Professor John E Davies

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Professor John E Davies

Postby georgina.hiam » Sun Jan 30, 2011 11:49 pm

Hi, I am a newbie, I have read that professor John e Davies is a specialist in fybro and ME, has anyone been seen or treated by him, my husband is willing to pay for me to have private treatment with him, but just wanted to know if it works or if he has helped anyone else? Thanks georgie x :roll:
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Re: Professor John E Davies

Postby Adele » Mon Jan 31, 2011 12:06 am

hi georgie, :welcome: to the forum.

there has already been a thread about this so it's worth having a look. i saw him on the nhs and was disappointed.

although i had already been diagnosed for some time he checked my tender points and diagnosed me again :dunno: he told me to take gabapentin and that was it.

i have seen many specalists and for me the best treatment i have received has been from my gp as i see him regularly (every week or two). he knows me and he is close by if i have a reaction to medication or have other problems.

you need to take into consideration not only the cost of the consultation but the cost of treatment as well.

:goodluck1: with making a decision.

adele xx :blowkiss:
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Re: Professor John E Davies

Postby nutty1 » Mon Jan 31, 2011 12:25 am

:wave: welcome to forum ,sorry cant help .but i see 2 neurologists and my dr.have been excellent with me .but it took 20 years to get to here . :fingerscrossed: for you
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Re: Professor John E Davies

Postby denys » Mon Jan 31, 2011 11:33 am

Hi Georgie, some people rave by him, others dont :dunno: :dunno: why not have an initial consultation with him and see how you find it. You dont have to go back if you arent impressed but you're covering your bases and you never know it may work well for you and if it doesnt then at least you wont be left wondering (if that makes sense) :hugs: :hugs: :wave:
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Re: Professor John E Davies

Postby georgina.hiam » Mon Jan 31, 2011 10:05 pm

Thanks guys, that really helpful I think your right Denys I will discuss it with my hubby further and ask my rheumy what she thinks too

Thanks again xx
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Re: Professor John E Davies

Postby fabme » Mon Jan 31, 2011 10:26 pm

Hi

One of our support group members has been to see him recently in London. Her GP refered her to him on the NHS and she waited about 8-10 weeks to see him rather than pay to see him privatly in Bristol. She felt for her it was worth it just for someone to listen to her understand her and not treat her like a hypochondriact. He rediagnosed her and changed her tablets and she has an open appointment to go back if the pain relief doesn't work.

Hope it helps

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Re: Professor John E Davies

Postby aok41 » Thu Feb 24, 2011 3:05 pm

Hi saw proffessor Davis privately for the first visit and then on the nhs a couple of years ago. My consultation lasted for less than 10 minutes. He didnt examine me, briefly listened to my symptoms, then told me i had fms ( i was diagnosed years earlier) and he put me on anti epeilepsy drugs.During the time i took them, i was acting strangely, and i remember putting some petrol in mt car then getting in the back and wondering where the seat belt had gone! I saw him again and he wasnt really interested and changed to another anti epeilepsy drug. Again there was no effect on the fms. Itook them for a couple of weeks, then one night i had the most awful thing happen. Iwas watching tv in bed and suddenly i started to jerk uncontrollably.I was aware of what was happeing but couldnt do anything to stop it.When it did stop i bent down to pick up a glass of water that i had knocked over and as i did, i started jerking again. I knew i was having some kind of fit and i was terrified. It seemed to go on for ever. I rang proffesor Davis clinic and said i needed to speak to him urgently, and had to wait nearly a week for him to ring back. When he did get in touch he told me to stop taking the tablets and he gave me an appointment to see him( obviuosly i had stopped taking the tablets after the fit). Iwent to the clinic. and had a 5 minute consultation during which he made it clear he didnt know what to do to help me.
I honestly think he is on a money making racket because at no time did he offer to see me on the nhs, i sorted that out for myself. I think i paid about £100 on my first visit and as i said it only lasted 10 minutes. If you think how many people he could see in a day charging this amount he is making a fortune. It is not for me to tell anyone what to do,but if you do, ask your gp for a refferal, DONT pay and be careful of the medication and its side effects. :dunno:
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Re: Professor John E Davies

Postby budda » Fri Feb 25, 2011 12:12 am

Hope you are feeling alright after all that. :hugs:
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Re: Professor John E Davies

