for Thursday and lets know how you get on :hugs: :hugs: :hugs: :hugs: :flowers:


Thank you :) .

Just really starting to panic now, I'm such a shy person and panic so much when I have to talk to people that I don't know. So I'm already worrying about that, but for them to turn around and tell me that I'm making it all up or that I'm wrong just makes it about 20 times worse. So thank you for your comment, it has, as well as Steph's, made me feel a bit better about it all.

I will let you know how I get on.

*hugs*
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Re: Rheumatologist Appointment

Postby loubie » Wed Oct 13, 2010 9:22 pm

good luck for tomorrow :hugs:

just think of it as another doc appointment and you will be fine.
he will have your referral letter from your GP so he/she will
also have your Dr's opinion
let us no how it goes. :hugs:
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Re: Rheumatologist Appointment

Postby Ejacob » Wed Oct 13, 2010 10:25 pm

loubie wrote:good luck for tomorrow :hugs:

just think of it as another doc appointment and you will be fine.
he will have your referral letter from your GP so he/she will
also have your Dr's opinion
let us no how it goes. :hugs:



Thank you *hugs*

That's alright then, glad they will have my doctor's opinion aswell, my doctor is one of the first doctor's i have ever had that actually listens to me fully.
I will do :)

*hugs*
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Re: Rheumatologist Appointment

Postby Ejacob » Sat Oct 16, 2010 12:57 am

Well, i'm not really sure how well my appointment went :/ .
He asked me questions about what pains i had and when they began. Then he did the examination mainly concentrating on my hips and hands, which are the ONLY areas where i have joint pains. But seemed to rush through where my muscles were hurting. He pressed the tops of my arms/forearms and thighs/calfs muscles and when i said they all hurt he looked at me as if i was making it up. Also whilst checking out my fingers (due to the random swelling) he saw that they were cold, and i said that i've always felt the cold more than normal, but since the pain began my body, especially fingers have been freezing. But it seemed to take me about 5 minutes to drill it into his head that it has gotten worse, seeing as even on the hottest of days i'm frozen! And then he said to me, so you don't have weakness in your limbs. I said i did, and explained the things i can't do anymore. Then he asked me if i could brush my hair, and i said i could on the good days otherwise i can't even lift my arms that much. So he asked if it was due to pain or weakness, and i explained that that was down to pain not weakness, but i am definatly weaker than i used to be. But he really didn't seem to believe me. I tried explaining i had a symptom diary to show when all the symptoms started including other things like, memory loss, loss of sleep, anxiety, fatigue, etc. But he just brushed it under the table, so half the things that could be quite important he doesn't even know about.
At the end of the appointment he booked me in more blood tests, chest/hips/hands xrays and an ultrasound on my hands. All of which i had on the day minus the ultrasound which i have to wait for. He then sent me away saying my next appointment will be in 4 months. I read on the forms he was writing that he put "early inflammatory arthritis", to which i'm guessing the tests were there for. But that doesn't explain why i've got half the things i do have. Plus my blood results, according to my doctor, showed that i don't have any inflammation, i've also tried wearing a copper bracelet for a month to see whether it was arthritis but it did nothing.

I understand that he may just be doing them tests to rule it out, but then i don't understand why he isn't doing anything with the other pains i have. I know i should have been more assertive and really forced my symptoms onto him but with him trying to tell me i was wrong all the time (about my OWN body pains) i felt really intimidated and i even began to doubt myself.
I am just overreacting? Or does anyone else feel that i wasn't properly checked over? Because i really feel as if he couldn't have been bothered with me at all.
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Re: Rheumatologist Appointment

Postby loubie » Sat Oct 16, 2010 7:29 am

aw don't get to upset about it :hugs:

yes he has to rule every thing out first

some rheumatologists are just so rude to you and you feel like
you are just a pest to them, mine was too
after all the examination of body
he didn't even tell me i had fibro
he just terned to the nurse and said get a fibromiagia booklet
i then said about the weird pains in my head and he said
its part of your condition, go with the nurse and get your booklet
that was it!

he also booked me for loads of bloods to be taken so the nurse
told me, and he had discharged me
in other words get on with it!

so don't get upset about it as will make you feel ill even more
4 months seems a long time but will soon pass
and you will be ready for his rudeness next time :x

:hugs: :blowkiss:
loubie xx

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Re: Rheumatologist Appointment

Postby denys » Sat Oct 16, 2010 9:24 am

Hi Emily, I have deleted your other post as it may just confuse everyone, they will think they've answered you and then find the same post again and wonder where their answer has gone :lol: I wouldnt worry too much about the rhuemy, he will be starting from scratch and ruling everything out for himself before he makes a final diagnosis. 4 months seems like an age but as loubie says it will pass in a flash. At least things are moving forward and you are a step closer to finding out what is wrong for definite :hugs: :hugs: :hugs: :flowers:
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Re: Rheumatologist Appointment

Postby Bex81 » Mon Feb 21, 2011 3:40 pm

Hi all :)
I am on a very long waiting list for rhumey, My GP myself and my partner have done a lot of reserch and are in agreement that I have fibro, I am on heavy duty pain killers and amatriptaline to help me sleep, but am really strugelling atm! Its all over my body, legs, knees, ankles, hips, arms, elbows, hands, wrists and more recently my shoulders and the back of my head! I struggle to do anything and cant brush or wash my hair, make lunch or simple tasks like that. I use crutches to help me get around and wrist braces help with the wrist pains.
I have been on the rhumey list sice october I phoned them in december and was told I was 8 weeks into a 16 week wait. Having not heard anymore and my GP has written twice to try and get me seen quicker I rang again last week and was told I am now 13 weeks into a 26 week wait!! I dont understand how this is possible??!!!
I told my GP and he said he'll ring the hospital and try to speak directly to the specialist I'm waiting for to see if i can get seen sooner. I understand how busy the NHS is and how much pressure they are under and I dont want to push in but am desperate!! I'm concidering tyring to get the appointment privately if we can afford it!!
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Re: Rheumatologist Appointment

Postby shazq » Mon Feb 21, 2011 4:27 pm

Hi Bex
TBH the Rheumy will not do much, they normally DX fibro then your gp will continue treatment with pain meds.

Most Gp`s used to send their patients to see a Rheumy just to get the dx and to rule out other things but we are hearing many Gp`s are now making the dx themselves.

Have you tried changing your meds around? after a while our bodies become used to meds so it might be worth asking your gp for a pain review.
When you do see the Rheumy dont forget to write things down as we tend to forget things when we go in and try to take someone in with you. :goodluck1: with your app. :hugs:
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Re: Rheumatologist Appointment

Postby tonydin » Tue Feb 22, 2011 1:00 am

ten years ago i saw a rummey like the one you discribe, ruled out fibro and every thing else. this time i saw another who was much more tourgher and dx fibro, so its all a bit variable im afriad
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