Postby georgina.hiam » Sat Feb 26, 2011 11:44 pm

Oh my goodness it sounds like he put you thru he'll bless ya hope all is well now xx
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Re: Professor John E Davies

Postby guesstimation » Wed Mar 30, 2011 2:01 pm

I saw him in November when I was getting nowhere with my GP, I am very lucky that I have a extremely supportive family who paid for me to see him. I had 2 appointments, he examined me and concluded I had Myofascial pain syndrome, he treated me with trigger point injections and prescribed a muscle relaxant drug and acupan. The acupan makes me feel really sick so I didn't take that but something worked as 2 weeks after seeing him I was back on my feet. I had been stuck at home unable to work for about 6 months.

I can't afford to see him again, I am unsure if he was worth seeing or not was it a coincidence or not. I didn't feel I got a fantastic service for the cost but it was after seeing him I turned a corner.

I finally saw the NHS guy a month ago but he is a psychiatrist and he completely shunned what P. Davies had prescribed and has me off them and trying other things which is not going well, I mention in my introduction though that I do no know if this is due to coming off the other drugs, side effects to the new ones or a relapse.

I'd say definitely go for it with him if you can do it on the NHS but to pay for it I am still unsure and am not jumping to go back again just yet - though if the NHS guy keeps making me feel the way I do now I may well do so!
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Re: Professor John E Davies

Postby Adele » Wed Mar 30, 2011 2:26 pm

hi and welcome, have you tried to see prof. davies on the nhs? also why are you seeing a psychiatrist for your pain? have you been refered to another rheumatologist? sorry about all the questions.

:hugs: adele
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Re: Professor John E Davies

Postby guesstimation » Wed Mar 30, 2011 2:49 pm

I don't think I can be referred to him on the NHS as I am too far away but will look in to it.

I saw the psychiatrist as he is apparently the "specaialist" in my area, load of bull if you ask me :? But if I refuse to the the NHS specialist for my area no matter what he is I am not going to get anywhere, I've been banging my head against a brick wall for a long time.

I have asked about a referral to a pain clinic etc but getting nowhere again, unfortunately I have also had 3 doctors in the last year due to house moves and them being insistent on me not being allowed to stay with them - I think they like it when I move on it's all too complicated for them. :roll:

I saw my new GP on Monday (I saw him for the first time 2 weeks ago and he proceeded to tell me I was weird and waved his hands in the air dismissing most things I had to say). He was a bit more professional this week as he had a student in with him.

If you look at my "howdy" post in the intro section it explains a bit more about my situation.

Thanks for your reply!
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Re: Professor John E Davies

Postby Evamaria » Sat May 18, 2013 1:31 pm

Ref Prof Davies, he is a life saver, he not only diagnosed but given me treatment (everyone else treated me like a fraudster - i was told it's all placebo), he recognised the neurological disorder of my autonomous nervous system and how it affects the function of my muscles and the cognitive function. To help manage my symptoms I am on amitriptiline and clonazepan that restored my sleep and reduced pain, plus acupan for the pain. However I fibromyalgia continue to show its ugly face in different part of my body - internal organs (gut, stomach, chest pain), I have been hospitalised few times, but even UCLHospital didn't know how to help me, so I am going to try anestetic injections.
And hopefully see a neurologist for further examination.
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Re: Professor John E Davies

Postby TATT » Sat May 18, 2013 7:46 pm

I saw Prof Davies earlier this year and was prescribed Flupiritine on a private prescription. It has given me my sleep back with no side effects. My mood is better and I can generally do more than I could.

I still have to pace and of course my hubby pays for £120 every 2 months but it's so worth it. I still take tramadol but it has decreased a lot of my symptoms and given me a bit of my life back. I have only seen him once and I get repeats on my prescription, and need to see him every 6 months.

He is a doctor who believes in Fibro and has helped me. Goodluck with your appointment.

Tatt x
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Re: Professor John E Davies

Postby Iceskatemum » Wed Jun 12, 2013 9:42 am

It was with some sadness that I read in another FB group that Prof Davis has recently died,not sure when or how . I know some had very different views on his treatment regime but given we don't have many advocates it is bad for FM as a whole when someone with a specialism such as he had passes.
My condolences to his family ,friends work colleagues and patients.
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